Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1885 comments
Hello Everyone, I’m a testament that miracles happen. When I turned 30, My grandfather encouraged me to buy a lottery ticket for fun but I wasn’t pleased with the way I kept on playing without winning. I was eager to learn more about how to win the lottery and when I searched the internet I found numerous articles saying how they won the lottery through spell and I decided to give it a try by contacting DR UYI. I’d love to say that this man is such a sweet soul who got my back all through the process of making me a lottery spell to win the lottery. The numbers he gave me won me the JACKPOT of a whopping $128 million Dollars. Right now my family and I are blessed. Thank you DR UYI for making this win come true for me and my family. Anyone that seeks for his help can get in touch with him by email: drzukalottospelltemple@gmail.com OR WhatsApp Number +17174154115
https://www.facebook.com/profile.php?id=61557911605591
Good Morning! My name is Justin Simporios from Canada. My daughter was unable to walk for several months after an accident that required her to have surgery. Because I haven’t won the Lotto I’ve been playing for so long, I haven’t been able to pay for the surgery. A friend online recommended Lord Meduza to me and he deserves a really, really big THANK YOU. This man chose to help me with a lottery spell and he gave me the precise numbers to play the Canada Lotto Max Lottery. After two weeks, I was proclaimed the winner of $80 MILLION DOLLARS. Now, my daughter will be able to walk once more after so much time as her surgery is now completely funded. My victory marks the biggest win for a single ticket in Lotto Max history in Canada. I still can’t believe it, Indeed there’s none like Lord Meduza. Although if you want your EX LOVER back, he can help you too so get in touch with him right now.
Email: lordmeduzatemple@hotmail.com
Whats-App +1 (807) 798‑3042
Website: lordmeduzatemple.com
Hello everyone, my husband and I had already given up hope of ever getting cured from herpes. We tried so many treatments, went to different doctors, and kept getting prescribed the same medications that just didn’t work for me. Then one day, I came across a post online from someone talking about Dr. Phillip Healer. She said his herbal remedies had helped her, so I decided to reach out. From the very first conversation, he gave us hope. He prepared some herbal medicine and explained exactly how to take it. We followed his instructions carefully. At first, I wasn’t sure if it was working, but my husband encouraged me to let us go get tested again, and to our surprise, the results came out clear and negative. I’m so grateful to Dr. Phillip Healer for helping me. If you’re struggling with herpes, you can reach out to him via email: drphillipherbalsolution@gmail.com His herbal medicine is a total game changer and a life saver that made a real difference for me.
Hello everyone here i am Michael Freckleton a medical doctor from France but currently in Miami,i want to share a great testimony of how Dr HARRY herbal mixture cream saves me from shame and disgrace, my penis size was a big problem to me as the size was really so embarrassing and discouraging, a 39 year old full grown man like me having 4 inches penis and to worsen it i don’t last in sex i cant even last two minutes it was really a thing of shame my wife was really tired of me because my sex life was very poor , she never enjoyed sex, i was always thinking and searching for solutions everywhere until last two months when i saw a testimony of how Dr herbal mixture cream have been helping people from the Globe,i saw one MR PAUL testifying of how Dr HARRY helped him enlarge his penis size so i decided to give him a try ,i visited his website link https://drharrysolutionhea.wixsite.com/healinghome we talked and he gave me steps to follow which i did and to my greatest surprise in less than two weeks of taking the herbal mixture cream my penis grow to 8 inches i couldn’t believe my eyes and as i speak now my penis is now 10.5 inches long and i was amazed when my wife said i satisfy her so well now all thanks to Dr HARRY herbal mixture Cream, i will forever be grateful To him i also learnt that Dr HARRY also have the herbal cure to problems like PENIS ENLARGEMENT ERECTILE DYSFUNCTION DIABETES type 1 and type 2 HERPES GENITAL WART LOW SPERM COUNT WEAK ERECTION BREAST ENLARGEMENT PROSTATE CANCER HIV/AIDS SPELL OF ALL KINDS LIKE EX BACK,CANCEL DIVORCE,BREAK UP SPELL ,PREGNANCY SPELL,PROMOTION SPELL,JOB SPELL ALS HPV 123 PILE ASTHMA HEART FAILURE PREMATURE EJACULATION HEPATITIS A,B,C AND MANY MORE so if you you are suffering from any of this problems please do not hesitate to contact him now email drharrysolution@gmail.com website https://drharrysolutionhea.wixsite.com/healinghome you can call him or Whatsapp +2349036417079 thanks
I mean I don’t understand where the good reviews about this people come from. Totally waste of time and money, complained immediately after it failed to work as advertised but still failed another promise of refund. Even though I lost money to them, I was still able to get the service I wanted from another better recovery agency. All worked perfectly and been using for over 3weeks now. I recommend him instead. His contact is recoveryhacker101 @ gmail com