It’s been a little while since my last blog, I would love to write more but there have been so many things going on that it has been difficult to find the time. Which is a wonderful problem to have for someone in my position, and something that I am grateful for. It’s very important to me to stay in touch with you all and so I have found a few hours to put together an update.
So what have I been working on I hear you ask… The first thing to tell you about is probably the most serious. I’ve been in discussions with my various medical teams about whether or not I should have a tracheostomy. For those of you who don’t know what that is, it’s a procedure which places a ventilation tube directly into my trachea (windpipe), bypassing my mouth and nasal passages.
Why now? Well, my mouth and nasal passages don’t really do anything of use anymore. I can’t eat, drink, speak or express anything. In fact they pose more of a risk than anything. Since I can’t control the production of my saliva anymore or manage it in my mouth: there is a real risk that I could aspirate saliva and develop a life threatening chest infection as a result. So bypassing that area definitely seems to have some benefits.
However, actually undergoing a tracheostomy procedure comes with its own risks, particularly recovery. It’s also necessary to think about the reality of life with a trachy, which is not simple for me or my care team. We ultimately came to the decision that a trachy is not for me. We are going to be more proactive in the management of my saliva and stay on my non-invasive ventilation set up.
This has all been quite difficult for me mentally. When I began my MND journey I was very honest with myself, I accepted the decline I was going to experience and researched the interventions which would be available to me. Did I want to live with:
- A Ventilator - Yes
- A Wheelchair - Yes
- Hoists - Yes
- Having others drive my chair - Yes
- Only being able to communicate with my eyes - Yes
- Being able to eat through a tube - Yes
- Requiring 24 hour care - Yes
- A Tracheostomy - Yes
So I had always envisaged that at some point I would require and have a tracheostomy. For me it was always a life extending intervention. Going through this process with my team and finding out that it was not going to be appropriate for me has been difficult to accept. But I’m pleased to say that I now fully agree with the decision and am feeling positive about the future again.
There is something else that strikes me about the list above though. The Tracheostomy question is the last one. I have made and implemented all my options. That’s a scary thought. I was however very encouraged by my respiratory consultant who told me that he “knew of patients who had survived for many years in my situation, and there was really no way of knowing how long I might continue.”
My response? “I’ll show you then,” and that I will.
In other news! I’m going on a little holiday to London in a couple of weeks. I am very excited to be going to the Just Giving Awards at the Roundhouse on the 18th of September. I have been shortlisted for the Outstanding Commitment award from a pool of 18,000+ nominees. Thanks to everyone who cast a vote for me, I'm trying not to get too excited and for once I am glad that I can’t really express with my face: my loser's face would be Horrendous!
In other unpublicised news I am delighted to let you know that I have been regionally shortlisted for the top fundraiser award at this year’s Pride of Britain Awards! Keep your eyes on ITV Central news on the week commencing 16 September to see my nomination film and find out if I can win!
I have also been organising the celebration event for our amazing Fifty50 fundraisers. We launched the Campaign in October 2023 with the goal of raising £25,000. I am ecstatic to report that with over a month of the Campaign still to run our total raised (including Gift Aid) stands at over £36,000!! Thanks so much to all the fundraisers and to the over 1200 people who have made donations.
The event should be lots of fun, I’ve been hard at work organising some fun activities and little surprises, including the official announcement of my next fundraising challenge! (It’s a biggie)
Thanks for reading as always even as this one has felt more like a newsletter than a blog (weirdly listening to editors today…)
Sam x
810 comments
Illuminati organization 27730066655 JOIN ILLUMINATI ORDER FOR RICH, WEALTH, FAME, LOVE and LUCK Welcome to the great temple of Illuminati worldwide. Are you a Pastor, Politician, Business man or woman, Musician or an Artist, Are you employed by some company do you want to be famous or you want to become rich or powerful you can achieve your dreams by being a member of the Illuminati with this all your dreams and heart desire can be fully accomplish People say that the Illuminati are exceptionally wealthy. Is that true? call Prof Aafa27730066655 ,email ,profaafa22@gmail.com
JOIN ILLUMINATI ORDER FOR RICH, WEALTH, FAME, LOVE, LUCK,call +27730066655
Join Illuminati society – world wealthy society – call +27730066655
You were born free and die free but will you live free? As long as habit and routine dictate the pattern of living, new dimensions of the soul will not emerge. JOIN our powerful society to gain and practice secret knowledge and information that was once only accessible by the privileged elite and society members. This is a private, exclusive, members-only global association.
No matter how much the rich have, they always want more. And the richer you are, the more you get. And the more you get, the less others get, so you are actively making the poor poorer. Isn’t that the world we live in? That’s how we have the 1% versus the 99%. They will take everything from us, unless we take it all back from them. The difference between a successful person and others is not a lack of strength, not a lack of knowledge, but rather a lack of will.
GET OUT OF POVERTY
Get off the poverty road and onto the path of prosperity now. If money has been tight and things haven’t been going very well financially, Our Illuminati society will empower you to change your life and live your life to the fullest.
INCREASE YOUR INCOME call +27730066655
Join our society so that you are empowered to get paid what you are worth. If you feel you’re just not getting paid what you’re worth and would like to increase your income, then you will be in the right place.
This works in one of two possible ways; many people get a sudden, unexpected promotion at the same company they have been working for, earning a lot more money than before, and other people find that they are suddenly presented with opportunities to move to a different job, making a lot more than they were before.
Are you self employed? a businessman? Do you want to become super rich than you are today..All our services have no string attached and no side effects to anybody
Call, +27730066655,email,profaafa22@gmail.com
+27730066655 HOW TO JOIN ILLUMINATI AND GET RICH IN JOHANNESBURG SOUTH AFRICA CONTACT PROF AAFA If you have the desire and a Dream to join the Illuminati from anywhere in the World; Call us on our Cell phone Number +27730066655 You will be required to answer the following questions over the phone before we consider your request for membership 1. What is your name? 2. How old are you? 3. What do you do for a living? 4. How many time have you ever tried to join Illuminati? 5. Why do you really want to join our legacy? How to Join Illuminati wealth The first stage is usually the Initiation Stage. Immediately after the Initiation, new members are given a Money Awards equivalent to US $1,500,000 to reorganize their Lives in-order to fit the class and status of the club members. Others Money Awards are communicated after the Initiation stage. However this is the basic requirements needed during the Initiation Stage. Joining Members around South Africa will join with Membership Initiation Fees: R 2,000.00 Official Agent No: +27730066655 Once you make the Payment and after filling and submitting the Registration Form, you are then invited to the Illuminati Lodge where you undergo the Initiation Ceremony. Seven days after the Initiation Ceremony, you are then Invited to an Awarding Ceremony where you are rewarded with US $2,500,000 This Money is to enable you change your Lifestyle and your standards of Living so as to match with that of the Legacy Members. Money Awards after Initiation: US $2,500,000 NB: Illuminati International Provides equal opportunity to all joined members. We aim to empower our members join illuminati +27730066655
Prof Aafa,
+27730066655
My name is Joyce Abraham, and I live in Framingham. I want to sincerely thank Prof Ibrahim for his amazing help in revealing the lottery winning number that led me to win $4 million in the Massachusetts State Lottery’s “777” instant ticket game. After asking Prof Ibrahim for help, he told me that he will need to cast a lottery spell so that he could reveal the lottery winning numbers to me so I provided the requirements to cast the spell and after casting the spell, he shared the winning number with me, and I won. I chose a one-time payment of $2.6 million before taxes. I’m truly grateful for Lord Bubuza’s guidance and the blessings he’s given me. His help in revealing the winning number was a miracle, and I will always be thankful. With this money, I plan to buy a new home. This win is proof of his power, and I’ll continue to thank him. If you need help with the lottery, I highly recommend contacting Prof Ibrahim via email: profibrahim98@gmail.com or WhatsApp: +27785149508,https://africanspellcaster.mystrikingly.com
https://www.youtube.com/shorts/s1ewUeVVAHk
https://uaeplusplus.com//pages/registerNew/companyRegistered.aspx?ID=fqaUj4kc2u8=
https://write.as/ibra/
powerfulspellcastertraditionalhealer27785149508197.home.blog
Top Secret Way To Win Lottery With The Help Of Abdul Basser Call 27717403094 I saw testimonies online on how Abdul Basser helped a lot of people in winning huge amounts in the lottery, so I decided to contact him for winning numbers. I contacted this man and he did a spell and he gave me the winning lottery numbers. But believe me when the draws were out I was among the winners. I won FOURTEEN MILLION,FIVE HUNDRED AND NINE THOUSAND AND FIVE HUNDRED DOLLARS ($14,509,500) I have confirmed Abdul Basser is real and guaranteed. Now I am a living testimony of the good works of Abdul Basser, a gifted man with great powers, it is my secret but I decided to make the world known too. It might be a help to any one who is interested. My comment might look funny to you but it is the truth. And I promise you that it will not be funny when you win and share a testimony with others. This is a secret to winning the lottery so I advise you to do the same. It’s not everybody that is naturally lucky, if you have problems winning the lottery, the solution to win is Abdul Basser So contact him now for you to confirm my testimony. Email: basserabdul59@gmail.com Call or text him:27717403094https://africanancientspells.mystrikingly.com/