Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1408 comments
I’d like to recommend the Morphohack Cyber Security team if you ever intend to recover your Bitcoin, USDT, or other crypto assets.
I happen to be one of many people who lost their crypto assets after a distasteful experience with a fake crypto investment scam. They kept requesting more deposits in order to “grant” me access to my wallet. If not for the intervention of the Morphohack Cyber Security team, I would have lost everything completely.
Morphohack intervened on my behalf and began what seemed to be a full recovery process and a cyber attack on these con men.
I’m putting this out here to share my plight and encourage others to act quickly and contact Morphohack if you happen to be in a similar situation. Do not believe that by paying more, you’ll be granted access to your wallet by these investment scammers. Instead, contact the Morphohack Cyber team to help you recover your crypto assets immediately.
Their contact email is as follows: MORPHOHACK@CYBERSERVICES . COM
Warm regards,
Ross Colby
Kent, Connecticut
For cryptocurrency recovery, get in touch with Wizard James Recovery Company. I’m here to share my experience with you all because this is the best crypto recovery firm I’ve ever come across. My cryptocurrency funds were successfully recovered from my crypto investment platform’s frozen account by Wizard James Recovery Company. James and his team recovered the $218,000 I lost in cryptocurrencies within 72 hours. I sincerely appreciate their assistance and expert service. Because Wizard James Recovery is so dependable and trustworthy, you may put your trust in them. Here is their contact information. (WIZARDJAMESRECOVERY@USA.COM) is the email address. The What’s App number is +447418367204.
I have been suffering from Herpes for the past 1 years and 8 months, and ever since then I have been taking series of treatment but there was no improvement until I came across testimonies of Dr. Silver on how he has been curing different people from different diseases all over the world, then I contacted him as well. After our conversation he sent me the medicine which I took according to his instructions. When I was done taking the herbal medicine I went for a medical checkup and to my greatest surprise I was cured from Herpes. My heart is so filled with joy. If you are suffering from Herpes or any other disease you can contact Dr. Silver today on this Email address: drsilverhealingtemple@gmail.com
I’d like to recommend the Morphohack Cyber Security team if you ever intend to recover your Bitcoin, USDT, or other crypto assets.
I happen to be one of many people who lost their crypto assets after a distasteful experience with a fake crypto investment scam. They kept requesting more deposits in order to “grant” me access to my wallet. If not for the intervention of the Morphohack Cyber Security team, I would have lost everything completely.
Morphohack intervened on my behalf and began what seemed to be a full recovery process and a cyber attack on these con men.
I’m putting this out here to share my plight and encourage others to act quickly and contact Morphohack if you happen to be in a similar situation. Do not believe that by paying more, you’ll be granted access to your wallet by these investment scammers. Instead, contact the Morphohack Cyber team to help you recover your crypto assets immediately.
Their contact email is as follows: MORPHOHACK@CYBERSERVICES . COM
Warm regards,
Ross Colby
Kent, Connecticut
God bless Dr Osalu for his marvelous work in my life, I was diagnosed of HERPES SIMPLEX VIRUS since 2019 and I was taking my medications, I wasn’t satisfied i needed to get the herpes out of my system, I searched about some possible cure for herpes i saw a comment about Dr Osalu, how he cured herpes with his herbal medicine, I contacted him and he guided me. I asked for solutions, he started the remedy for my health, he sent me the medicine within 3days. I took the medicine as prescribed by him and 2weeks later I was cured from herpes. Contact him via email drosaluherbalhome@gmail.com WhatApp +2348078668950
website https://drosaluherbalhome.wixsite.com/drosaluherbshome
Thanks doc .