Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3346 comments
https://www.paiklangna.com
https://diamondlnwpg168.com
https://diamondlnwpg168.com/บทความ
https://diamondlnwpg168.com/pgslot-no-1
https://diamondlnwpg168.com/contact
https://github.com/EllanJiang/GameFramework/issues/76
Peace, love, and light xxx.
I am a specialist and committed to 100% organic and all-natural herbal medicine. If you have complex issues that require urgent treatment, I can help with the following:
*Irritable Bowel Syndrome
*Fertility Herbs/Pregnancy
*Trichomoniasis
*Chlamydia
*Genital Herpes
*Herpes
*Cold Sores
*Lou Gehrig’s Syndrome
*Sickle Cell Anemia
*Pyromyalgia
*Body Odor
*Cancer
*Diabetes
*High Blood Pressure
*Crohn’s Disease
*Lyme Disease
*Ménière’s Disease
*HIV & ADD
*Large Penis
*Large Butt and Breasts
*Migraines, Muscle Cramps, Muscular Dystrophy, and much more.
If you need help and support with products for rapid health that provide recommendations and positive results, send me a WhatsApp message at +1 360 591-5543. If you have any questions, please contact me via email or WhatsApp Sincerely,
https://www.paiklangna.com
https://diamondlnwpg168.com
https://diamondlnwpg168.com/บทความ
https://diamondlnwpg168.com/pgslot-no-1
https://diamondlnwpg168.com/contact
https://github.com/EllanJiang/GameFramework/issues/76
I’d like to recommend the Morphohack Cyber Security team if you ever intend to recover your Bitcoin, USDT, or other crypto assets.
I happen to be one of many people who lost their crypto assets after a distasteful experience with a fake crypto investment scam. They kept requesting more deposits in order to “grant” me access to my wallet. If not for the intervention of the Morphohack Cyber Security team, I would have lost everything completely.
Morphohack intervened on my behalf and began what seemed to be a full recovery process and a cyber attack on these con men.
I’m putting this out here to share my plight and encourage others to act quickly and contact Morphohack if you happen to be in a similar situation. Do not believe that by paying more, you’ll be granted access to your wallet by these investment scammers. Instead, contact the Morphohack Cyber team to help you recover your crypto assets immediately.
Their contact email is as follows: MORPHOHACK@CYBERSERVICES . COM
Warm regards,
Ross Colby
Kent, Connecticut
Peace ,love and light xxx.
I am a specialist and I give 100% in organic & Pure natural herbal medicine and If you have any complex situations that needs urgent attention.I can help with the following problems,
*Irritable Bowel Syndroa
*fertility herbs/pregnancy
*Trichomoniasis
*Chlamydia
*Genital herpes
*Herpes
*Cold Sores
*Lou Gehrig’s disease
*Sickle cell
*Fribomyalgia
*Body odor
*Cancer
*Diabetes
*High blood pressure
*Crohn’s Disease,Lyme disease
1. Menieres disease,
2. Migraine headaches,
3 Muscle spasms,
4 Muscular dystrophy etc…
Contact.for help Products with the recommendation and positive results..
WhatsApp +1) 360) 591-5534. if you want any help and supports.
Best Regard.!!