Life has a way of giving you a massive reality check at times though doesn't it?
On Friday I was told that Val Franklin had passed away, then on Sunday we found out that Rob Burrow had lost his battle against the disease. A stark reminder that at present there is only one winner when MND is involved.
I'm guessing that some of you reading this may well have known Val and so are fully aware of the lovely person she was. I first met her next to the 18th green at Rushcliffe Golf Club, as we waited for a group of ladies to finish a '72 holes in a day challenge'. Raising money for Stand Against MND. Val was one of the first people I'd met in person who also had MND. At that time I was visibly more advanced in my progression than Val, in my powered wheelchair and reliant on my ventilator. A casual observer would never have known we had the same illness.
Val would later tell me that she found that first meeting quite difficult. Looking at me was frightening, like seeing what the future could hold. To their enormous credit, Val and her husband Pete agreed to come over for a cup of tea to pick my brains about my journey. Nobody ever warns you about the mountains of admin that come with a degenerative disease, and if you don't keep up with it at your end you might not get the help you need. I'd been through a lot of it and I hope had a few useful tips.
Opening up and wanting that information takes immense courage. It shows in my view an acceptance of your circumstances, and a determination to make the most of the time you have. I'm so pleased that Val and I shared that outlook.
You would never have known what we were discussing based on the amount of laughter in the room. I was left with that familiar feeling of confusion as to why MND seems to attack such lovely people.
Val and her family became and remain stellar supporters of the charity, and I would frequently see them at the monthly golf club quizgo (highly recommended if you enjoy trivia and are of course willing to donate any winnings to a local charity...)* Val always had a smile and a chat whilst Pete always had a one liner at the ready.
*Not compulsory
Over time we saw each other less and less as we both found spending time out and about more challenging, until I heard the news last Friday. RIP Val, it was lovely to know you. All my love to the Franklin family.
A life with MND, particularly when you are integrated with patient communities on line and in person, means that losing people is tragically a frequent occurrence. A consistent reminder of your own proximity to death.
So how to react to such sobering news on such a regular basis? I remember I am alive. I have opportunity. I love. I laugh, I strive, I experience. In Vals honour, in Robs honour, for all the fallen warriors I've lost along the way,
I will live the most significant life I can muster.
Nothing else matters
1650 comments
Hello African Coffee lovers.
We have coffee beans ready for export
Location : Kampala Uganda Licensed warehouse
Volumes : 1500mtns of both Arabic and Robusta
Types:
Arabic AA
Arabic AB
Robusta screen 12
Robusta screen 15
Robusta screen 18
Traige BHP
M.c 12.5%
With 1000mtns of FAQ for a continuous supply
Mode of payment: FOB to Mombasa/Dares salaam, FOT Kampala X-whare house price and CIF.
Note: we deliver any volumes to any part of the world through Shipping or airfreight
Fore more information Whatsapp or contact +27719755564.Email,paullubega412@gmail.com
Looking for top-quality Ugandan robusta and Arabica coffee beans? Contact 27719755564. Bold, flavorful, and perfect for roasting and retail. Wholesale inquiries welcome – let’s do business!" WhatsApp27719755564,email,paullubega412@gmail.com
:+27736310260 SSD Chemical Solution Chemical Solution for Cleaning Black Money
SSD Chemical Company SSD Chemical Solution for Cleaning Black Money
SSD Preserving Company SSD Chemical Solution for Cleaning Black Money
Active Powder Activation Powder for Cleaning Black Notes
Black Money Cleaning Clean Black Money
Best SSD Solution Clean Black Notes
Cleaning Black Notes Cleaning Black Money
Name:Dr Dan
Email:embalmingpowder@gmail.com
https://globalssdchemicalcompanysolutionforcleaning.wordpress.com/
http://ssdchemicalmetric.blogspot.com
Business Phone Number: :+27736310260
WhatsApp Number:+27736310260
If you are reading this ,I hope it finds you well,My name is Pollin Collew. My relationship with my boyfriend was the best love I have ever experienced. It was a bit toxic though as I wasn’t in the best of places just coming out of my divorce. But our souls were so beautiful together. The good were amazing, we were friends but the challenging times were hard. We were together on and off for nine and half years. We got married at the end we had problems and I freak out and thought I was locked in another toxic marriage and broke it off we separated ways i dedicated some time to myself doing therapy and soul cleansing when I began to stabilize and find my self and love life again and I realized what a gift he was,I still love him however now he will not have anything to do with me again. I missed him. I have tried to move on from him but my heart won’t let me so I reached out to Abdul Basser who helped me fix our problems and brought us back together. I’m grateful I believe he can help you too contact him through these options. +27717403094 or visit his website for more services,https://africanancientspells.mystrikingly.com/
https://streamable.com/41l6w0
https://uaeplusplus.com//pages/registerNew/companyRegistered.aspx?ID=zhSdCzxgmk8=
Thanks,Abdul Basser
+27730066655 HOW TO JOIN ILLUMINATI AND GET RICH IN JOHANNESBURG SOUTH AFRICA CONTACT PROF AAFA If you have the desire and a Dream to join the Illuminati from anywhere in the World; Call us on our Cell phone Number +27730066655 You will be required to answer the following questions over the phone before we consider your request for membership 1. What is your name? 2. How old are you? 3. What do you do for a living? 4. How many time have you ever tried to join Illuminati? 5. Why do you really want to join our legacy? How to Join Illuminati wealth The first stage is usually the Initiation Stage. Immediately after the Initiation, new members are given a Money Awards equivalent to US $1,500,000 to reorganize their Lives in-order to fit the class and status of the club members. Others Money Awards are communicated after the Initiation stage. However this is the basic requirements needed during the Initiation Stage. Joining Members around South Africa will join with Membership Initiation Fees: R 2,000.00 Official Agent No: +27730066655 Once you make the Payment and after filling and submitting the Registration Form, you are then invited to the Illuminati Lodge where you undergo the Initiation Ceremony. Seven days after the Initiation Ceremony, you are then Invited to an Awarding Ceremony where you are rewarded with US $2,500,000 This Money is to enable you change your Lifestyle and your standards of Living so as to match with that of the Legacy Members. Money Awards after Initiation: US $2,500,000 NB: Illuminati International Provides equal opportunity to all joined members. We aim to empower our members join illuminati +27730066655