Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1633 comments
My husband left me for over two years and I was maintaining no contact rules but it seems everything was falling apart so I tried to find answers on google. I was so lucky I came across Dr.Kwale, a love spell caster. However, he did a powerful spell for me that made my husband come back to me begging me after 2days. The love spell works perfectly well for me. Here is Dr. Kwale’s Email kwaletemple@gmail.com just in case you also need help.
Good Morning!! My name is Justin Simporios from Canada. My daughter was unable to walk for several months after an accident that required her to have surgery. Because I haven’t won the Lotto I’ve been playing for so long, I haven’t been able to pay for the surgery. A friend online recommended Lord Meduza to me and he deserves a really, really big THANK YOU. This man chose to help me with a lottery spell and he gave me the precise numbers to play the Canada Lotto Max Lottery. After two weeks I was proclaimed the winner of $80 MILLION DOLLARS. Now, my daughter will be able to walk once more after so much time as her surgery is now completely funded. My victory marks the biggest win for a single ticket in Lotto Max history in Canada. I still can’t believe it, Indeed there’s none like Lord Meduza. Although if you want your EX LOVER back he can help you too so get in touch with him right now.
Email: lordmeduzatemple@hotmail.com
Whats-App: +1 (807) 907-2687
Website: lordmeduzatemple.com
Anyone diagnosed with HPV needs to be careful not to fall into any of these online traditional-medical doctors who will just take your money and render you empty help. I fell victim several times just Because I was HPV positive. Not until I found Dr. OGEDEGBE who cured me with his natural medicine and his medicine acted fast without any side effects. You can connect him with any of these information. Email dr.ogedegbe6@gmail.com or whatsapp +2349121737553. He also has remedy for HERPES, COPD, HBP, CANCER, FIBROID, AND MANY MORE.
Hire A Crypto Recovery Specialist; Recover Scammed Crypto With iForce Hacker Recovery
Hello everyone, I wish to give my own review about iFORCE HACKER RECOVERY. I hope this message reaches the right audience. As an entrepreneur, I was eager to invest in cryptocurrency after learning about its potential to significantly increase my income. I came across someone online who promised exceptionally high returns, and because he seemed knowledgeable, I was easily convinced.
After investing a substantial amount, I soon discovered that I was unable to withdraw my funds. It was all a scam. This left me in debt and caused severe damage to my business. Fortunately, I came across a pop-up about cryptocurrency recovery and cybersecurity experts. I reached out to iFORCE HACKER RECOVERY, a cybersecurity and cryptocurrency recovery company, and they successfully helped me recover my lost funds.
I am incredibly grateful for their services and highly recommend them to anyone in need of cryptocurrency recovery assistance.
Website; ht tps: //iforcehackers. co m/
Email; iforcehk @ consultant. c om
Call/Text-whatsapp; +1 (240) 8033 (706)
Hello everyone i was diagnosed of herpes simplex virus for about 8 months ,I’ve lost all hope and my doctor said there is no possible cure and I have been taken antiviral to sustain myself I have had several out break from the time I was diagnosed till I got to know about Dr. lacoco through a friend who he cured of Herpes . I contacted him and he sent me his herbal remedy which I took as he directed me to do for some days and I went to the hospital after consuming his Herbal medicine and I was confirmed Herpes Negative after 8 months of pains and depression , it was indeed a miracle, Dr. lacoco is a great man, I have heard so much about how he has helped a lot of people, He also cures ALS, HEPATITIS B, CANCER, HERPES, DIABETES and lots more. If you have any issues you can contact him for help add him on whatsapp https://wa.me/+2347035833962. or via email:Email bestnaturalherbalremedie@gmail.com Facebook page https://web.facebook.com/Bestnaturalherbalremedies