Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1657 comments
It feels good to know there are cures and remedies for many terrible diseases and viruses such as Als, herpes genital, hiv, hpv,diabetes etc? Am grateful I finally got rid of genital herpes after suffering for over the years. Trust me holistic doctors are the best, add up the doctor that cured me on his Instagram page Dr Osalu or email drosaluherbalhome@gmail.com WhatsApp +2348078668950.
website: https://drosaluherbalhome.wixsite.com/drosaluherbshome
It feels good to know there are cures and remedies for many terrible diseases and viruses such as Als, herpes genital, hiv, hpv,diabetes etc? Am grateful I finally got rid of genital herpes after suffering for over the years. Trust me holistic doctors are the best, add up the doctor that cured me on his Instagram page Dr Osalu or email drosaluherbalhome@gmail.com WhatsApp +2348078668950.
website: https://drosaluherbalhome.wixsite.com/drosaluherbshome
RECOVER YOUR LOST CRYPTO ASSETS WITH CNC INTELLIGENCE. NO UPFRONT PAYMENT REQUIRED.
CNC Intelligence is a team of Cyber Intelligence, Crypto Investigation, Asset Tracing and Offshore Legal experts. Working together to form a boutique cyber and crypto intelligence group focused on providing results.
Using the latest Cyber Tools, Open Source Intelligence (OSINT), Human Intelligence (HUMINT), and cutting edge technology, we provide actionable intelligence to our clients.
WHY CHOOSE CNC INTELLIGENCE?
- Expert Cyber Investigation Services —Our cyber investigators are certified in the US, UK and experienced with investigations spanning 6 continents.
- Cryptocurrency And Digital Asset Tracking -- We are able to track the movement of several different cryptocurrencies and assets. If the cryptocurrency has been moved, we are able to follow it.
- Strategic Intelligence For Asset Recovery - The first step to recovery is locating recoverable assets. Our experienced team will be able to walk you through the process.
Schedule a mail session with our team of professionals today via – cncintel247 (@) gmail (.) com to get started immediately.
BEWARE of FABRICATED reviews and testimonies endorsing fraudsters, do not get scammed twice.
Disclaimer: CNC Intelligence is not a law enforcement agency and not a law firm. Like all investigators, we cannot guarantee specific results, but we apply our expertise and resources to every case professionally and ethically.
I was unlucky enough to fall victim to a cryptocurrency scam recently, but RECOVERY HACKER 101 outstanding service helped me retrieve most of my lost money. They even provided me with timely updates along the process and assisted me in receiving quick results in a matter of days! Their platform is effective and simple to use! I suggest them to anyone in need of their kind of assistance! Make contact using the email: recoveryhacker101[at]gmail[dot]com
I was lured into a crypto currency investment platform that I came across on Instagram. I lost about $508,000 to this evil scheme after I invested and accumulated profits, I was denied withdrawals on the specified date. I wrote to the customer support but I was given no feedback, I knew I had been scammed and I started to search for a way to recover my crypto. I considered myself fortunate that I stumbled upon a post on the internet web about a recovery expert, Hack Michelle Tyler. I would highly recommend Hacker Michelle Contractor agent to anyone who wants to recover their lost funds from any scam. she is best in the business and will do anything possible to help you get your money back. I never thought it would be possible to get back crypto once it is sent but I’m super happy and grateful for the services of Hac Michelle Contractor. Kindly reach out to her if you need any help or any assistance in recovering your money from these scammers. If you lost access to your crypto wallet or lost your crypto password, or your phone was compromised I would highly recommend Hac Michelle Contractor to anyone who wants to recover their lost wallet or you lost your crypto password or from any scam. She is the best in the business and will do anything possible to help you get your information and money back. I never thought it would be possible to get back those information that I lost or my crypto once it was sent but I’m super happy and grateful for the services of Hac Michelle Contractor. Kindly reach out to the company if you need any help.
Email :: rightwaylawrecoveryservice@gmail.com
Telegram info +1 513 602 3179