Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
79 comments
The specific skills and knowledge needed to recover lost Bitcoin are only possessed by a select few seasoned hackers. Even if there are many recovery websites, it is important to be cautious because 99 percent of them are operated by scammers who pose as trustworthy. Instead, seek out a reliable hacker who can help you recover your possessions, like RecoveryHacker101. I lost $126k in bitcoin mining, but they were able to get it back. Email Roberts at recoveryhacker101[at]gmail[dot]com to get in touch.
Brunoe Quick Hack – Your Trusted Bitcoin Recovery Solution
If you’ve lost Bitcoin due to a wrong transaction, hacking, or forgotten private keys, Brunoe Quick Hack is here to help. This advanced tool, developed by blockchain security experts, uses cutting-edge cryptographic techniques and AI-powered analysis to track and recover lost funds.
With a user-friendly interface and rapid processing, anyone can use it to reclaim their Bitcoin. Don’t let lost crypto remain lost—Brunoe Quick Hack is your solution.
📞 WhatsApp: +1 (70) 57-842-635
🌐 Website: brunoequickhack.com
✉️ Email: brunoequickhack@gmail.com
I never thought my grandmother’s book club would save my crypto fortune, but life is full of surprises. In the mayhem of moving into a new apartment, I mislaid my hardware wallet containing $400,000 in Bitcoin. I had packed it securely-at least, that’s what I thought-but after unpacking every single box, it was nowhere to be found. First, I kept my cool. It had to be here somewhere, right? But when hours turned into days, my confidence crumbled. I tore through bags, checked jacket pockets; I even looked in the fridge in sheer desperation. Nothing. Next came panic: Had I thrown it out accidentally? Had the movers taken it? I couldn’t get this vision out of my head that somehow my fortune had poofed into thin air. Frustrated and exhausted, I mentioned my predicament to my grandmother during a phone call. Instead of the usual “You should be more careful” speech, she surprised me. Oh, I’ve heard of a company that helps with that!" she said cheerfully. I almost dropped the phone. My grandma knew about crypto recovery? Turns out, her book club had a guest speaker, a retired cybersecurity expert who raved about Digital resolution services. She even remembered their website. At this point, I would have tried everything. I contacted them, and from the first conversation, I knew I was in good hands. Their staff was professional and patient, above all confident. They asked for detailed questions relating to my wallet, where I last saw it, and how it was backed up. Days later, they cracked the case. Using forensic data recovery and some advanced tracking techniques, they helped me regain access to my lost Bitcoin. It was a feeling of relief that cannot be described because I went from utter dejection to pure joy in a moment. More than a recovery service, Digital resolution services taught me something: never underestimate grandma’s wisdom. Now, my hardware wallet is stored safely, with multiple backups, and I will never forget this lesson: when Nana talks, I will listen.
Don’t fall victim, reach out to Digital resolution services for any cryptocurrency related issues.
Email: digitalresolutionservices @ myself.com
Website: digitalresolutionservices.com
Be safe
muriel halley
I got cured miraculously from HPV Virus using herbs by Dr. Guba who sent me some herbal medicines and I used them as instructed within two weeks. Before I knew I was totally healed, I visited my doctor for a medical examination. Behold, I am negative. I introduced this great doctor to a couple of infected friends who also tried the medication and they were cured as well . Please if you have this virus and you have tried so many things or have been deceived severally, here is your final solution for you send him an email via: Drgubahealingherbs@gmail.com or WhatsApp: + 234 816 238 8034 or website: https://drgubahealingherbs.wixsite.com/guba-healing-herbs
How can I track, trace and recover my cryptocurrency from a scammer? Lost Recovery Masters
Lost Recovery Masters is renowned for its cutting-edge instruments and proficiency in monitoring cryptocurrency transactions. Lost Recovery Masters, often utilized by con artists victims , are experts in tracking down misplaced or stolen digital assets and detecting illegal activity. Their strong forensic capabilities analyze blockchain data to recover stolen crypto and offer clients clear recovery alternatives and legal remedies. Since Lost Recovery Masters have proven to be a professional and successful crypto recovery case, the team has gained global trust. Contact Below;
E-Mail ( Support@lostrecoverymasters.com )
Whatsapp +44(7-5-3-7-1-0-5-9-2-1)
Visit website: https://lostrecoverymasters.com/