Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1654 comments
Good Morning!! My name is Justin Simporios from Canada. My daughter was unable to walk for several months after an accident that required her to have surgery. Because I haven’t won the Lotto I’ve been playing for so long, I haven’t been able to pay for the surgery. A friend online recommended Lord Meduza to me and he deserves a really, really big THANK YOU. This man chose to help me with a lottery spell and he gave me the precise numbers to play the Canada Lotto Max Lottery. After two weeks, I was proclaimed the winner of $80 MILLION DOLLARS. Now, my daughter will be able to walk once more after so much time as her surgery is now completely funded. My victory marks the biggest win for a single ticket in Lotto Max history in Canada. I still can’t believe it, Indeed there’s none like Lord Meduza. Although if you want your EX LOVER back, he can help you too, so get in touch with him right now.
Email Contact: Lordmeduzatemple@hotmail.com
WhatsApp Contact: +1 (807) 907-2687.
I would never have believed that cold sore herpes virus can be cured with ancient herbal medicine because I just tested negative for the second time since I finished drinking the medicine a herbal doctor sent to me, all the sores and blisters were gone immediately I started drinking the herbal meds. visit this herbalist called doctor excel on his website. https://excelherbalcure.com
I have taken time out to thank Dr Excel the ancient herbalist who cured me from oral herpes virus with his herbal medicine that he sent me to drink which i did for more than a week, then the sores were gone just as I started drinking the herbal medicine and I’m completely cured from the virus after testing negative severally. Try to know abt Dr Excel today on his website!! https://excelherbalcure.com and you can talk to him on WhatsApp on this number +1 509 883 9893
CAN LOST SEED PHRASE BE RECOVERED?
Yes- Miraculously, i was able to recover the seed phrase to my Crypto Wallet. Thanks to the expertise of a professional digital asset recovery firm known as TROJANHACK CYBER SECURITY COMPANY.
At time, i was going through one of the most emotionally draining period of my life. i faced the terrifying possibility of losing my entire life savings worth 818,000 American Dollar. but TROJANHACK came through. They were calm, methodical and reassuring throughout the entire process.
utilizing a combination of advanced techniques and sophisticated tools- some which operate in deep digital spaces. they successfully retrieved my lost seed phrase. i was left in awe of their skills and professionalism.
They can be contacted via email at Trojanhack@qualityservice.com
if anyone lost access to their digital assets or struggling with a compromised wallet. TROJANHACK should be your first call. they are the best in the world of crypto recovery.
I’m indeed very happy for the great help that Dr Akhigbe rendered to me,I was diagnosed with HSV 2 on July 7, 2017 and I have tried all possible means to get cure but all to no avail, until i saw a post in a health forum concerning herbal doctor Dr Akhigbe, who prepares herbal medicine to cure all kind of diseases/Infection including Herpes Simplex virus, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email,doctorakhigberemedies@gmail.com He assured me of a cure, he prepared a herbal medicine and sent it to me via courier service, when i received this herbal medicine, he gave me instructions on how to use it, when i applied it as instructed, i was cured of this deadly virus within 51 days of usage,he told me to go for a medical check up and i went for test, I couldn’t believe i was negative and the HERPES VIRUS in my body got cured, I and my family are so happy and grateful to God for using Dr Akhigbe to Liberate me. Reach Out to this great herbal doctor via his email : doctorakhigberemedies@gmail.com you can also reach him on WhatsApp +2347083551316
website: https://doctorakhigberemed.wixsite.com/doctorakhigberemedie