Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1887 comments
At this point in life, bad situation emerge for us to learn our mistakes and figure out what next is to be done. I’m really delighted I eventually found a real competent hacker after been spammed by several sham hackers I followed their Bogus recommendation. Never knew that my wife Had a son out of wedlock without informing me about it for almost 12years of our relationship until I noticed she picks strange calls on her phone and send some money to strange man. As much as it is inappropriate to spy on one’s spouse phone it’s also necessary to be sure that your relationship is in perfect shape. All my gratitude goes to this Genuine GeniusHacker-:jamesmckaywizard at gmail dot com who got to clone/hack her phone completely to the extent that I had a clone of her phone and could read all her whatsapp & amp;Facebook message, call logs text message and GPS to know where and what she is always up to. I’m really grateful for this great experience, it really helped me find out the truth about my marriage. They are also specialize on hacking and recovery of lost funds, kindly send a message if you’ve experience any of these issues..Email: jamesmckaywizard at gmail dot com or WhatsApp +31657446248. Kindly reach out to them and thank me later.
As an accountant, I’m typically cautious with my finances. However, last year, I felt pressure to join the cryptocurrency market, fearing I’d miss out on potential gains. An Instagram ad for CBEX Trading caught my attention, with its professional website, real-time charts, and promising testimonials. A representative named Elena guided me through the platform, offering a $200 welcome bonus. Convinced by their promises, I invested $87,000 worth of Bitcoins.
But when CBEX’s website crashed, and all communication channels were severed, I realized I had been scammed. Devastated and lost, I searched for ways to recover my funds. That’s when I discovered Morphohack, a reputable crypto recovery service. Their expertise and track record gave me hope.
Morphohack’s team worked diligently to track down my stolen bitcoins and successfully recovered it from the CBEX scam. I’m grateful for their exceptional service and expertise. Thanks to Morphohack, I was able to recover my losses. If you’ve fallen victim to a CBEX/PCEX Scam, I highly recommend Morphohack’s services.
Morphohack@cyberservices . com or visit www.morphohackcyberservices .com
HOW TO RECOVER YOUR FUNDS/BITCOIN FROM FAKE INVESTMENT BROKER
BEWARE!!! I’m about to share a jaw-dropping story of how I got scammed out of $83,800 in a cryptocurrency investment that promised me a return of $344,000…!. As a woman who was already recovering from kidney surgery, I was blindsided by the news that my investment was a scam. I was left feeling helpless, stressed, and worried about how I’d pay for my medical expenses. But then I stumbled upon Jetwebhackers, and they changed everything. With their expertise and determination, they worked tirelessly to recover not only my initial investment but also the promised profit. It’s been a game-changer for me, and I’m so grateful to have my money back. If you’re a victim of a scam or are struggling to recover your losses, don’t give up hope. Jetwebhackers is a team of dedicated professionals who will stop at nothing to get you back on track. Trust me, you won’t regret reaching out to them. They’re the real deal!"Quickly reach out to JETWEBHACKERS, on their
WEBSITE: www.Jetwebhackers.com
EMAIL:jetwebhackers@gmail.com
TELEGRAM: @jetwebhackers
WHATSAPP:+1 (310) 721-3656
Recovering Lost Funds from Coinpro with Lee Ultimate Hackers Assistance
This has been a very distressful week for me, after investing a humongous amount into Coinpro, a trading platform that promised luring returns, their 25% interest on each trading was quite an enticing deal so I opted to invest £207,700 expecting huge and profitable returns, unfortunately for me I realized little too late that it was the worst financial decision blunder that I had made after they started taking me round in circles once I realized I couldn’t access my funds.
I became frustrated and anxious upon coming to accept that I could have possibly lost my life time investment. After days of struggling with my situation I soon realized I urgently needed professional help, so I dove down to research on how to recover lost my funds, it’s when I stumbled on several testimonials about LEE ULIMATE HACKER an APPROVED hacker in all recovery problems, I decided to contact them via Leeultimatehacker@aol.com & wh@tsapp +1 (715) 314 – 9248
ASAP and I was soon welcomed by good customer service from one of their staff, who took me through the recovery process, I had lost all hope but they gave me hope and within a period of 12hours I was met with good news LEE ULTIMATE HACKER and his team were able to trace my funds, this quick turn around was just the good news that i deserved after that traumatic experience I had encountered of not being able to access my funds, but that was all water under the bridge after LEE ULTIMATE HACKER kept their word and within a few hours I was able to access and withdraw all my funds. Contact LEE ULTIMATE HACKER for all your recovery problems.
Giving thanks and appreciation 🙏 to Redeemed Hacker Pro, A digital Hacking & recovery of fraud/stolen funds/cryptocurrency, for helping me get a Unlimited funded Blank ATM Card🏧. Which has been very helpful and convenient to me and my family during our vacation across different countries. And I was able to withdraw up to $500,000 for my real estate projects in Europe. Get rich with Team Redeemed Hacker Pro, unlimited Funded Blank ATM card They are the best choice to deal with ever, when it comes to get rich with Unlimited Blank ATM card. reach out to them now through their hotline at email:
redeemed.h.p@hackermail.com or WhatsApp No: +1 (347) 258-6860.
You can also contact them on cases concerning hacking and recovery of stolen digital assets, scammed funds, cryptocurrency, lost or hacked wallet/password recovery, stolen Bitcoin recovery, binary Investment Expert E.T.C.