Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1713 comments
This is real, take it seriously. Who will believe that a herbal medicine can cure herpes virus, i never believe that this will work, i have spend a lot money getting drugs from the hospital to keep me healthy, it got to a point that i was waiting for a death to come because i was broke, one day i came across Dr Agbon page. Who is well know for Herpes, HIV, and Cancer cure, i decided to email him i didn’t believe him that much, i just wanted to give him a try, he replied my mail and Needed some Information about me, then i sent them to him, he prepared the herbal meds and he ship the meds as he promised with my details through Courier service. And after receiving it, i took the medicine as prescribed by him after three weeks, he told me to go to the hospital for a check up, and i went, surprisingly after the test the doctor confirm me Herpes simplex virus negative, and i thought it was a joking, i went to other hospital and was also negative, thank you for saving my life, I promise i will always testify of your good works. if you are herpes simplex virus patient, contact him and I am sure you will get cured, contact him now, WhatsApp Number:+2349058797761
Email: dragboherbalhome@gmail.com WebSite: https://dragbonherbalhome.wixsite.com/my-site-3
I have been living with Oral herpes for over 4 years now and it has been a big problem for me. I have been looking for a solution because I can’t leave with it, One day I came across a woman’s testimony on a forum saying she got cured of her Herpes with the help of Dr Akhimien an herbal doctor from Africa with herbal medicine. At first I did not believe because I was not sure herbs can really take this virus away, but I have no choice than to give it a try and contacted him with his emails, I explain my problems,.. then he told me not to worry that he will prepare the a cure with herbal mixture and send it to me, I got the medicine after 4 days delivery and I use as instructed. After 21 days when the herb was almost finished, I went to a medical doctor, I did a test and discovered that the virus was gone, and my test results were HSV 1%2 negative, I was so surprised and happy! Then I wrote to Dr Akhimien and thanked him for getting me cured from herpes. I advise you to contact this great herbal doctor Akhimien as he has cures for different kinds of diseases. I decided to share this testimony to let others who also suffer from herpes know about this and give hope to others, you can reach him via Email drakhiniemodion@gmail.com also his Website https://drakhiniemodion.wixsite.com/drakhimien or WhatsApp number +2349133157031
Hi Friends i am so glad to writing this article today to tell the world how Dr Akhimien cured my HSV VIRUS,i have been detected with HSV-1 AND HSV-2 since five years ago, ever since then my life has been in complete bizarre and agony,i have used so many drugs that was prescribed to me by several doctors,but it didn’t cure my HSV VIRUS neither did it reduce the pain,until a certain i was checking for solution in the internet,then miraculously came across Dr Akhimien the powerful herbalist that cure numerous individuals HSV-1 AND HSV-2 INFECTION,i explained everything to him and prepared a cure that cure my HSV-1 AND HSV-2 disease totally after receiving his herbal medicine, so my friends viewers why wait and be suffer when there is someone like Dr Akhimien that can cure any disease HIV/ CANCER/ HEPATITIS B VIRUS, you can contact him via Email: drakhiniemodion@gmail.com or WHATSAPP +2349133157031 GOD BLESS YOU ALL https://drakhiniemodion.wixsite.com/drakhimien
buy usa passport
buy us passport online
buy us passport cover
us passport
passport usa
passport you can buy
buyusa
us passport documents
us passport card
u.s. passport
us passport
get us passport
passport to buy
u.s. passport card
us passport renewal
new us passport
new passport book
buy passport citizenship
us passport online renewal
how to get us passport fast
2nd passport
us second passport
passport 3
cheapest passport to buy
how to get us passport 2023
passport 9
!!!!!!!!!! Basic Contact Information Bellow !!!!!!!!!!
Phone Number Call/Text:……….(+16614123859)
Whats-App Number:…………(+16614123859)
Email.specialdocuments350@gmail.com
Wechat ID….luna20207080
Snapchat….deepweb90
https://www.prodocsandbills.com/product-category/buy-real-passport-online/
https://procurrencyland.com/product/buy-a-real-passport-online/
Buy high quality undetectable grade AA+ counterfeit banknotes,
we have available USD, CAD, GBP, EU AUD just to name a few,
We also deal and specialize in helping you to get high quality Biometric documents,
registered PASSPORT, DRIVING LICENSE, ID CARD, VISA, SSN TOEFL, IELTS, IDP, ESOL,
GMAT CELTA/DELTA, DEGREE,DIPLOMAS & other English Language Certificates[ Whats App:+16614123859]
Buy fake usd/aud/cad/CNY/euros/RMB (WHATSAPP: +16614123859)
Buy fake USD $,https://procurrencyland.com/buy-fake-us-dollars-usd-online/
Buy Fake Canadian Dollars ( CAD ),https://procurrencyland.com/buy-fake-canadian-dollars-cad-online/
Buy counterfeit USD ,https://procurrencyland.com/buy-fake-us-dollars-usd-online/
Order fake USD , https://procurrencyland.com/buy-fake-us-dollars-usd-online/
Buy US Dollar Bills https://procurrencyland.com/buy-fake-us-dollars-usd-online/,
Buy Prop Money , https://procurrencyland.com/
Buy Fake Euros , ,https://procurrencyland.com/buy-fake-euros-online/
Buy fake Australian dollars , https://procurrencyland.com/buy-fake-australian-dollars-aud/
Buy Fake Money , https://procurrencyland.com/
Buy Counterfeit Money, https://procurrencyland.com/
Buy fake US dollars https://procurrencyland.com/buy-fake-us-dollars-usd-online/
Buy fake GBP banknotes https://procurrencyland.com/buy-fake-british-pound-gbp/
Buy fake counterfeit us bills,https://procurrencyland.com/
buy fake Canadian dollars (CAD) https://procurrencyland.com/buy-fake-canadian-dollars-cad-online/
Buy 100% undetected counterfeit money,https://procurrencyland.com/
Buy clone cards, https://procurrencyland.com/?s=cloned+cards
Buy fake Chinese yuan, https://procurrencyland.com/buy-fake-chinese-yuan-cny-renminbi/
Buy fake euros,https://procurrencyland.com/buy-fake-euros-online/
Buy fake canadian dollars in Ontario, https://procurrencyland.com/buy-fake-canadian-dollars-cad-online/
Buy fake canadian dollars in Winnipeg, https://procurrencyland.com/buy-fake-canadian-dollars-cad-online/
Buy fake canadian dollars in Toronto,https://procurrencyland.com/buy-fake-canadian-dollars-cad-online/
Buy 100% Undetectable Counterfeit, https://procurrencyland.com/buy-fake-canadian-dollars-cad-online/
Buy fake counterfeit us bills,https://procurrencyland.com/
Buy fake usd/aud/cad/JPY/CNY/GBP/euros/pounds/dollars, https://procurrencyland.com/
Buy Fake Canadian Dollars. https://procurrencyland.com/buy-fake-canadian-dollars-cad-online/
Why using a special printing technique, several picture elements on the front of the banknote are identifiable by touch.
The guidelines on detecting counterfeit currency give a comparison of genuine and falsified security features.
– Our bills/notes bypass everything, counterfeit pens and machines.
– Can be used in banks but can be used else where same like normal money
– We have the best HOLOGRAMS AND DUPLICATING MACHINES-
– UV: YES
Our bills have the Infrared Detection which makes our bills to bypass the UV machines,
Pen test and even eye detection buy counterfeit experts.
Our notes are AAA+ grade Quality.
We also sell and provide money cleaning services and solutions.
We sell AAA+ SSD Black Money Solution.
-Holograms and Holographic Strips
-Micro-Lettering
-Metallic Ink and Thread
-Watermarks
-IR Detection
-Ultra-violet features
-See through Features
-Different serial numbers
These features make our bills to be 100% undetected,100% safe and secure to use in any of these areas:
BANKS, CASINO, ATM, MONEY CHANGERS, STORES. They are 100% Undetected
!!!!!!!!!! Basic Contact Information Bellow !!!!!!!!!!
Phone Number Call/Text:……….(+16614123859)
Whats-App Number:…………(+16614123859)
Website…https://prodocsandbills.com
Website…https://procurrencyland.com
Email.specialdocuments350@gmail.com
Wechat ID….luna20207080
Telegram:@Authenticpaper
Snapchat….deepweb90
Buy driver’s license( [ Whats App: +16614123859 ]) ID card, passports, Biometric documents online.
BUY real British passports (UK), Americans, Canadianshttps://prodocsandbills.com/product-category/buy-real-passport-online/
False identity CARDS ONLINE IN UNITED STATES, DRIVING LICENSEhttps://prodocsandbills.com/product-category/buy-fake-id-card-online/
Buy IELT/PTE Certificate https://prodocsandbills.com/product-category/buy-ielts-pte/
BUY FAKE DRIVING https://prodocsandbills.com/product-category/buy-drivers-license/
Buy Real USA Green Card and Citizenship.https://prodocsandbills.com/
Buy Visa, passport, id card, birth certificate, Driving License Transcripts
Buy Original FAKE Passports ,Id Card Drivers License https://prodocsandbills.com/
Best Quality Novelty real and Fake IDs and Passports,Marriage certificates and Drivers license etc buy now high quality-
We have the best HOLOGRAMS AND DUPLICATING MACHINES With over 13million of out documents circulating over the world.
Buy High Quality Real Express UK/USA Passport//ID Cards//Counterfeit Banknotes//IELTS//TOEFL [ Whats App: +16614123859 ]
We are looking forward to receiving your inquiries and early receipt of your first orders!!!!!!!!!!!!!!! NO TIME WASTERS !