Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1392 comments
Hire a Hacker to Recover Stolen or Lost Bitcoin; Trusted Crypto Recovery Expert; Hire OPTIMISTIC HACKER GAIUS
Watch out for investing websites. I was just defrauded of $167,000. You invest to turn a profit, not to fall victim to fraud. I would not want anyone to suffer the same fate that I did. When I contacted OPTIMISTIC HACKER GAIUS, they helped me recover 90% of my lost funds. If you are a victim, you can get in touch with them. Go to https://optimistichackargaius.com, their website.Or have a WhatsApp conversation with them at +44 737 674 0569.
Have been getting scammed multiple times. I was so confused about these scammers, I had to do what everyone in my situation would do, I made a research all by myself, I got to reach out to { Wzardgarryspeedhack } on Telegram through the help of my lawyer, since I was recommended by my lawyer I had to give him my trust. The most interesting part is that I got all my funds recovered back to my wallet. So for the reason that you have no control over your wallet or you need your bitcoin restored after been invested with a wrong broker, do contact Wzardgarry Recovery right away so that the transaction can be traced and your bitcoin can be recoverd in short time. Wzardgarry recovery is the reliable hacking group out here for a successful job like this.
Contact: rightwaylawrecoveryservice@gmail.com
Telegram: @wzardgarryspeedhack
Regards,
Dannette Romero.
I’ve been attempting to expand my wine business in my hometown in White Plains. For the past 7 years, I do play the lottery in my spare time, but on this blessed day I came across an article about Lord Meduza’s spell to win the lottery. I contacted Lord Meduza to see if it would work and after I agreed to his terms and conditions for completing the task for me, he performed his magical powers for me and within 48 hours, he provided me with the numbers I needed to play the lottery, and I followed his directions. I found out at the store that I was the winner of a $105 million jackpot. For a moment I felt uncertain but I looked again and I saw it was real. As I speak to you, My level has been elevated from grass to grace and I’ve come to know that life is more spiritual and with the Lord Meduza spell, you can actually win the lottery.. Please assist me in thanking him and his contacts are listed as follows;
WhatsApp: +1 (807) 907-2687
Email: lordmeduzatemple@hotmail.com
I already gave up on ever getting cured of HSV2 because i have try many treatment none of them worked out for me i have gone to different hospital they always tell me the same thing there is no cure for herpes, when i came across a post about Dr OGBAJI in the net from a lady called Angela i contacted her and she reassured me with his herbal medicine which i took according to the way he instructed, that how i was cured. I doubted at first because i have been to a whole lot of reputable doctors, tried a lot of medicines but none was able to cure me. so i decided to listen to him and he commenced treatment, and under two weeks i was totally free from Herpes. i want to say a very big thank you to DR OGBAJI for what he has done in my life. feel free to leave him a message on Whats-app him +2348089047155. EMAIL:drogbaji19@gmail.com. he cures all this 1.HIV 2.HPV 3.ALS 4.BED WETTING 5.DIABETES 6.CANCER 7.ARTHRITIS 8.RHUEMATISM 9.DEMENTIA 10.ALZHEIMER
CAN LOST SEED PHRASE BE RECOVERED?
Yes- Miraculously, i was able to recover the seed phrase to my Crypto Wallet. Thanks to the expertise of a professional digital asset recovery firm known as TROJANHACK CYBER SECURITY COMPANY.
At time, i was going through one of the most emotionally draining period of my life. i faced the terrifying possibility of losing my entire life savings worth 818,000 American Dollar. but TROJANHACK came through. They were calm, methodical and reassuring throughout the entire process.
utilizing a combination of advanced techniques and sophisticated tools- some which operate in deep digital spaces. they successfully retrieved my lost seed phrase. i was left in awe of their skills and professionalism.
They can be contacted via email at Trojanhack@qualityservice.com
if anyone lost access to their digital assets or struggling with a compromised wallet. TROJANHACK should be your first call. they are the best in the world of crypto recovery.