Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1483 comments
Hello!……..
FULLZ DATABASE AVAILABLE
*SSN DOB & FULL INFO ON SSNDOB
*REAL DL Fullz with Issue & Exp Dates
*NIN DOB ADDRESS SORT CODE & ACCOUNT NUMEBR UK
*USA UK CANADA SSN SIN SPAMMED & VERIFIED
*UK NIN DOB DL Address Sort Code
SSN|NIN|SIN DOB Address Phone Email
SSN DOB DL Address Employee & Bank Info Routing number
UK NIN DOB DL Address Sort Code
SIN DOB Address MMN Phone Email
SSN FULLZ FORMAT:
FIRST NAME/MIDDLE NAME-LAST NAME-SSN-DOB-PHONE HM-PHONE WORK-PHONE CELL-EMAIL-MONTHS AT ADDRESS-ADDRESS-CITY-STATE-IP-RESIDENT STATUS
DL Fullz with Issue & Exp Dates
→DL Fullz with MVR
→DL Fullz for KYC
→DL Fullz with W-2 Forms
DL FULLZ WITH ISSUE & EXP DATES:
FIRST NAME-LAST NAME-ADDRESS-CITY-STATE-ZIP-DOB-DL NUMBER-DL ISSUE-DL EXP-SSN
TOOLS:
>Web-mailers -Bulk Email Sender
→Scampage tools and tutorials
→Carding Tools & Tutorials
→C-Panels & Web mailers
→Bulk SMS Senders & Email Senders
→SMTP Linux RooT
The Only place for Top Quality Fullz For 5 Years Straight, Never had a competitor And will never have one, Because simply we the best in
CONTACT US!
Whatsapp: +44 7700 137680
https://t.me/LeadsSellers
Tele gram → @Albertz10
I’ve read numerous stories of individuals losing bitcoin through fraud. I prefer to start by stating that the organisations in charge of bitcoin security have done nothing to assist in the recovery of lost or stolen coins. In my case, my computer was hacked and someone with access to my emails stole 4.3 bitcoins. I contacted blockchain right away, but they wasted my time. I then looked for help elsewhere and was directed to speak with a bitcoin professional who helped hunt down and recover my bitcoins for a charge. After the job was finished, I was more than happy to pay more. I’m glad I got help, and I want to urge you to contact recoveryhacker101@gmailcom.
BITCOIN RECOVERY TESTIMONY
Few weeks ago, I found myself in a heartbreaking situation—I’d lost €186,000 to a fake cryptocurrency trading platform. I was drawn in by the promise of easy profits, convinced I could earn 15% daily. What started as a hopeful investment quickly turned into a financial nightmare, leaving me struggling to pay my bills. Feeling desperate and overwhelmed, I confided in a close friend. Thankfully, they introduced me to the incredible team at JetWebHackers. I was skeptical at first, but their professionalism and understanding put me at ease. They worked quickly, and within just 48 hours, they managed to track down those scammers and recover my funds.I can’t express how relieved and grateful I feel. If you find yourself in a situation like mine, I wholeheartedly recommend reaching out to JetWebHackers. They truly changed my life!
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com
WHATSAPP: +1 (505) 428-8792
BITCOIN RECOVERY TESTIMONY
Few weeks ago, I found myself in a heartbreaking situation—I’d lost €186,000 to a fake cryptocurrency trading platform. I was drawn in by the promise of easy profits, convinced I could earn 15% daily. What started as a hopeful investment quickly turned into a financial nightmare, leaving me struggling to pay my bills. Feeling desperate and overwhelmed, I confided in a close friend. Thankfully, they introduced me to the incredible team at JetWebHackers. I was skeptical at first, but their professionalism and understanding put me at ease. They worked quickly, and within just 48 hours, they managed to track down those scammers and recover my funds.I can’t express how relieved and grateful I feel. If you find yourself in a situation like mine, I wholeheartedly recommend reaching out to JetWebHackers. They truly changed my life!
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com
WHATSAPP: +1 (505) 428-8792
Hello, my name is Carrie Kilman from Birmingham, UK. Last month, my fiancé broke up with me, leaving me devastated. I spent weeks agonizing, crying, and feeling guilty, sinking into the lowest point of my life. I was so overwhelmed by stress and depression that I feared for my health. Desperate for a solution, I searched online and discovered a powerful spell caster named Dr. Peter, known for solving relationship problems. After reaching out to him and explaining my situation, he assured me that my fiancé would return within 24 hours. To my amazement, my fiancé called, apologized, and wanted us to be together again. Thanks to Dr. Peter, we’re now happily reunited. If you need help, contact Dr. Peter at drpeterspellcaster21@gmail.com or WhatsApp +1 (646) 494-4360. You can also visit his websites:
https://drpeterspellcaster.wixsite.com/my-site-1
https://drpeterspellcaster.mystrikingly.com/