Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1654 comments
If you have ever been scammed by a romance scammer or have been a victim of an investment fraud you should quickly search REMOTEACCESSRECOVERY through Email REMOTEACCESSRECOVERY @ GMAIL COM and request for a recovery of your funds on their page. They are very fast and efficient in the recovery of your lost funds. They are tested and trusted and very reliable.
If you have ever been scammed by a romance scammer or have been a victim of an investment fraud you should quickly search REMOTEACCESSRECOVERY through Email REMOTEACCESSRECOVERY @ GMAIL COM and request for a recovery of your funds on their page. They are very fast and efficient in the recovery of your lost funds. They are tested and trusted and very reliable.
I want to share a testimony on how i got cured totally from Genital Herpes with the help of the herbal remedy i ordered from Dr Ogudugu, i was diagnosed of Genital Herpes 2019 i have been using my Doctor recommended drugs to control the blisters outbreaks but one day i saw a post by someone on how Dr Ogudugu cured her with his herbal remedy, so i decided to give it a try i contacted Dr Ogudugu and he told me how to order the medicine and i did, he sent the medicine to me through DHL delivery service. I took the medicine for 2 weeks and today i am totally cured from herpes and my Doctor confirmed it through a lab test. You can contact Dr Ogudugu through EMAIL: greatogudugu@gmail.com OR HIS WHATSAPP: +2348163026536.
After I and my husband got married, we relocated to another city and we both got jobs and started working and living together happily. We never had any problems until a colleague of his started doing all she can to get my husband’s attention. I never knew all along what was going until he started sleeping out and making excuses. Things got out of control and he eventually stopped attending to my needs. I knew at that point I needed help so I contacted Dr Isikolo and explained everything to him. He told me all that has been going and promised to fix the problems for me which he did. He cast a love reunion spell for me which reunited i and my husband and he started being the man I always loved him to be just after 48 hours Dr Isikolo worked for me. We are both happy now and it would not have been possible if not for Dr Isikolo. Contact him if you need any help. His website: https://isikolo-temple.com or text him on WhatsApp via +2348133261196.
Buy Pain killers | Mdma,2CB,A-PVP,3CMC | OZEMPIC | STEROIDS (Ecstasy/Nembutal) | Heroin Cocaine (Telegram ID : @Loyaltyco)
Buy Crystal meth, Hydrocodone, Alprazolam Powder, oxycontin, gbl, tramadol, buy GBL, xanax, klonopin, Amphetamine, cocaine, ketamine,2CB , 4-CMC, 3-CMC, 4-MMC, 3-MMC,, A-PVP (FLAK) online MMC, 4MMC, 3CMC China white, P-LSD 2-FA 25I-NBOMe 4-ACO-DMT 4-FA Mdphp 4anpp
Amphetamine Black Tar Heroin Bromadol HCl MDPV Ephedrine Eutylone Etizolam DFentanyl Flakka A-PVP Furanyl Fentanyl Mephedrone Methamphetamine Methylone Potassium Cyanide Pseudoephedrine & Other research chemicals for sale
We are vendors for research chemical and pharmaceutical raw. We only offer the purest of these products at 99%. Top Grade quality. All orders come in discreet packaging. Tracking number Provided 6 hrs after order. 2-ME-MAF, Fentanyl, Acetylfentanyl, carfentanil, U-48800, U-47700 Nembutal Pentobarbital ,, DiaMorphine, CBD isolate Alprazolam, Bromadol Hcl, Etizolam, Clonazolam Ketamine, 2F-DCK, 4-CMC, 3-CMC, 4-MMC, 3-MMC ,MDMA, A-pvp (Flakka), Bk-EBDP, 4-methylaminorex (4-MAR) Oxycodone, Roxycodone Raw Powder and many more. We supply upon customer’s request.
Medicines for weight loss: Mounjaro, Ozempic, wegovy, saxenda
We offer a wide variety of pharmacy products that contain almost everything you need. Fast and discreet shipping quality 100% guaranteed, Express by UPS, FedEx, EMS with tracking number, no receipt required.
No PrescriptionAnt-anxiety
Chronic Pain
Seizures
Depression
Migraines
Arthritis
Killing Cancer
Epilepsy
Post Traumatic stress
Disorder(pstd)
Diabetes
Crohn’s Disease
Gout
Pain relief
Glaucoma
Opiod Dependence
Treating Alcohol Abuse
1-Shipping secure and discreet
2-tracking number provided for your shipment (Fast,safe and reliable delivery)
3-with or without scripts
4-packing is highly discreet sealed, wrapped with an aluminum foil, safe and secure
5-no signature required upon arrival of parcel
I am a legit supplier (vendor) of pharmaceuticals for both patients with or without scripts
I have varieties of pain and anxiety meds
I offer fast and discrete delivery to any location.
Fast and secured delivery guaranteed to any location
I have a 100% record in successful deliveries.
All Inquiries Below
Email: infodocuments4@gmail.com
WhatsApp : +1 314 866 9771
WhatsApp: +237673528224
Telegram ID : @Loyaltyco