Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1443 comments
A POWERFUL SPELL TO HELP YOU GET YOUR EX LOVER BACK NO MATTER HOW LONG YOU BROKE UP OR WHOM HE/SHE MAY BE WITH NOW DR BOB WILL HELP YOU GET THEM BACK CONTACT DR. BOB VIA WHATSAPP : ( +2349153314547 )
EMAIL: foreverspellcast49@gmail.com
Hello am STEPHANIE JANE from the united state, i read some testimony about Dr Bob on how he has helped people in bringing back there ex within 48hours i was just thinking if that was real, And decided to call a lady who made a testimony and also dropped her number, So i called her and ask her about Dr Bob she said Dr Bob is a trustworthy man and he his ready to bring back my lover for me, i was just so happy and a little bit relief that my lover will be back to me soon, Then i decided in contacting Dr Bob which i did, And before i could share him my problem he has already told me what i came for, And he said everything will be okay within 48hours that my lover will be back to my arms, So he said he would be casting the spell and that within 48hours my lover would call me, So i hoped so truly before the 48hours i got a call from a man who has left me for the past 1years saying he is sorry and he wants me back, i was happy and i said i also want him back, Then i traveled to Canada to meet him up, And he apologized for what he has done to me now he proposed to marry me and we are both preparing for our wedding soon, All thanks to the great and World best spell caster.
WhatsApp him directly :+2349153314547
I was scammed out of over $40,000 in cryptocurrency. One wrong decision, one convincing platform, and my investment disappeared. The panic, the regret, and the feeling of being completely powerless it was overwhelming. I honestly thought it was gone for good. Then I found Astraweb and Reached out to them It was the turning point. Their response was fast, focused, and professional. They didn’t make promises they delivered results. Through advanced blockchain tracking, legal pressure, and technical expertise, they were able to recover a major portion of my stolen funds. I still can’t believe how quickly they moved and how thorough they were. Astraweb didn’t just recover my money they restored my trust. They treated my case like it mattered, and their team walked me through every step with clarity and care. If you’ve lost crypto and think it’s over it’s not. I was in your shoes. Don’t wait. Reach out to Astraweb. It could be the best decision you make.
Email: AstraWeb@Cyberdude.com
HIRE AN EXPERT TO RETRIEVE CRYPTO ASSET: META TECH RECOVERY PRO ASSET RECOVERY EXPERT.
Since 2019, the concept of Bitcoin had been circulating in my awareness, yet it wasn’t until 2024 that I truly began to pay attention. This shift in perspective coincided with the resurgence of Donald Trump’s political campaign, coupled with the prominent involvement of Elon Musk in public discourse. The conversations at my workplace centered on the potential for digital currencies to experience significant growth, particularly if Trump were to regain power. This speculation piqued my interest, prompting me to delve deeper into the subject and consider investing a portion of my savings. A colleague’s enthusiastic endorsement of Bitcoin as the “future gold” further fueled my curiosity. Consequently, I registered on several cryptocurrency mining and trading platforms, but one, in particular, consistently held my attention. Over the subsequent weeks, I experienced success on various platforms, which led me to consider increasing my investment to generate greater returns. I ultimately chose a platform that presented exceptionally high-profit projections. Without conducting thorough research, I committed a substantial sum of 68,000 Pounds to acquire a “gold account,” enticed by the promise of substantial returns on investment. Regrettably, I later discovered that the platform’s claims were fraudulent, and their promises were entirely unfounded. Faced with this realization, I was compelled to seek a means of recovering my lost funds. After careful consideration, I engaged the services of META TECH RECOVERY PRO to undertake this challenging task. To my immense relief and satisfaction, they performed exceptionally well, successfully retrieving my funds from the deceptive platform. I am profoundly grateful to the dedicated team at META TECH RECOVERY PRO for their expertise and unwavering commitment. for help via:
Telegram:@METATECHRECOVERYPROTEAM
WHATSAPP +1 (469) 6 9 2 8 0 4 9
Thank you.
Life is always beautiful when you have good health. I have been suffering from Herpes and I was looking for help in every ways and luckily I was directed to a very kind and Great DR IKPOKO HERBS, who helped me cure my Herpes and today I am free from Herpes and very healthy thank you so much DR IKPOKO HERBS. kindly reach him and he’s helpful.
whatsapp: +2348108298045
website https://drikpoko.wixsite.com/herbs
email Drikpoko@gmail.com
I was scammed out of over $40,000 in cryptocurrency. One wrong decision, one convincing platform, and my investment disappeared. The panic, the regret, and the feeling of being completely powerless it was overwhelming. I honestly thought it was gone for good. Then I found Astraweb and Reached out to them It was the turning point. Their response was fast, focused, and professional. They didn’t make promises they delivered results. Through advanced blockchain tracking, legal pressure, and technical expertise, they were able to recover a major portion of my stolen funds. I still can’t believe how quickly they moved and how thorough they were. Astraweb didn’t just recover my money they restored my trust. They treated my case like it mattered, and their team walked me through every step with clarity and care. If you’ve lost crypto and think it’s over it’s not. I was in your shoes. Don’t wait. Reach out to Astraweb. It could be the best decision you make.
Email: AstraWeb@Cyberdude.com