It’s been a little while since my last blog, I would love to write more but there have been so many things going on that it has been difficult to find the time. Which is a wonderful problem to have for someone in my position, and something that I am grateful for. It’s very important to me to stay in touch with you all and so I have found a few hours to put together an update.
So what have I been working on I hear you ask… The first thing to tell you about is probably the most serious. I’ve been in discussions with my various medical teams about whether or not I should have a tracheostomy. For those of you who don’t know what that is, it’s a procedure which places a ventilation tube directly into my trachea (windpipe), bypassing my mouth and nasal passages.
Why now? Well, my mouth and nasal passages don’t really do anything of use anymore. I can’t eat, drink, speak or express anything. In fact they pose more of a risk than anything. Since I can’t control the production of my saliva anymore or manage it in my mouth: there is a real risk that I could aspirate saliva and develop a life threatening chest infection as a result. So bypassing that area definitely seems to have some benefits.
However, actually undergoing a tracheostomy procedure comes with its own risks, particularly recovery. It’s also necessary to think about the reality of life with a trachy, which is not simple for me or my care team. We ultimately came to the decision that a trachy is not for me. We are going to be more proactive in the management of my saliva and stay on my non-invasive ventilation set up.
This has all been quite difficult for me mentally. When I began my MND journey I was very honest with myself, I accepted the decline I was going to experience and researched the interventions which would be available to me. Did I want to live with:
- A Ventilator - Yes
- A Wheelchair - Yes
- Hoists - Yes
- Having others drive my chair - Yes
- Only being able to communicate with my eyes - Yes
- Being able to eat through a tube - Yes
- Requiring 24 hour care - Yes
- A Tracheostomy - Yes
So I had always envisaged that at some point I would require and have a tracheostomy. For me it was always a life extending intervention. Going through this process with my team and finding out that it was not going to be appropriate for me has been difficult to accept. But I’m pleased to say that I now fully agree with the decision and am feeling positive about the future again.
There is something else that strikes me about the list above though. The Tracheostomy question is the last one. I have made and implemented all my options. That’s a scary thought. I was however very encouraged by my respiratory consultant who told me that he “knew of patients who had survived for many years in my situation, and there was really no way of knowing how long I might continue.”
My response? “I’ll show you then,” and that I will.
In other news! I’m going on a little holiday to London in a couple of weeks. I am very excited to be going to the Just Giving Awards at the Roundhouse on the 18th of September. I have been shortlisted for the Outstanding Commitment award from a pool of 18,000+ nominees. Thanks to everyone who cast a vote for me, I'm trying not to get too excited and for once I am glad that I can’t really express with my face: my loser's face would be Horrendous!
In other unpublicised news I am delighted to let you know that I have been regionally shortlisted for the top fundraiser award at this year’s Pride of Britain Awards! Keep your eyes on ITV Central news on the week commencing 16 September to see my nomination film and find out if I can win!
I have also been organising the celebration event for our amazing Fifty50 fundraisers. We launched the Campaign in October 2023 with the goal of raising £25,000. I am ecstatic to report that with over a month of the Campaign still to run our total raised (including Gift Aid) stands at over £36,000!! Thanks so much to all the fundraisers and to the over 1200 people who have made donations.
The event should be lots of fun, I’ve been hard at work organising some fun activities and little surprises, including the official announcement of my next fundraising challenge! (It’s a biggie)
Thanks for reading as always even as this one has felt more like a newsletter than a blog (weirdly listening to editors today…)
Sam x
861 comments
HIRING GENUINE HACKERS TO CONSULT RECOVERY SPECIALISTS
I want to sincerely thank Safeguard Recovery Expert for their extraordinary skill; they are real heroes, and I wish I had met them sooner rather than reaching out to other hackers for help. If you read this comment, you might be able to get your hacked or blocked bitcoin investment back. I’m posting it for anybody who have been affected by cryptocurrency investment, mining, and trading frauds.
Email:
safeguardbitcoin@consultant.com
safeguardbitcoin.wixsite.com/safeguard-bitcoin—1
WhatsApp: +44 7426 168300
JOIN THE ILLUMINATI666 BROTHERHOOD?!!!
contact us on +2349017887682 or illumnatib53@gmail.com
Are you a business man, or woman,are you a pastor
or an artist,, do you want to be famous or you want
to be rich or powerful, it is better you become a
member of Illuminati and make your dream come
true . this is the chance for you now to become a
member of the temple KINGDOM and get what you
seek from us.if you are ready to become a member
of Illuminati and realize your dream then-: whatsapp
us or email
illumnatib53@gmail.com
fill in the following as well-:
NAME………………..
NEXT OF KIN……………….
ADDRESS……………..
MARITAL STATUS………….
COUNTRY………
STATE………………
OCCUPATION…………….
MOBILE LINE…………
A NEW MEMBER WILL GIVEN THE SUM OF
120MILLION DOLLARS, A CAR AND A HOUSE IN ANY
PART OF THE WORLD. NOTE: WE ARE NOT FORCING
ANYBODY FOR THIS. IF YOU ARE NOT INTERESTED
PLEASE DON’T APPLY
Consider losing your wallet containing all of your cash or losing access to your bank account. That is essentially how it feels to lose bitcoin. Because Bitcoin recovery gives you back control over your digital assets, it is essential. Recovering lost or stolen bitcoin is crucial to safeguarding your financial security, regardless of whether you need to access the money for personal or business-related purposes. Experience counts in the recovery of bitcoin. With years of experience, the staff at Smith white hackservice is skilled at recovering bitcoin that has been misplaced or stolen. They differ from other recovery services due to their proficiency with blockchain technology, digital signatures, and digital investigations. They have a proven track record of accomplishment and the respect of many happy customers. It’s important to pick the correct team to manage your bitcoin recovery. Smith white hackservice is distinguished by its efficiency, professionalism, and dedication to their customers. They put up a great deal of effort to deliver prompt solutions because they recognize the anxiety and urgency that accompany losing bitcoin. They provide your peace of mind at every stage of the rehabilitation process by using a straightforward and individualized approach. An initial evaluation and consultation with the professionals at Smith white hackservice constitute the first step in the bitcoin recovery procedure. They’ll assess the circumstances, compile pertinent data, and offer advice on the best course of action. Understanding the particular difficulties in your case and creating a recovery plan that works for you both depend on this consultation. Ensure to contact Smith white hackservice customer service through:Smithwhitehackservice@gmail.com
WHATSAPP +1 559 – 508 – 2403
SMITH WHITE HACK SERVICE RECOVERY EXPERTS
I was scammed over ( $645,000 ) by someone I met online on a fake investment project. I started searching for help legally to recover my money and I came across a lot of Testimonies about SMITH WHITE HACK SERVICE Recovery Expects. I contacted them providing the necessary information’s and it took the experts about 27hours to locate and help recover my stolen funds. I am so relieved and the best part was, the scammer was located and arrested by local authorities in his region. I hope this help as many out there who are victims and have lost to these fake online investment scammers. I strongly recommend their professional services for assistance with swift and efficient recovery. They can reached through the link below.
Gmail Address SMITHWHITEHACKSERVICE@GMAIL COM WHATSAPP +1 559 508 2403
شركة سكاي لخدمات نقل العفش والاثاث بالمنطقة العربية السعودية نحن نوفر خدمات نقل اثاث بالرياض ونقل عفش بالمدينة المنورة ونقل عفش بمكة ونقل عفش بالطائف نحن نقدم افضل نقل اثاث بخميس مشيط ونقل عفش بجدة
https://treeads.net/ شركة سكاي نقل العفش
https://treeads.net/blog.html مدونة لنقل العفش
https://treeads.net/movers-mecca.html شركة نقل عفش بمكة
https://treeads.net/movers-riyadh-company.html شركة نقل عفش بالرياض
https://treeads.net/all-movers-madina.html شركة نقل عفش بالمدينة المنورة
https://treeads.net/movers-jeddah-company.html شركة نقل عفش بجدة
https://treeads.net/movers-taif.html شركة نقل عفش بالطائف
https://treeads.net/movers-dammam-company.html شركة نقل عفش بالدمام
https://treeads.net/movers-qatif.html شركة نقل عفش بالقطيف
https://treeads.net/movers-jubail.html شركة نقل عفش بالجبيل
https://treeads.net/movers-khobar.html شركة نقل عفش بالخبر
https://treeads.net/movers-ahsa.html شركة نقل عفش بالاحساء
https://treeads.net/movers-kharj.html شركة نقل عفش بالخرج
https://treeads.net/movers-khamis-mushait.html شركة نقل عفش بخميس مشيط
https://treeads.net/movers-abha.html شركة نقل عفش بابها
https://treeads.net/movers-qassim.html شركة نقل عفش بالقصيم
https://treeads.net/movers-yanbu.html شركة نقل عفش بينبع
https://treeads.net/movers-najran.html شركة نقل عفش بنجران
https://treeads.net/movers-hail.html شركة نقل عفش بحائل
https://treeads.net/movers-buraydah.html شركة نقل عفش ببريدة
https://treeads.net/movers-tabuk.html شركة نقل عفش بتبوك
https://treeads.net/movers-dhahran.html شركة نقل عفش بالظهران
https://treeads.net/movers-rabigh.html شركة نقل عفش برابغ
https://treeads.net/movers-baaha.html شركة نقل عفش بالباحه
https://treeads.net/movers-asseer.html شركة نقل عفش بعسير
https://treeads.net/movers-mgmaa.html شركة نقل عفش بالمجمعة
https://treeads.net/movers-sharora.html شركة نقل عفش بشرورة
https://treeads.net/how-movers-furniture-yanbu.html كيفية نقل العفش بينبع
https://treeads.net/price-movers-furniture-yanbu.html اسعار نقل عفش بينبع
https://treeads.net/find-company-transfer-furniture-yanbu.html البحث عن شركات نقل العفش بينبع
https://treeads.net/transfer-furniture-khamis-mushit.html شركات نقل العفش بخميس مشيط
https://treeads.net/how-transfer-furniture-khamis-mushit.html كيفية نقل العفش بخميس مشيط
https://treeads.net/price-transfer-furniture-khamis-mushit.html اسعار نقل عفش بخميس مشيط
https://treeads.net/%D8%B4%D8%B1%D9%83%D8%A9-%D8%AC%D9%84%D9%8A-%D8%A8%D9%84%D8%A7%D8%B7-%D8%A8%D8%AC%D8%AF%D8%A9.html شركة جلي بلاط بجدة
https://treeads.net/%D8%B4%D8%B1%D9%83%D8%A9-%D8%AA%D9%86%D8%B8%D9%8A%D9%81-%D9%81%D9%84%D9%84-%D8%A8%D8%AC%D8%AF%D8%A9.html تنظيف فلل بجدة
https://treeads.net/company-transfer-furniture-jazan.html شركة نقل عفش بجازان
https://treeads.net/best-company-cleaning-jeddah-2020.html افضل شركة تنظيف بجدة