Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1916 comments
A few months ago, I fell victim to a crypto investment scam that cost me $123,000. It was one of the most stressful experiences of my life. The people behind it seemed professional, the platform looked legit, and by the time I realized what was happening, my money was already gone. At first, I thought there was no hope. Law enforcement couldn’t do much, and I was told repeatedly that crypto scams were “untraceable.” But after doing some research, I came across Malice Cyber Recovery. I was skeptical at first they didn’t promise miracles, but they did say they had experience with these kinds of cases and a structured process in place. They explained everything clearly, including the need for an upfront fee due to the complexity of the scam. I hesitated, but eventually went ahead. Within a few weeks, they began showing me traces of where the funds had been moved. It wasn’t fast or flashy, but it was real progress something I hadn’t seen anywhere else. Long story short, they were able to recover my funds step by step. Not all at once, but by the end of the process, I had everything back. $123,000. Something I never thought was possible. If you’ve been scammed, I’m not saying there are easy answers. But I can say from experience: don’t give up too soon. With the right help, it might not be over
Email: malicecyyberrecovery@contractor.net
Whatsapp: +61410262541
Recover Stolen Bitcoin with Lost Recovery Masters
Hello guys, I am Jannie Hardson,,,At once I made up my mind to contact LostRecoveryMasters through email,(Support@lostrecoverymasters.com) I was not sure if he could help me. I said to myself, just give it a try.To my surprise, RecoveryMasters finally found my right password and sent the remaining BTC to my other wallet after paying himself the agreed 20% fee.For those out there who can’t access your wallet, do not waste your time looking for fake recovery agents. I would strongly recommend it to Lost Recovery Masters . I was thankful to still get the 80% rather than nothing.
Thank you very much Lost Recovery Masters for everything!! I might not know you personally but I am sure you will have a better life in the future. May God bless you always, with good health and happiness. l will always recommend Lost Recovery Masters Visite or Contact info.
Email ( Lostrecoverymasters@gmail.com )
Whatsapp +44(7537)-105921
I almost lost my marriage when I watched my wife turned into a total stranger and left the kids and I. I was so furious knowing I had done everything possible to ensure I sustained my marriage as a father and husband. The terrible fights we had traumatized me and I couldn’t function properly as a man. I kept on trying to find out what made her did what she did which made me contacted Dr Isikolo. I was surprised to have found out that she was under a huge manipulation from a man who wanted to ruin my marriage with her and take her away from me. Dr Isikolo had to intervene and fixed the problem thereby ensuring she was rescued from the claws of the dark magic charm they used on her. Knowing that I was able to get my family together again with the help of Dr Isikolo gives me joy and I am forever thankful to him. His webpage: https://isikolo-temple.com or text him on WhatsApp him on +2348133261196
Hello to everyone. I’m Jefferey Vargas, My girlfriend ended our relationship for seemingly no reason and I came to understand that my financial struggles may have contributed to this, as a healthy relationship is difficult without money and aside from God, having more money is often seen as vital. For spellcasting, Lord Meduza is the right person to turn to. My girlfriend left me for another man due to my financial situation, but after connecting with Lord Meduza, he created a spell that not only brought my girlfriend back but also made me a lottery winner of €116 million by providing me with the 6 lucky numbers to play the lottery. Everything feels almost unreal but I assure you this is genuine and it’s occurring. My life is incredibly beautiful and I owe my deepest appreciation to Lord Meduza as his efforts are the epitome of excellence. I strongly encourage everyone to reach him via Email: lordmeduzatemple@hotmail.com or you WhatsApp this number +1 (807) 907-2687..
I’m indeed very happy for the great help that Dr Akhigbe rendered to me,I was diagnosed with HSV 2 on July 7, 2017 and I have tried all possible means to get cure but all to no avail, until i saw a post in a health forum concerning herbal doctor Dr Akhigbe, who prepares herbal medicine to cure all kind of diseases/Infection including Herpes Simplex virus, at first i doubted if it was real but decided to give it a try, when i contact this herbal doctor via his email,doctorakhigberemedies@gmail.com He assured me of a cure, he prepared a herbal medicine and sent it to me via courier service, when i received this herbal medicine, he gave me instructions on how to use it, when i applied it as instructed, i was cured of this deadly virus within 51 days of usage,he told me to go for a medical check up and i went for test, I couldn’t believe i was negative and the HERPES VIRUS in my body got cured, I and my family are so happy and grateful to God for using Dr Akhigbe to Liberate me. Reach Out to this great herbal doctor via his email : doctorakhigberemedies@gmail.com you can also reach him on WhatsApp +2347083551316
website: https://doctorakhigberemed.wixsite.com/doctorakhigberemedie