Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1914 comments
I always believed cold wallets were the safest way to store crypto. That belief was shattered when I mistakenly reset my device and lost access to over $179,000 worth of Bitcoin and USDC. I had backed up the seed phrase, or so I thought, but during the reset, I realised the backup was incomplete. I couldn’t access my funds, and panic set in.
After days of trying to recover access on my own, I turned to forums and online resources. That’s when someone recommended Morphohack, a cyber recovery service specialising in blockchain forensics and crypto recovery. The team at Morphohack was calm and professional. They analysed my case and used specialised tools to trace my transactions and reconstruct the wallet environment. To my disbelief, they managed to recover access to my assets and $179,000 returned safe and secure.
It was a huge relief like getting a second chance. I’ve since doubled down on secure backups and proper key management. But if you ever face a loss like mine, don’t assume it’s permanent. Morphohack gave me hope when I had none, and they delivered results when no one else could. Their email. Morphohack@cyberservices. com
I want to appreciate the good work of a great herbal doctor Harry who has been out there helping people getting cured from Herpes viruses. I am one of the people he has cured. I suffered from HERPES SIMPLEX (HSV2) for a very long time until I got in contact with him where I ordered his herbal medicine that helped me with my herpes problem, after using his medicine for three weeks I have regained myself back to normal and negative. All thanks goes to God and this great herbal doctor Harry Herbs for helping me out of this Herpes virus which I have suffered from for fifteen years. You can as well contact him now on his
email Drharryherbspell01@gmail.com
website: http://Drharryherbs.wixsite.com/natural
WhatsApp number +1 (564) 222‑5874
CONSULT A CERTIFIED CRYPTO RECOVERY EXPERT/FOLKWIN EXPERT RECOVERY.
Throughout my life, I’ve always been passionate about supporting startups and believed deeply in the transformative power of innovation. I’ve long admired entrepreneurs who take risks to build something meaningful and change the world. So, when I came across an online crowdfunding platform showcasing a promising tech startup, I felt compelled to invest. The startup’s pitch was compelling, with a clear roadmap, a dynamic team, and what appeared to be a viable, innovative product. Convinced by their vision, I decided to invest $47,000. I was genuinely excited about the potential impact of my contribution and thrilled to be part of something groundbreaking. As the months passed, things began to unravel. Initially, I received regular updates from the company, keeping me informed and reassured. But over time, those communications became sporadic and eventually stopped altogether. Concerned, I reached out to the crowdfunding platform for clarification. Unfortunately, their responses were vague and unhelpful, leaving me confused and anxious. Then came the worst possible outcome: both the startup and the platform disappeared entirely. They vanished without a trace. My heart sank as I realized I might have lost my hard-earned savings. The emotional toll was immense. I felt betrayed, overwhelmed, and utterly lost. I spent countless hours researching legal options and trying to understand what had happened, but each path led to more frustration and hopelessness. While browsing online i found Folkwin Expert Recovery review in a desperate attempt to find help. The testimonials on their website sparked a glimmer of hope within me. After a brief but reassuring consultation with their team, I decided to move forward. From the beginning, Folkwin Expert Recovery was empathetic. They immediately took action, clearly understanding the urgency of my situation. They worked tirelessly, keeping me updated and calm throughout the process. Amazingly, after just two intense days, I received news I had almost given up on: they had successfully recovered the full amount of my investment. I was flooded with relief and gratitude. Folkwin Expert Recovery not only returned my money they restored my faith in justice. If you’ve been scammed, don’t give up. Folkwin Expert Recovery might just be your best hope, as they were mine.
CONTACT FOLKWIN EXPERT RECOVERY VIA INFORMATION BELOW
Telegram: Folkwin_expert_recovery Email: Folkwinexpertrecovery()tech-center.com
Regards,
Hannah Einbinder.
I got Herpes treatment cure support with the help of Dr harry herbs I find here and his herbs medicine helps me kill and cure my herpes virus and flush it out from my body system and tested negative. i’m so happy and grateful I’m finally cure from herpes Dr harry herbs medicine is helpful for herpes treatment cure support. Contact DR Harry Herbs to get your treatment cure now. Contact
Email. Drharryherbspell01@gmail.com
website: Drharryherbs.wixsite.com/natural
WhatsApp number +1 (564) 222‑5874
Good day everyone, Have you been defrauded by deceptive scammers online? Are you seeking to recover funds you lost to online to bitcoin investors? jamesmckaywizard and his great team of hackers offer all kinds of professional hacking services, kindly contact them today for all your hacking and recovery services today. University grades changing, Bank accounts, Erase criminal records, hack your cheating partner’s Facebook, Twitters, WhatsApp, Email accounts, Website crashed, Skype hack Databases, hack Word Press Blogs hack Individual computers hack Control devices remotely hack Burner Number Verified PayPal Accounts. Any social media account. Android & iPhone.. Text message interception, Bitcoin recovery, Binary multiplication Credit score upgrade Track Calls log and Spy Call Recording. Monitoring SMS text messages. Cell phone GPS location racking. Untraceable IP etc. Contact them today via: j a m e s m c k a y w i z a r d a t g m a i l d o t com or WhatsApp +31657446248…