Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1915 comments
Hello guys, after I lost my Dad in 2021, everything became very hard for me and my siblings, we could not pay our bills anymore as life took a turn on our flesh, I can’t use my credit card because my credit score was that bad but I needed to figure out how to help my family. To get a house and a car to keep the family running but I could not because of my poor credit score. I thought everything was over for me and siblings because my Dad was everything to us, all hope seems gone, not until I came across MR. JERRY who helped me out with my credit score, from 534 to 786 excellent credit score. All thanks to him and his team for clearing all the negative items on my report. You can reach out to him via email: jerrylinkcreditgroup.com to appreciate me later.
All thanks to itua healer for the permanent cure he rendered to me , I told him I will keep Sharing his good work because he has really done a great work in my love and I know he is a god sent , so please don’t hesitate to contact him now so that you can also be a living testimony just like me . Here are his contact informations ! Email : ituahealer@gmail.com WhatsApp: +2348150223558 Website: https://ituahealer.wixsite.com/my-site so contact him now and thank me later !
I am overwhelmed with gratitude and joy! On December 31, my life changed forever when I won $2 million in the POWERBALL drawing. I want to share my incredible story with the world, and I must give credit to the amazing spell caster, Dr. Oniha. His lottery spell was the key to unlocking my winning fortune. I had been playing the lottery for years, but my numbers never seemed to match. That was until I met Dr. Oniha. His guidance and expertise gave me the confidence to take a chance on his spell. Dr. Oniha’s spell was like a beacon of hope, shining brightly in my darkest moments. His words of encouragement and support kept me focused and motivated. When I won, I was in shock! I couldn’t believe my eyes. Dr. Oniha’s spell had worked its magic, and I am now a multimillionaire. I urge everyone to seek Dr. Oniha’s help if they’re struggling financially or need a change in their lives. His spells are real, and his expertise is unmatched.
Email:onihaspelltemple@gmail.com
Call/Whatsapp +16692213962
🚀🔥 DIGITAL TOOLS FOR MARKETERS, DEVELOPERS & ENTREPRENEURS 🔥🚀
Get the best tools at the lowest prices! Fast delivery & trusted service.
•Office365 cookies page to bypass 2fa
•Banks logs all usa credit union availble
•ccv credit cards and cheque
•Dating profile
•SSN and Dob database
•scam pages , any link custom pages on demand
⚡️ Latest Unlimited ip2url – linux based ⚡️
⚡️ Linux Based URL 2 EMAIL Grabber – Best for Business Emails – General Emails – Office Emails – SMTP SCANNING – VALID LEADS ⚡️
⚡️ 2025 – SMTP SCANNER – Linux Based – Auto Cracking EMAILS – CMS Validator – ENV – Combo Cracking Feature with Auto EMAIL Tester Supporting TLS StarTLS SSL PLain protocols ⚡️
⚡️ EMAIL VERIFIER – DNS CHECKING – LIGHT WEIGHT SMTP CONNECTION – VALIDATION – PRETTY STRONG JUNK REMOVAL – NO DUPLICATES – SAPARATING BUSINESS EMAILS FROM GENERAL ONES – PREPARE RAW-EMAILS FOR SMTP SCANNING IN QUICK TIME ⚡️
📩 Email Tools
• Email Sender – $100 → Bulk or single email campaigns
• Email to SMS Sender – $100 → Convert emails into SMS
• SMTP Scanner – $250 → Scan & grab live SMTPs
• Daily SMTP Subscription – From $30/day → Fresh working SMTPs
• Email Validator – $200 → Clean your email lists
• Email Leads – From $35/1K → Targeted, verified leads
📱 SMS & Phone Services
• SMS Gateway – $150 → Web/API-based SMS sending
• Phone Number Validator – $150 → Verify numbers in bulk
• Phone Carrier Lookup – $200 → Check phone provider & region
💻 Admin & Access Tools
• Office365 Cookies Admin – $300 → Easy access tool
• Webmail Access – $35 → Direct inbox access
• SSH Access – $35 → Secure server shell access
• RDP – $40 → Fast Windows RDP login
• Reverse DNS Tool – $80 → Scan IPs to domain
• PHP Scripts – $120 → Premium & private script collection
🌐 Hosting & Extras
• Hosting – From $25/month → Fast & stable hosting
• Free Downloads – Selected tools available FREE
💬 Contact Telegram : @leewhitten0555
💬 Contact Telegram : https://t.me/leewhitten0555
Fast deals. Private support. Satisfaction guaranteed 💯
Seriózní nabídka půjčky
Dobrý den, s cílem pomoci vám překonat různé finanční starosti a bez obtíží čelit vašim cílům do budoucna předkládám nabídku na půjčku lidem v obtížích nebo kteří chtějí pomoc s vypořádáním některých jejich finanční problémy nebo zahájit podnikání. Nabízím půjčky od 50 000 do 90 000 000 Kč na dobu splácení 1 až 70 let maximálně s úrokovými sazbami 3% a pro více informací o mé nabídce mi prosím napište nebo kontaktovat mě mailem: belkovajaroslava2@gmail.com) nebo Whatsapp:+420 737 587 191