It’s been a little while since my last blog, I would love to write more but there have been so many things going on that it has been difficult to find the time. Which is a wonderful problem to have for someone in my position, and something that I am grateful for. It’s very important to me to stay in touch with you all and so I have found a few hours to put together an update.
So what have I been working on I hear you ask… The first thing to tell you about is probably the most serious. I’ve been in discussions with my various medical teams about whether or not I should have a tracheostomy. For those of you who don’t know what that is, it’s a procedure which places a ventilation tube directly into my trachea (windpipe), bypassing my mouth and nasal passages.
Why now? Well, my mouth and nasal passages don’t really do anything of use anymore. I can’t eat, drink, speak or express anything. In fact they pose more of a risk than anything. Since I can’t control the production of my saliva anymore or manage it in my mouth: there is a real risk that I could aspirate saliva and develop a life threatening chest infection as a result. So bypassing that area definitely seems to have some benefits.
However, actually undergoing a tracheostomy procedure comes with its own risks, particularly recovery. It’s also necessary to think about the reality of life with a trachy, which is not simple for me or my care team. We ultimately came to the decision that a trachy is not for me. We are going to be more proactive in the management of my saliva and stay on my non-invasive ventilation set up.
This has all been quite difficult for me mentally. When I began my MND journey I was very honest with myself, I accepted the decline I was going to experience and researched the interventions which would be available to me. Did I want to live with:
- A Ventilator - Yes
- A Wheelchair - Yes
- Hoists - Yes
- Having others drive my chair - Yes
- Only being able to communicate with my eyes - Yes
- Being able to eat through a tube - Yes
- Requiring 24 hour care - Yes
- A Tracheostomy - Yes
So I had always envisaged that at some point I would require and have a tracheostomy. For me it was always a life extending intervention. Going through this process with my team and finding out that it was not going to be appropriate for me has been difficult to accept. But I’m pleased to say that I now fully agree with the decision and am feeling positive about the future again.
There is something else that strikes me about the list above though. The Tracheostomy question is the last one. I have made and implemented all my options. That’s a scary thought. I was however very encouraged by my respiratory consultant who told me that he “knew of patients who had survived for many years in my situation, and there was really no way of knowing how long I might continue.”
My response? “I’ll show you then,” and that I will.
In other news! I’m going on a little holiday to London in a couple of weeks. I am very excited to be going to the Just Giving Awards at the Roundhouse on the 18th of September. I have been shortlisted for the Outstanding Commitment award from a pool of 18,000+ nominees. Thanks to everyone who cast a vote for me, I'm trying not to get too excited and for once I am glad that I can’t really express with my face: my loser's face would be Horrendous!
In other unpublicised news I am delighted to let you know that I have been regionally shortlisted for the top fundraiser award at this year’s Pride of Britain Awards! Keep your eyes on ITV Central news on the week commencing 16 September to see my nomination film and find out if I can win!
I have also been organising the celebration event for our amazing Fifty50 fundraisers. We launched the Campaign in October 2023 with the goal of raising £25,000. I am ecstatic to report that with over a month of the Campaign still to run our total raised (including Gift Aid) stands at over £36,000!! Thanks so much to all the fundraisers and to the over 1200 people who have made donations.
The event should be lots of fun, I’ve been hard at work organising some fun activities and little surprises, including the official announcement of my next fundraising challenge! (It’s a biggie)
Thanks for reading as always even as this one has felt more like a newsletter than a blog (weirdly listening to editors today…)
Sam x
810 comments
Hi Everyone Join me as I share the wonderful work of psychic medium Ibrahim to say thank you for always making people smile with Lottery Winning Numbers psychic medium Ibrahim, who help me win a lot of money few weeks ago on lottery spell, I love playing lottery but I have never won, and i always have believe that I will win a huge amount in lottery game someday, I search online how to win a lottery and faithfully i came across psychic medium Ibrahim when someone was testifying how psychic medium Ibrahim helped him to win a lottery Mega Millions, i contacted psychic medium Ibrahim and told him I need the lottery winning numbers to win my game. he gave me lucky winning numbers and tell me to go play my game psychic medium Ibrahim also instructed me on how to go about it, after played my Mega millions lottery ticket on Friday and to my greatest surprise my name came out as a winner, i won $87,000,000.00, Mega Millions i have never seen such money all my life, but with the help of psychic medium Ibrahim now i have that much. If you need lotto winning number do not give up contact him or you want money solution and become RICH just visit psychic medium Ibrahim:
profibrahim98@gmail.com
WhatsApp +27785149508.
Website:https://africanspellcaster.mystrikingly.com
https://www.youtube.com/shorts/s1ewUeVVAHk
https://write.as/ibra/
https://uaeplusplus.com//pages/registerNew/companyRegistered.aspx?ID=fqaUj4kc2u8=
I just want to say Thank You to everyone who supported me through the years. My name is Manuel Franco, 24, New Berlin Wisconsin. My story of how I won the Powerball lottery of $768.4M is a bit of a tale. I have been playing Powerball tickets for 6 years now since I turned 18. I bought my first ticket on my 18 birthday. I was feeling very lucky that day because I had contacted Prof Ibrahim to help me with the winning Powerball numbers. I really had that great great feeling that I looked at the camera wanting to wink at it. I only did a tiny part of it and trusted him. He gave me the numbers after I played a couple other tickets along with it for $10. I checked my ticket after the winnings came online and saw the numbers were correct including the Power play. I screamed for about 10 minutes because it felt like a dream. I had won $768.4M. This happened in April, 2021. You can check my winning testimony with the lottery officials just with my name search. Thank you Prof Ibrahim. Well, his email profibrahim98@gmail.com,Tel: +27785149508 /https://africanspellcaster.mystrikingly.com,https://psychicmedium.nolt.io/ https://photos.google.com/album/AF1QipOW2O3Qs4DZ8RHkSGMVeW7qCgxM5zPbPni6-KS1 https://imgur.com/gallery/27785149508-powerful-revenge-spells-to-punish-someone-deeds-ntbT5KN https://www.youtube.com/shorts/s1ewUeVVAHk,https://write.as/ibra/
Good day everyone, some statements people make may appear unbelievable, yet they reflect their truth due to their personal experiences. I’m a truck driver and I enjoy playing the lottery, but it’s been 10 years without winning anything significant. I became upset over this and chose to seek help online from anyone skilled in using spells to win the lottery since my grandma had faith in spells and a story about Abdul Basser spells drew my interest. I obtained his contact information, and we discussed all aspects of how he could assist me. In less than 24 hours, Abdul Basser provided me with the lottery numbers I required after he completed the spell for me. I purchased my ticket online, followed the guidance of Abdul Basser, and now my life is fortunate because I won a $82.5 million Jackpot in the lottery I participated in. I’m thankful to Abdul Basser because he truly keeps his promises and I will donate $2.5 million to the orphanage homes in my town.
+27717403094 / , Email basserabdul59@gmail.com ,visit, https://africanancientspells.mystrikingly.com/
https://youtu.be/t8kWs1Le54E" rel="nofollow">https://africanancientspells.mystrikingly.com///https://youtu.be/t8kWs1Le54E
https://streamable.com/muo5hm
https://rumble.com/v4httqr-27717403094-astrologer-easy-love-spells-that-really-work-instantly.html
I never knew I could get my fiancé back to me until I contacted Prof Ibrahim who helped me. I had a terrible misunderstanding with my man and we went different ways. I was down emotionally and knew not what to do to help the situation. So I got to know about Prof Ibrahim. I contacted him and got him to help with my problems. He told me all that I needed to know and understood and I complied with procedures and he eventually fix the problem for me and now I and my fiancé are back together and I know we will get married soon. It won’t have been possible if Prof Ibrahim didn’t help me as promised. The result of his work surely manifest after 58 hours and it 101% guaranteed. Its visible for me to see the effect of the result of everything he did for me and truly the love and affection between i and my fiance is restored back fully and it gladdens my heart that i didnt loose him to anyone out there. He can as well help you if you reach out to him now. Text him on WhatsApp via +27785149508 /
Email:profibrahim98@gmail.com
https://africanspellcaster.mystrikingly.com
https://www.youtube.com/shorts/s1ewUeVVAHk
powerfulspellcastertraditionalhealer27785149508197.home.blog
https://write.as/ibra/
https://photos.google.com/album/AF1QipOW2O3Qs4DZ8RHkSGMVeW7qCgxM5zPbPni6-KS1
for quick results.
I met my wife when I was working and living in Texas Dallas. Ever since we got married, it has been all good till she decided to go for a summit in Baltimore where she met someone who became closer to her and eventually he eloped with her. All my efforts to get back home to me was all in vain and her family did their best to reunite us but nothing worked. Just like everyone else, I came in contact with Prof Ibrahim and he eventually did wonders and now my wife is back to me. It was revealed that she was hypnotized by the guy who eloped with her. I am glad I never let my emotions get the best of me to have ended my marriage with her. Prof Ibrahim is a strong psychic medium and trust him when he says the results will manifest just after 58 hours. Contact him now if you need any help text him on WhatsApp +27785149508/visit his websites for more services
https://africanspellcaster.mystrikingly.com
powerfulspellcastertraditionalhealer27785149508197.home.blog
https://photos.google.com/album/AF1QipOW2O3Qs4DZ8RHkSGMVeW7qCgxM5zPbPni6-KS1
https://uaeplusplus.com//pages/registerNew/companyRegistered.aspx?ID=fqaUj4kc2u8=
https://imgur.com/gallery/27785149508-powerful-revenge-spells-to-punish-someone-deeds-ntbT5KN
https://write.as/ibra/
https://psychicmedium.nolt.io/