Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1656 comments
애인대행애인대행출장업소출장업소
https://huko887.com/%ed%95%a8%ed%8f%89%ec%b6%9c%ec%9e%a5%ec%83%b5/
CONTACT ETHICALHACKERS009 @ GMAIL COM or whatsapp +14106350697 for all your hacking or pi jobs, they are very reliable and competent, they helped me hack into my spouse phone remotely and sent my saved up crypto with her back to my wallet after she spent some on her new man,hacked into all her socials remotely got me texts and videos to confirm she was cheating some of which i used in the court of law that got me custody of our children, hacked into my credit line, increased my credit score, erased all bad credit report you ever need the help of a hacker or professional pi for any hacking job contact them and thank me later
I recommend George Wizard to anyone who needs this service. I decided to get into crypto investing and lost my crypto to an investor late last year. The guy who was supposed to manage my account was a fraud the whole time. I invested $180,000 and at first my read and profit margins looked good. I got worried when I couldn’t make withdrawals and realized I had been tricked. I found some testimonials that people had to say about George Wizard and how helpful it was in getting their money back. I immediately contacted him via. Email:(donaldgeorgewizard@gmail.com), or WhatsApp via: {+13862973953}
RECOVER YOUR LOST CRYPTO ASSETS WITH CNC INTELLIGENCE. NO UPFRONT PAYMENT REQUIRED.
CNC Intelligence is a team of Cyber Intelligence, Crypto Investigation, Asset Tracing and Offshore Legal experts. Working together to form a boutique cyber and crypto intelligence group focused on providing results.
Using the latest Cyber Tools, Open Source Intelligence (OSINT), Human Intelligence (HUMINT), and cutting edge technology, we provide actionable intelligence to our clients.
WHY CHOOSE CNC INTELLIGENCE?
- Expert Cyber Investigation Services —Our cyber investigators are certified in the US, UK and experienced with investigations spanning 6 continents.
- Cryptocurrency And Digital Asset Tracking -- We are able to track the movement of several different cryptocurrencies and assets. If the cryptocurrency has been moved, we are able to follow it.
- Strategic Intelligence For Asset Recovery - The first step to recovery is locating recoverable assets. Our experienced team will be able to walk you through the process.
Schedule a mail session with our team of professionals today via – cncintel247 (@) gmail (.) com to get started immediately.
BEWARE of FABRICATED reviews and testimonies endorsing fraudsters, do not get scammed twice.
Disclaimer: CNC Intelligence is not a law enforcement agency and not a law firm. Like all investigators, we cannot guarantee specific results, but we apply our expertise and resources to every case professionally and ethically.⁶
Hi guys, my name is Sarah Flower, I ended my marriage in 2024 due to suffering from domestic abuse at the hands of my husband. Currently, he is trying to reconcile with me after finding out that I won a Jackpot Lottery Prize of $96 million. Fortunately, I received assistance online from Lord Meduza, the great spell caster who has successfully aided many individuals worldwide in winning the lottery. I reached out to him about my circumstances and expressed my desire to win the lottery. After casting the spell, he provided me with the exact numbers to play. Now, my husband wants me back, fully aware of my $96 million lottery win, but I told him no; I will not return to him. I am incredibly grateful to Lord Meduza, and if you find yourself facing a tough situation, I recommend that you reach out to him as he’s the best in his field. Contact him on via
Email: lordmeduzatemple@hotmail.com
WhatsApp: +1 807 907 2687.
Good luck.