It’s been a little while since my last blog, I would love to write more but there have been so many things going on that it has been difficult to find the time. Which is a wonderful problem to have for someone in my position, and something that I am grateful for. It’s very important to me to stay in touch with you all and so I have found a few hours to put together an update.
So what have I been working on I hear you ask… The first thing to tell you about is probably the most serious. I’ve been in discussions with my various medical teams about whether or not I should have a tracheostomy. For those of you who don’t know what that is, it’s a procedure which places a ventilation tube directly into my trachea (windpipe), bypassing my mouth and nasal passages.
Why now? Well, my mouth and nasal passages don’t really do anything of use anymore. I can’t eat, drink, speak or express anything. In fact they pose more of a risk than anything. Since I can’t control the production of my saliva anymore or manage it in my mouth: there is a real risk that I could aspirate saliva and develop a life threatening chest infection as a result. So bypassing that area definitely seems to have some benefits.
However, actually undergoing a tracheostomy procedure comes with its own risks, particularly recovery. It’s also necessary to think about the reality of life with a trachy, which is not simple for me or my care team. We ultimately came to the decision that a trachy is not for me. We are going to be more proactive in the management of my saliva and stay on my non-invasive ventilation set up.
This has all been quite difficult for me mentally. When I began my MND journey I was very honest with myself, I accepted the decline I was going to experience and researched the interventions which would be available to me. Did I want to live with:
- A Ventilator - Yes
- A Wheelchair - Yes
- Hoists - Yes
- Having others drive my chair - Yes
- Only being able to communicate with my eyes - Yes
- Being able to eat through a tube - Yes
- Requiring 24 hour care - Yes
- A Tracheostomy - Yes
So I had always envisaged that at some point I would require and have a tracheostomy. For me it was always a life extending intervention. Going through this process with my team and finding out that it was not going to be appropriate for me has been difficult to accept. But I’m pleased to say that I now fully agree with the decision and am feeling positive about the future again.
There is something else that strikes me about the list above though. The Tracheostomy question is the last one. I have made and implemented all my options. That’s a scary thought. I was however very encouraged by my respiratory consultant who told me that he “knew of patients who had survived for many years in my situation, and there was really no way of knowing how long I might continue.”
My response? “I’ll show you then,” and that I will.
In other news! I’m going on a little holiday to London in a couple of weeks. I am very excited to be going to the Just Giving Awards at the Roundhouse on the 18th of September. I have been shortlisted for the Outstanding Commitment award from a pool of 18,000+ nominees. Thanks to everyone who cast a vote for me, I'm trying not to get too excited and for once I am glad that I can’t really express with my face: my loser's face would be Horrendous!
In other unpublicised news I am delighted to let you know that I have been regionally shortlisted for the top fundraiser award at this year’s Pride of Britain Awards! Keep your eyes on ITV Central news on the week commencing 16 September to see my nomination film and find out if I can win!
I have also been organising the celebration event for our amazing Fifty50 fundraisers. We launched the Campaign in October 2023 with the goal of raising £25,000. I am ecstatic to report that with over a month of the Campaign still to run our total raised (including Gift Aid) stands at over £36,000!! Thanks so much to all the fundraisers and to the over 1200 people who have made donations.
The event should be lots of fun, I’ve been hard at work organising some fun activities and little surprises, including the official announcement of my next fundraising challenge! (It’s a biggie)
Thanks for reading as always even as this one has felt more like a newsletter than a blog (weirdly listening to editors today…)
Sam x
808 comments
I’d like to recommend the Morphohack Cyber Security team if you ever intend to recover your Bitcoin, USDT, or other crypto assets.
I happen to be one of many people who lost their crypto assets after a distasteful experience with a fake crypto investment scam. They kept requesting more deposits in order to “grant” me access to my wallet. If not for the intervention of the Morphohack Cyber Security team, I would have lost everything completely.
Morphohack intervened on my behalf and began what seemed to be a full recovery process and a cyber attack on these con men.
I’m putting this out here to share my plight and encourage others to act quickly and contact Morphohack if you happen to be in a similar situation. Do not believe that by paying more, you’ll be granted access to your wallet by these investment scammers. Instead, contact the Morphohack Cyber team to help you recover your crypto assets immediately.
Their contact email is as follows: MORPHOHACK@CYBERSERVICES . COM
Warm regards,
Ross Colby
Kent, Connecticut
Return Stubborn Ex Spell | Powerful Return Ex Spell | Love Spell | Return To Me Spell | Binding Love Spell |White Magic BLACK MAGIC DEMONIC LOVE SPELL CASTER SAME HOUR – Will We Get Back Together, Ex Lover Reading, Will He Come Back? Call ☎ +27765274256 in Oregon EUROPE – Call ☎ +27765274256 – Bring Back My Stubborn Ex Lover, Super Strong Love Spell To Bring Your Man Back, EX Come Back To Me, Attract Love Back Powerful Love Binding & Bring Back My Ex | Contact Me Spell for Stubborn Targets, How is Your Ex Doing? Ex Lover Psychic Reading Call ☎ +27765274256 U.S.A, Florida, Miami Powerful Come Back To Me Spell – Reconnect, Restore Love & Bring Them Back – Same-Day Casting , Video Proof Call ☎ +27765274256 Contact Me NOW Spell (Extra Strength), Bring Ex Back, Think Of Me, Miss Me, Contact Me, Come Back, Reconciliation, Return Lover Call ☎ +27765274256 SCANDINAVIA, QUEBEC, DANUBE, OCEANIA
Love Only Me Reading | How To Make Him Love You | Card Reading | Your Personal Love Strategy To Get The Love You Deserve Call ☎ +27765274256 in Spells Remove Psycho Ex Spell – Break Up Spell – Separation Spell – Custom New Relationship Happy Spell – Fast Casting From Famous Genie Call ☎ Call +27765274256 Same Hour Ex-Lover Tarot Reading – Is My Ex Coming Back? Psychic Reading – Tarot Cards Reading – In-Depth Love Reading Call ☎ +27765274256 CANADA – Love Me And Only Me Spell, Extreme Powerful Love Spell Casting, Obsession And Love same day casting, Make Them Adore You Call ☎ +27765274256 Love Spell – Attract Your Crush, Strongest Spells, Love Spell Binding Ritual To Bring Ex Partner, Binding Ex Partner Voodoo Spells Call ☎ +27765274256 REPAIR RELATIONSHIP – Repair Spell, Communication Spell, Strengthen Your Bond With Your Partner Love Spell Call ☎ +27765274256 in Baltimore, Denver CANADA – Get My Ex Back | Love Ritual | Return Lost Lover Spell | Powerful Love Spell / Return Ex / Obession Spell / Call ☎ +27765274256 Ultimate RETURN TO ME Love Spell, Extreme Powerful, Bring Back My Stubborn Ex Lover, Love Obsession, Love Binding, 3 Days Casting Call ☎ +27765274256 AUSTRALIA – Come Back To Me Spell: Draw Them Back | Return To Me Spell Ex Love Spell, Black Magic Same Day Casting Fast Results Call ☎ +27765274256
Return Stubborn Ex Spell | Powerful Return Ex Spell | Love Spell | Return To Me Spell | Binding Love Spell |White Magic BLACK MAGIC DEMONIC LOVE SPELL CASTER SAME HOUR – Will We Get Back Together, Ex Lover Reading, Will He Come Back? Call ☎ +27765274256 in Oregon EUROPE – Call ☎ +27765274256 – Bring Back My Stubborn Ex Lover, Super Strong Love Spell To Bring Your Man Back, EX Come Back To Me, Attract Love Back Powerful Love Binding & Bring Back My Ex | Contact Me Spell for Stubborn Targets, How is Your Ex Doing? Ex Lover Psychic Reading Call ☎ +27765274256 U.S.A, Florida, Miami Powerful Come Back To Me Spell – Reconnect, Restore Love & Bring Them Back – Same-Day Casting , Video Proof Call ☎ +27765274256 Contact Me NOW Spell (Extra Strength), Bring Ex Back, Think Of Me, Miss Me, Contact Me, Come Back, Reconciliation, Return Lover Call ☎ +27765274256 SCANDINAVIA, QUEBEC, DANUBE, OCEANIA Powerful Return To Me Spell, Come Back To Me Spell, Powerful Ex Love Spell, Get Back Ex Spell Call ☎ +27765274256 Europe Call ☎ +27765274256 – Powerful Commitment & Obsession Love Spell Refund If No Result!! Return To Me Love Spell, Come Back Binding Love Spell Return To Me Love Spell | Bring Ex Back , Fix Relationship , Heal Relationship Spell | Commitment Spell | Remove Third Party Spell Call ☎ +27765274256 Enchant Shield Family Protection Spell, Safe Family Spell Casting, Empowerment Charm Call ☎ +27765274256 Powerful Ex Back Love Spell – Bring Back Ex How to Win Back Your Ex: For Heartbroken Women | Get Your Ex Back | Rekindle Romance Call ☎ +27765274256 in Miami, Detroit, Charlotte, Raleigh, Dallas Call ☎ +27765274256 RE-ATTRACT RETURN Ex Love Spell/Same Day Obsession Spell/Contact Me/Strongest Love Spell/Come Back To Me/Fast Spell Casting Call ☎ +27765274256 Bring Ex Back Spell – Return Ex Spell – Black Magic – Love Binding Spell – Return To Me Spell – Contact Me Spell Love Spell Caster in United States of America – Rekindle Love with Partner Magic, Same Day Casting Call ☎ +27765274256 Bring Ex Back Spell – Return Ex Ex Lover Reading/ Within 24 Hours/ Psychic Tarot Reading/ Will My Ex Come Back/ Psychic Love Reading/ Ex Partner/ Ex Boyfriend/ Call ☎ +27765274256 Call ☎ +27765274256 Come Back To Me Spell, Bring Back My Stubborn Ex Lover, Dark Magic, Return Ex Love Spell, Attract Love Back, Binding Love Spell Witchcraft Voodoo Love Call ☎ +27765274256 Come Back To Me Love Spell | Powerful Spell to Bring Your Ex Back | Reconciliation Spell With Fast Results Call ☎ +27765274256 Powerful Bring Back My Stubborn Ex Spell, Love Spell To Return Ex, Come Back to Me Obsession Spell in Beverly Hills, California REVENGE SPELLS Call ☎ +27765274256 Miserable Without Me Spell, 100x Powerful Regret Magic, Return to Me Spell, Ex Lover Come Back To Me, Black Magic
Call Sheikh Hussein
Contact Me on Telegram/Botim/Signal/WhatsApp ☎ +27765274256
Add Me on SIGNAL “@sheikhhussein.20”
Add Me on TELEGRAM “@sheikhspells”
E-Mail: sheikhhussein@protonmail.com
Visit: https://youtu.be/k8V9KJ73efY
Return Stubborn Ex Spell | Powerful Return Ex Spell | Love Spell | Return To Me Spell | Binding Love Spell |White Magic BLACK MAGIC DEMONIC LOVE SPELL CASTER SAME HOUR – Will We Get Back Together, Ex Lover Reading, Will He Come Back? Call ☎ +27765274256 in Oregon EUROPE – Call ☎ +27765274256 – Bring Back My Stubborn Ex Lover, Super Strong Love Spell To Bring Your Man Back, EX Come Back To Me, Attract Love Back Powerful Love Binding & Bring Back My Ex | Contact Me Spell for Stubborn Targets, How is Your Ex Doing? Ex Lover Psychic Reading Call ☎ +27765274256 U.S.A, Florida, Miami Powerful Come Back To Me Spell – Reconnect, Restore Love & Bring Them Back – Same-Day Casting , Video Proof Call ☎ +27765274256 Contact Me NOW Spell (Extra Strength), Bring Ex Back, Think Of Me, Miss Me, Contact Me, Come Back, Reconciliation, Return Lover Call ☎ +27765274256 SCANDINAVIA, QUEBEC, DANUBE, OCEANIA
Love Only Me Reading | How To Make Him Love You | Card Reading | Your Personal Love Strategy To Get The Love You Deserve Call ☎ +27765274256 in Spells Remove Psycho Ex Spell – Break Up Spell – Separation Spell – Custom New Relationship Happy Spell – Fast Casting From Famous Genie Call ☎ Call +27765274256 Same Hour Ex-Lover Tarot Reading – Is My Ex Coming Back? Psychic Reading – Tarot Cards Reading – In-Depth Love Reading Call ☎ +27765274256 CANADA – Love Me And Only Me Spell, Extreme Powerful Love Spell Casting, Obsession And Love same day casting, Make Them Adore You Call ☎ +27765274256 Love Spell – Attract Your Crush, Strongest Spells, Love Spell Binding Ritual To Bring Ex Partner, Binding Ex Partner Voodoo Spells Call ☎ +27765274256 REPAIR RELATIONSHIP – Repair Spell, Communication Spell, Strengthen Your Bond With Your Partner Love Spell Call ☎ +27765274256 in Baltimore, Denver CANADA – Get My Ex Back | Love Ritual | Return Lost Lover Spell | Powerful Love Spell / Return Ex / Obession Spell / Call ☎ +27765274256 Ultimate RETURN TO ME Love Spell, Extreme Powerful, Bring Back My Stubborn Ex Lover, Love Obsession, Love Binding, 3 Days Casting Call ☎ +27765274256 AUSTRALIA – Come Back To Me Spell: Draw Them Back | Return To Me Spell Ex Love Spell, Black Magic Same Day Casting Fast Results Call ☎ +27765274256
Return Stubborn Ex Spell | Powerful Return Ex Spell | Love Spell | Return To Me Spell | Binding Love Spell |White Magic BLACK MAGIC DEMONIC LOVE SPELL CASTER SAME HOUR – Will We Get Back Together, Ex Lover Reading, Will He Come Back? Call ☎ +27765274256 in Oregon EUROPE – Call ☎ +27765274256 – Bring Back My Stubborn Ex Lover, Super Strong Love Spell To Bring Your Man Back, EX Come Back To Me, Attract Love Back Powerful Love Binding & Bring Back My Ex | Contact Me Spell for Stubborn Targets, How is Your Ex Doing? Ex Lover Psychic Reading Call ☎ +27765274256 U.S.A, Florida, Miami Powerful Come Back To Me Spell – Reconnect, Restore Love & Bring Them Back – Same-Day Casting , Video Proof Call ☎ +27765274256 Contact Me NOW Spell (Extra Strength), Bring Ex Back, Think Of Me, Miss Me, Contact Me, Come Back, Reconciliation, Return Lover Call ☎ +27765274256 SCANDINAVIA, QUEBEC, DANUBE, OCEANIA Powerful Return To Me Spell, Come Back To Me Spell, Powerful Ex Love Spell, Get Back Ex Spell Call ☎ +27765274256 Europe Call ☎ +27765274256 – Powerful Commitment & Obsession Love Spell Refund If No Result!! Return To Me Love Spell, Come Back Binding Love Spell Return To Me Love Spell | Bring Ex Back , Fix Relationship , Heal Relationship Spell | Commitment Spell | Remove Third Party Spell Call ☎ +27765274256 Enchant Shield Family Protection Spell, Safe Family Spell Casting, Empowerment Charm Call ☎ +27765274256 Powerful Ex Back Love Spell – Bring Back Ex How to Win Back Your Ex: For Heartbroken Women | Get Your Ex Back | Rekindle Romance Call ☎ +27765274256 in Miami, Detroit, Charlotte, Raleigh, Dallas Call ☎ +27765274256 RE-ATTRACT RETURN Ex Love Spell/Same Day Obsession Spell/Contact Me/Strongest Love Spell/Come Back To Me/Fast Spell Casting Call ☎ +27765274256 Bring Ex Back Spell – Return Ex Spell – Black Magic – Love Binding Spell – Return To Me Spell – Contact Me Spell Love Spell Caster in United States of America – Rekindle Love with Partner Magic, Same Day Casting Call ☎ +27765274256 Bring Ex Back Spell – Return Ex Ex Lover Reading/ Within 24 Hours/ Psychic Tarot Reading/ Will My Ex Come Back/ Psychic Love Reading/ Ex Partner/ Ex Boyfriend/ Call ☎ +27765274256 Call ☎ +27765274256 Come Back To Me Spell, Bring Back My Stubborn Ex Lover, Dark Magic, Return Ex Love Spell, Attract Love Back, Binding Love Spell Witchcraft Voodoo Love Call ☎ +27765274256 Come Back To Me Love Spell | Powerful Spell to Bring Your Ex Back | Reconciliation Spell With Fast Results Call ☎ +27765274256 Powerful Bring Back My Stubborn Ex Spell, Love Spell To Return Ex, Come Back to Me Obsession Spell in Beverly Hills, California REVENGE SPELLS Call ☎ +27765274256 Miserable Without Me Spell, 100x Powerful Regret Magic, Return to Me Spell, Ex Lover Come Back To Me, Black Magic
Call Sheikh Hussein
Contact Me on Telegram/Botim/Signal/WhatsApp ☎ +27765274256
Add Me on SIGNAL “@sheikhhussein.20”
Add Me on TELEGRAM “@sheikhspells”
E-Mail: sheikhhussein@protonmail.com
Visit: https://youtu.be/k8V9KJ73efY
Return Stubborn Ex Spell | Powerful Return Ex Spell | Love Spell | Return To Me Spell | Binding Love Spell |White Magic BLACK MAGIC DEMONIC LOVE SPELL CASTER SAME HOUR – Will We Get Back Together, Ex Lover Reading, Will He Come Back? Call ☎ +27765274256 in Oregon EUROPE – Call ☎ +27765274256 – Bring Back My Stubborn Ex Lover, Super Strong Love Spell To Bring Your Man Back, EX Come Back To Me, Attract Love Back Powerful Love Binding & Bring Back My Ex | Contact Me Spell for Stubborn Targets, How is Your Ex Doing? Ex Lover Psychic Reading Call ☎ +27765274256 U.S.A, Florida, Miami Powerful Come Back To Me Spell – Reconnect, Restore Love & Bring Them Back – Same-Day Casting , Video Proof Call ☎ +27765274256 Contact Me NOW Spell (Extra Strength), Bring Ex Back, Think Of Me, Miss Me, Contact Me, Come Back, Reconciliation, Return Lover Call ☎ +27765274256 SCANDINAVIA, QUEBEC, DANUBE, OCEANIA
Love Only Me Reading | How To Make Him Love You | Card Reading | Your Personal Love Strategy To Get The Love You Deserve Call ☎ +27765274256 in Spells Remove Psycho Ex Spell – Break Up Spell – Separation Spell – Custom New Relationship Happy Spell – Fast Casting From Famous Genie Call ☎ Call +27765274256 Same Hour Ex-Lover Tarot Reading – Is My Ex Coming Back? Psychic Reading – Tarot Cards Reading – In-Depth Love Reading Call ☎ +27765274256 CANADA – Love Me And Only Me Spell, Extreme Powerful Love Spell Casting, Obsession And Love same day casting, Make Them Adore You Call ☎ +27765274256 Love Spell – Attract Your Crush, Strongest Spells, Love Spell Binding Ritual To Bring Ex Partner, Binding Ex Partner Voodoo Spells Call ☎ +27765274256 REPAIR RELATIONSHIP – Repair Spell, Communication Spell, Strengthen Your Bond With Your Partner Love Spell Call ☎ +27765274256 in Baltimore, Denver CANADA – Get My Ex Back | Love Ritual | Return Lost Lover Spell | Powerful Love Spell / Return Ex / Obession Spell / Call ☎ +27765274256 Ultimate RETURN TO ME Love Spell, Extreme Powerful, Bring Back My Stubborn Ex Lover, Love Obsession, Love Binding, 3 Days Casting Call ☎ +27765274256 AUSTRALIA – Come Back To Me Spell: Draw Them Back | Return To Me Spell Ex Love Spell, Black Magic Same Day Casting Fast Results Call ☎ +27765274256
Return Stubborn Ex Spell | Powerful Return Ex Spell | Love Spell | Return To Me Spell | Binding Love Spell |White Magic BLACK MAGIC DEMONIC LOVE SPELL CASTER SAME HOUR – Will We Get Back Together, Ex Lover Reading, Will He Come Back? Call ☎ +27765274256 in Oregon EUROPE – Call ☎ +27765274256 – Bring Back My Stubborn Ex Lover, Super Strong Love Spell To Bring Your Man Back, EX Come Back To Me, Attract Love Back Powerful Love Binding & Bring Back My Ex | Contact Me Spell for Stubborn Targets, How is Your Ex Doing? Ex Lover Psychic Reading Call ☎ +27765274256 U.S.A, Florida, Miami Powerful Come Back To Me Spell – Reconnect, Restore Love & Bring Them Back – Same-Day Casting , Video Proof Call ☎ +27765274256 Contact Me NOW Spell (Extra Strength), Bring Ex Back, Think Of Me, Miss Me, Contact Me, Come Back, Reconciliation, Return Lover Call ☎ +27765274256 SCANDINAVIA, QUEBEC, DANUBE, OCEANIA Powerful Return To Me Spell, Come Back To Me Spell, Powerful Ex Love Spell, Get Back Ex Spell Call ☎ +27765274256 Europe Call ☎ +27765274256 – Powerful Commitment & Obsession Love Spell Refund If No Result!! Return To Me Love Spell, Come Back Binding Love Spell Return To Me Love Spell | Bring Ex Back , Fix Relationship , Heal Relationship Spell | Commitment Spell | Remove Third Party Spell Call ☎ +27765274256 Enchant Shield Family Protection Spell, Safe Family Spell Casting, Empowerment Charm Call ☎ +27765274256 Powerful Ex Back Love Spell – Bring Back Ex How to Win Back Your Ex: For Heartbroken Women | Get Your Ex Back | Rekindle Romance Call ☎ +27765274256 in Miami, Detroit, Charlotte, Raleigh, Dallas Call ☎ +27765274256 RE-ATTRACT RETURN Ex Love Spell/Same Day Obsession Spell/Contact Me/Strongest Love Spell/Come Back To Me/Fast Spell Casting Call ☎ +27765274256 Bring Ex Back Spell – Return Ex Spell – Black Magic – Love Binding Spell – Return To Me Spell – Contact Me Spell Love Spell Caster in United States of America – Rekindle Love with Partner Magic, Same Day Casting Call ☎ +27765274256 Bring Ex Back Spell – Return Ex Ex Lover Reading/ Within 24 Hours/ Psychic Tarot Reading/ Will My Ex Come Back/ Psychic Love Reading/ Ex Partner/ Ex Boyfriend/ Call ☎ +27765274256 Call ☎ +27765274256 Come Back To Me Spell, Bring Back My Stubborn Ex Lover, Dark Magic, Return Ex Love Spell, Attract Love Back, Binding Love Spell Witchcraft Voodoo Love Call ☎ +27765274256 Come Back To Me Love Spell | Powerful Spell to Bring Your Ex Back | Reconciliation Spell With Fast Results Call ☎ +27765274256 Powerful Bring Back My Stubborn Ex Spell, Love Spell To Return Ex, Come Back to Me Obsession Spell in Beverly Hills, California REVENGE SPELLS Call ☎ +27765274256 Miserable Without Me Spell, 100x Powerful Regret Magic, Return to Me Spell, Ex Lover Come Back To Me, Black Magic
Call Sheikh Hussein
Contact Me on Telegram/Botim/Signal/WhatsApp ☎ +27765274256
Add Me on SIGNAL “@sheikhhussein.20”
Add Me on TELEGRAM “@sheikhspells”
E-Mail: sheikhhussein@protonmail.com
Visit: https://youtu.be/k8V9KJ73efY
RECLAIM LOST BITCOIN, USDC, USDT, ETH. CONTACT REAL CAPTAIN JACK
Real Captain Jack crypto is a trusted and reliable company that specializes in recovering lost or stolen Bitcoin. With their experienced team of professionals and advanced technology, they can help you recover your lost funds quickly and efficiently. Whether your Bitcoin was lost due to a hack, scam, or other unfortunate incident, Real Captain Jack can help you get your assets back. Contact them today for a free consultation to start your Bitcoin recovery journey. Please use the following information.
E-Mailbox; realcaptainjack@proton.me
Whsp: +49.1.5.7.8.2.3.1.7.1.1.2