Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1412 comments
Many people have written articles about how they were helped but I am very grateful to this great man who brought my ex-husband back to me. This testimony is a true story and my name is Jennifer Sanchez. When I came in contact with this man was also through a testimony written about him helping with a cure for Herpes Virus and I have also encountered many testimonies about how he has been helping others with their life to win the lottery. To get back with an ex is one of the most innermost feelings many people would love to experience especially as those memories with our ex always cloud our mind when someone else does some of those things our ex used to do. I was a single parent of two boys for almost 6 years and though my ex-husband was not staying with me and the kids I still wish someday he will return to me. This doctor I encountered is known as Dr. Odunga helped me with my wishes and I am happy to write on this website that my ex-husband is back with me. I am very happy to share the testimony with everyone so that they too can meet this great doctor and solve their problems. I don’t know what others might feel about getting their ex back in their life but I always know there is a blessing in disguise with just a single re-connection with an ex. If you want to successfully get back with your ex or facing an infertility problem, contact this great man at odungaspelltemple@gmail.com Or WhatsApp/Call +2348167159012 and share an awesome testimony too just as I did
I am forever grateful to the amazing team at Dune Nectar Web Expert. They did what I thought was never possible. They played a crucial role in helping me recover all my lost funds from a fraudulent forex and crypto trading scheme, including the pråofits I thought I’d earned. Looking back, I realize I was a bit of a fool for trusting greedy and deceitful brokers with my hard-earned money. However, I’m overjoyed that I found Dune Nectar Web Expert. They are a team of honest and highly skilled professionals available for hire. Dune Nectar Web Expert helps individuals and organizations recover stolen cryptocurrencies and digital assets. They helped me heal every penny I lost and provided me with the right signals and a reliable platform to trade with. Thanks to Dune Nectar Web Expert, I’m earning more than ever, and I couldn’t be happier. That’s why I can’t stop sharing my positive experience and praising their amazing services and expertise. If you’re still struggling with failures in binary options, crypto, or forex trading, or if you’re looking to recover your lost USDC, Bitcoin, Ethereum, or other crypto funds, I strongly advise you to reach out to:
Telegram>>> ( T.me/dunenectarwebexpert )
Mail>>>> Support (@) Dunenectarwebexpert (.) Com
Web>>> https://dunenectarwebexpert.com/
I will forever be grateful for the miraculous work you did for me Dr Ogudugu, words are not enough to express my gratitude. I was diagnosed of herpes in 2022 and I tried all possible means to get cure but all to no avail until I saw a post in a health forum about a herbalist who prepares herbal medicine to cure all kind of diseases including herpes virus, at first i doubted if it was real but decided to give it a try, when i contacted this herbal doctor via his email i bought the herpes herbal medicine and received it through DHL within 5 working days and used it as prescribed, i tested negative to herpes virus within 14 days of use. Thanks to Dr Ogudugu His email: greatogudugu@gmail.com And WhatsApp Number +2348163026536.
How to Hire the Best Crypto Recovery Expert//Lost Recovery Masters
Hello Guys, be cautious before committing to any investment or trading website, as there are many unregulated platforms on the internet that take money from unsuspecting victims and walk away with their hard-earned money. I’m glad I met Lost Recovery Masters, who rescued me from these shady investment schemes and gave me back my peace of mind.
Lost Recovery Masters also provides the following services:
Recover your stolen or lost Cryptocurrency
Phone cloning
Spy on and monitor a suspected cheating partner
Credit score improvement
Clearing of criminal records and bad debts, etc.
l will always recommend visit https://lostrecoverymasters.com/ or Contact them on Email: (Support@lostrecoverymasters.com) whatsapp +447537105921
Don’t forget to mention Malik Shaw recommended you
Just as farmers feed pigs to fatten them up until they reach market size, such is the nature of the “Pig Butchering Scam”—a cruel and calculated scheme I recently experienced. It nearly cost me my life and left me feeling hopeless, until I came across SpyHost Cybersecurity Company.
How did it all start?
It began when I stumbled upon a widely advertised investment company on Meta (Facebook), promising unbelievably high returns. Blinded by the hope of securing a better future for my children and future generations, I invested everything I had—10 BTC. In hindsight, it was greed and desperation that led me into such a devastating trap. But life sometimes throws us into the worst situations so that we can learn the hardest lessons and gain invaluable experience.
At this point, I urge everyone out there to be extremely cautious with any investment opportunity that seems too good to be true—because it probably is.
Fortunately, my story took a positive turn when a member of a social media group I belonged to referred me to SpyHost Cybersecurity Company. Skeptical but desperate, I decided to give them a try. To my absolute astonishment, they turned out to be legitimate experts in crypto asset recovery.
From the moment the recovery process started, I was speechless. I had heard of hackers and cybersecurity specialists before, but SPYHOST truly exceeded all expectations. Within 72 hours, they recovered my lost funds using advanced tools and software—some of which are only available on the dark web. They described my case as “severe,” making the successful recovery even more impressive and a testament to their expertise.
SPYHOST CYBERSECURITY can be contacted via:
[Spyhost@cyberdude.com] or WhatsApp: +1 (228) 313‑3152
This is the least I can do to show my gratitude—and to help others who might be going through a similar situation. If you’re a victim of crypto fraud, do not lose hope. Reach out to SPYHOST. They are the best in the field.