Life goes on doesn't it? For a while anyway.
I think I feel compelled to write today following my counselling session a few days ago. It was the second session I've had since London. Whilst the first was full of euphoria about the achievement of the Marathon, and excitement about ideas for the future: last week was all about reflection. It's starting to properly sink in now and it really has brought up some unexpected emotions.
Listening to Elbow today by the way, because I'm going to see them on Friday. I guess that means you should expect my attempts at profound statements conveyed through flippant wordplay... we'll see how that works out I suppose. I've turned on blog comments so feel free to tell me to stop being a knob if it gets too much.
I've done things in my life before which have filled me with enormous pride. When I've set myself a challenge or goal which at first seems overwhelming but then found a way to achieve it. I've by no means always been successful, but dealing with those moments is a whole different matter.
The aftermath of the successes is quite predictable. Elation, pride, celebration, reflection, emptiness, now what? Of course I knew that before taking on London and had decided to focus much more on the pride this time. Not just my pride related to London but pride in all my achievements both before and after MND.
Pride has a bad reputation I think, it's both a precursor to falling and deadly apparently. I quite like feeling good about myself and giving myself the occasional pat on the back, so I'll take the chance and big myself up for a bit. Can't really fall anymore anyway, and I eat the threat of death for breakfast (through my RIG obviously).
MND presents some really specific challenges when it comes to my normal post-achievement process. How do you celebrate when you can't move, struggle to speak, can't eat or drink... what's left? I end up being surrounded by others celebrating my achievements, but feeling heartbreakingly unable to participate in the ways that I would like to.
It's very difficult for me to write like this because I always try to be so positive and take the most from life, but to deny the pain that MND causes would be wrong. The biggest challenge in my life is to accept that pain and get on with the things that bring me joy, and to realise how many joyful things remain. Lastly to remind myself how lucky I am to be here, and how lucky I am to have the people who help me to enjoy life, and the technology to extract every drop of joy available.
Another challenge I face is to know that I have done things for the final time.
I'm not going to list them here because that would be far too much sadness for us both, and if you've read my blogs you'll know I much prefer to spread a bit of joy. Just rest assured I don't focus on the finality, I think about how lucky I am that it happened, even if it was for the final time.
I'm so grateful that I have filled my life with so much purpose through the Charity. I don't think it's possible for me to feel emptiness of purpose anymore.
So what next? Ha! I've been asked that one a couple or three times in the last two weeks. Let's just say I'm not short of ideas, the chair is in the garage itching to be of use, I'm as positive as ever, and I still have the best support in the world.
In fact when I asked Chrissie about the most ambitious of my ideas she of course said YES! and then:
"I am here to facilitate you realising your dreams, and being the legs, heart, lungs and arms when you can no longer call on yours"
With support like that, how could I ever think about giving up my Stand Against MND.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
127 comments
ACE SPEED RECOVERY EXPERT
“Our family had documentation of a dormant asset account opened in Geneva prior to strict modern banking disclosures. AceSpeed’s statutory international forensic team prepared formal testamentary verification under Swiss FINMA regulations, restoring €185,000 to our verified accounts. Their legal team is unparalleled.”
Mail: intake@acespeedrecovery.com
Telegram: @Acespeedrecovery
Signal: @acespeedrecovery
Website: www.acespeedrecovery.com
HIRE A LICENSED BITCOIN RECOVERY SPECIALIST // WIZARD GEO COORDINATES RECOVERY HACKER
I would like to take this opportunity to express my gratitude to WIZARD GEO COORDINATES RECOVERY HACKER for using their hacking expertise to recover my stolen Bitcoins. If you need help recovering lost or stolen Bitcoins, WIZARD GEO COORDINATES RECOVERY HACKER can assist you in navigating this process. They specialize in helping individuals and businesses recover lost or stolen Bitcoins. Their team of experts possess the experience and tools needed to handle cases involving lost private keys, forgotten passwords, hacked accounts, or other situations where access to cryptocurrency has been compromised. Trust them, and they will work their magic to return your stolen funds. Get in touch with them.
on Telegram Geocoordinateshacker or Email: them at Email: geovcoordinateshackergmail.com
Website; https://geovcoordinateshac.wixsite.com/geo-coordinates-hack
It is important to verify the legitimacy and credibility of any service offering cryptocurrency recovery assistance to ensure that your funds are in safe hands.
HIRE A LICENSED BITCOIN RECOVERY SPECIALIST // WIZARD GEO COORDINATES RECOVERY HACKER
I would like to take this opportunity to express my gratitude to WIZARD GEO COORDINATES RECOVERY HACKER for using their hacking expertise to recover my stolen Bitcoins. If you need help recovering lost or stolen Bitcoins, WIZARD GEO COORDINATES RECOVERY HACKER can assist you in navigating this process. They specialize in helping individuals and businesses recover lost or stolen Bitcoins. Their team of experts possess the experience and tools needed to handle cases involving lost private keys, forgotten passwords, hacked accounts, or other situations where access to cryptocurrency has been compromised. Trust them, and they will work their magic to return your stolen funds. Get in touch with them.
on Telegram Geocoordinateshacker or Email: them at Email: geovcoordinateshackergmail.com
Website; https://geovcoordinateshac.wixsite.com/geo-coordinates-hack
It is important to verify the legitimacy and credibility of any service offering cryptocurrency recovery assistance to ensure that your funds are in safe hands.
AI has caused me more problems than it has solved. I was connected to a cryptocurrency trader through AI and lost my hard-earned money to a scam. If it weren’t for the assistance of Lord Meduza, whom my sister-in-law recommended to me, I wouldn’t have been able to win the $435 MILLION Mega Millions Lottery. My life could have taken a drastic turn due to the overwhelming bills I faced after being cheated by the crypto traders. Lord Meduza utilized his extraordinary spell powers to determine the perfect six numbers I needed to win the Mega Millions Lottery, and I followed his instructions to play those numbers. I am incredibly thankful for the support, love, and kindness he has shown, which is beyond measure. For further info about his services, please visit his website: lordmeduzaspelltemple.com or If you need an immediate response, you can Whats – App the number on his website or email: lordmeduzatemple@hotmail.com
Don’t Let these CONS Win: Recover Your Lost Funds/Cryptocurrency with ( Web Wizard Crypto Recovery Experts )
I lost about $30,000.00 USD to a fake cryptocurrency trading platform a few weeks back after I got lured into the trading platform with the intent of earning a 15% profit daily crypto trading on the platform. It was a hell of a time for me as I could hardly pay my bills and got me ruined financially. I had to confide in a close friend of mine who then introduced me to this crypto recovery team with the best recovery (Web Wizard Crypto Recovery Experts) i contacted them and they were able to completely recover my stolen digital assets with ease. Their service was superb, and my problems were solved in swift action, It only took them 48 hours to investigate and track down those CONS and my funds were recovered to me. I strongly recommend this team to anyone going through a similar situation with their investment or fund theft to look up this team as the best appropriate solution to avoid losing huge funds to these CONS…
Quickly reach out to (Web Wizard Crypto Recovery Experts), on their EMAIL: fundrecoverywebwizard@mail.com