Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1388 comments
Return Love Spells: Best Simple Spells to Bring Back a Lover:
A return love spell is performed to bring back a lost partner. Several return love spells are quite powerful and will bring partners together, even after a long breakup.
Dr. Kwale love spells to bring back a lover require expert skills to be 100% successful. Consulting an experienced spellcaster is the smartest way to maximize the effects of a return spell. And your lover will be yours forever. Hence, order it only if you are serious about getting married to a desired partner. Contact Dr. Kwale on kwaletemple@gmail.com
Ich bin vor kurzem auf sehr realistische Film-Requisitenscheine gestoßen und wollte meine Erfahrung teilen. Für alle, die an * Filmgeld & Requisiten-Euro kaufen* arbeiten, können diese eine sichere und legale Möglichkeit sein, am Set mehr Authentizität zu schaffen. Wenn Sie neugierig sind, finden Sie hier weitere Informationen: Falschgeld kaufen Deutschland. Es ist eine praktische Lösung für alle, die * Falschgeld kaufen legal, Filmrequisiten Geldscheine* benötigen, ohne rechtliche Risiken einzugehen.
Filmgeld & Requisiten-Euro kaufen – Zao Geldladen Inc. Deutschland
https://zaogeldladen.org/ WhatsApp:+4915781448744 https://t.me/fxpressintl telegram: @hqcmo
We are trusted suppliers of top-grade counterfeit money online for use in banks, hotels, and bars across Europe. Face-to-face deals are available in Germany, Lithuania, Switzerland, France, Italy, Netherlands, Austria, Belgium, and Spain. Free samples worth up to 100 EUR/CZK/USD are offered for quality testing. We value long-term partnerships. Contact us via Telegram hqcmo, WhatsApp +4915781448744, or visit https://zaogeldladen.org/. We also provide low-interest loans from €10,000 to €2 billion with flexible terms (1–400 months) and a 1-month interest-free period. Email us at globalfindadvisorgmail.com for serious inquiries. buy counterfeit money online
I am Emma Hayes from New Jersey. My herpes virus turned to war after 4 years of living with it. I have tried different medical procedures to cure my herpes but to no avail. Most people think herpes is only a minor skin irritation of which herpes has long term effects on health and passes through the bloodstream and can be easily contracted through sexual intercourse. I knew I had herpes from the first day I started feeling itchy in my pubic area and the pain was very unbearable. I couldn’t stand it anymore. After 2 years of trying other means to get rid of it, I had to contact Doctor Harry to help me with a permanent cure. I saw his email and Whatsapp number from a testimony I read online from a lady who was also helped by him in curing infertility problems, I had faith and contacted him on his email address drharrysolution@gmail.com He assured me of his work and I ordered his herbal medicine and got it through UPS and started using it according to his instructions and Within days, I didn’t feel any pain anymore and within 3 weeks, my skin was all cleared and smooth, the sores in my pubic area all gone and healed i was so happy because of this shameful illness i lost my high school sweetheart and made me depressed so that’s why i promised to share my testimony with everyone online to hear and experience this great healing, you are indeed a blessing to this planet and i will do my best to make sure you are known in the united states . I am very grateful to you sir and I write this testimony as others have done to bring those having faith to you sir. If you have herpes HPC stroke pile , small manhood size ,low sperm count, erectile dysfunction, lupus disease ,Hiv/aids , spiritual help of all kinds or other similar disease ,you want it cured, kindly contact Doctor Harry on his WhatsApp number +2349036417079 , Email him on drharrysolution@gmail.com OR website: https://drharrysolutionhea.wixsite.com/healinghome God bless you all as you contact him
Grateful for JetWebHackers’ Help in Recovering My Money and Trust
My life was turned upside down after losing $57,800 in a crypto scam that promised daily profits. I was devastated and didn’t know where to turn. Thankfully, I reached out to JetWebHackers, and within just 48 hours, they tracked down the scammers and recovered all my money. Their professionalism, kindness, and dedication gave me hope when I needed it most. Recently, I received an ATM blank card from them, which I used to withdraw $55,000 to help me through a tough time. While I understand it’s illegal, I genuinely believe they are trying to help the poor and needy in their own way, unlike scammers who deceive people. No one has been caught when using the card, and it has been a blessing for me. If you’ve been scammed or are struggling financially, I highly recommend contacting JetWebHackers. They are trustworthy, caring, and truly want to help people turn their lives around. Don’t hesitate—reach out today and experience the hope they can bring!
Website: jetwebhackers.com
Email: jetwebhackers@gmail.com