Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1887 comments
I was lured into a crypto currency investment platform that I came across on Instagram. I lost about $508,000 to this evil scheme after I invested and accumulated profits, I was denied withdrawals on the specified date. I wrote to the customer support but I was given no feedback, I knew I had been scammed and I started to search for a way to recover my crypto. I considered myself fortunate that I stumbled upon a post on the internet web about a recovery expert, Hack Michelle Tyler. I would highly recommend Hacker Michelle Contractor agent to anyone who wants to recover their lost funds from any scam. she is best in the business and will do anything possible to help you get your money back. I never thought it would be possible to get back crypto once it is sent but I’m super happy and grateful for the services of Hac Michelle Contractor. Kindly reach out to her if you need any help or any assistance in recovering your money from these scammers. If you lost access to your crypto wallet or lost your crypto password, or your phone was compromised I would highly recommend Hac Michelle Contractor to anyone who wants to recover their lost wallet or you lost your crypto password or from any scam. She is the best in the business and will do anything possible to help you get your information and money back. I never thought it would be possible to get back those information that I lost or my crypto once it was sent but I’m super happy and grateful for the services of Hac Michelle Contractor. Kindly reach out to the company if you need any help.
Email :: rightwaylawrecoveryservice@gmail.com
Telegram info +1 513 602 3179
Getting into my husband’s phone seemed like a dead end until I contacted zattechhacker @ gmail com. In under 7 hours, I gained full access to his phone – including deleted messages from the past 4 months. This hacker is beyond skilled and works fast! It’s discreet, reliable, and shockingly effective. If you need access without hassle, this is your go-to expert. I couldn’t be more satisfied with the results
Get rid of all kinds of Herpes and virus infections, Diabetes, Hepatitis A B C, Menopause and HIV with Natural Roots and Herbs, i was once infected with HERPES and after using Dr UMA Herbal Medicine for couple of weeks i couldn’t trace it anymore, i even went for checkup and my test came out Negative. Get your cure today from this wonderful herbalist, Dr. UMA.
You can also reach doctor UMA on WhatsApp
+2347035619585 or Email dr.umaherbalcenter@gmail.com.
Get IELTS, TOEFL, PTE, CPSO, Degree & other documents 100% authentic WhatsApp: +447401473736
Get your Degree & Certificate without Exams and get the best results
We also issue fake & legal documents likes ( PASSPORT, ID CARD, DRIVING LICENSE, DEATH CERTIFICATE, BIRTH CERTIFICATE, IELTS, DEGREE, CPSO)and other documents as well. very authentic documents within a short time frame, for more information
Our large platform is a professional team committed to providing you with valid DALF, DELF, TCF, TEF, CELPIP, IELTS, PTE, Goethe & other language certifications without Exam. we provide Official Language certificate with registration into the database and also actual center stamps for customers interested in obtaining the certificates without taking the test.
1) Get exam materials to prepare you for upcoming test.
2) Renew your expired certificate without taking another test.
3) We also assist candidates to register for any of the above tests.
4) Obtain a certificate without taking the exam if you meet the requirement.
5) Follow our guide and change your failed results to a pass.
Email-: qualitybills-documents@hotmail.com
Wickr: Ranko322
Telegram: @Ranko3222
WhatsApp: +447401473736
USE ANY OF THE ABOVE TO CONTATC IF ONLY YOU ARE 100% SERIOUS/ NO TIME WASTERS
Hey mate this is Ranko, i have been dealing with counterfeit bank notes for over 10 years now with producing top currencies such as the famous (USD,GBP,EUR,CAD,AUD) and many other currencies. we use top quality materials to produce our bank notes to make sure that it meet customers satisfaction and we do offer the best services for our customers which is discreet shipping and delivery and and also face to face business in case you would like to see the quality and test some free samples before you order.
We do face to face meetup in (Europe, America and Asia ) in case you have been looking to buy some good counterfeit then now is your best chance. we can also assist with exam documents such as (IELTS, TOELF, CPSO, USMLE, CPSN,GEOTHE,OET ) and many more. for more information about our services reach out on
Email-: qualitybills-documents@hotmail.com
Wickr: Ranko322
Telegram: @Ranko3222
WhatsApp: +447401473736
USE ANY OF THE ABOVE TO CONTATC IF ONLY YOU ARE 100% SERIOUS/ NO TIME WASTERS