Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
1521 comments
I have had tough and horrible experiences in my past relationships and I indeed waited till I met my husband and after we met, we fell in love and got married. After two years of our Union, he changed and started acting weird and eventually left me and our son. I Did all I could to get him back but all was fruitless. I came in contact with the comments and what everyone was saying about Dr Isikolo. I reached out to him and he responded and gave me his best effort and support to make my marriage work again. He was the one who made it known to me that my husband was taken from me by another woman and he cast a love reunion spell that reunited us back together and he came back home to me and my boy. Indeed no one out there has lied about Dr Isikolo and his good works. My husband came back home 48 hours after he did the work for as promised. Reach out to him now and be assured he will help you. You will have to review/contact him via his page: https://isikolo-temple.com or text him on WhatsApp +2348133261196
My life is full of happiness because Dr Lukas make me to be happy. What happened to me is not what I can keep only to myself but to also tell the world so that those that have any problem with their relationship or marriage will get their love ones back and been happy once again. I and my lover had some serious issues which leads to our break up, since after then my life has never been the same, I tried all method to get him back. but they were just waste of effort and waste of time. But one day during my search on the internet, I came across someone testimony about Dr Lukas. I contact him and explain my problem to him am still very much surprise till now how he was able to bring back my lover within 48 hours. With this great thing that happened in my life I decided to tell the whole world about this great man called Dr Lukas. if you need help to bring back your ex-lover/ex-husband or you want to have your baby please kindly contact him via email him: okukutemple@gmail.com and also his WhatsApp number +44-7469341745
When people hear about crypto scams, their typical reaction is disbelief, as if it only happens to careless or reckless individuals. Before I share my experience, if you’re in need of a reliable crypto asset and fund recovery service, their contact information is listed below.
E-Mail: Morphohack@cyberservices .com
My family fell victim to a crypto investment scam that wiped out nearly everything we had worked so hard to build. We lost $407,000 worth of USDT and Bitcoin earlier this year, funds that represented years of savings, hard work, and dreams for the future.
It all began with what appeared to be a legitimate investment opportunity. We were contacted, or more accurately, targeted by individuals claiming to represent a well-established crypto trading platform. They were smooth, articulate, and came armed with all the hallmarks of a trustworthy financial institution. This led us to believe they were legitimate, and we began investing with them. Unfortunately, we soon discovered they were fraudsters. By the time we realized the truth, our investment had vanished. All communication ceased, and there was no way to reach them.
The story didn’t end there. While the emotional toll was immense, we were desperate for answers and reached out to everyone we knew who might be able to help. A family friend introduced us to a group called Morphohack, a team specializing in digital asset and cryptocurrency recovery. Their contact information is provided above.
Morphohack was professional, knowledgeable, and incredibly helpful throughout the entire process. After conducting their investigation, they successfully recovered our funds within a few days. Thanks to their meticulous documentation and coordination with the relevant authorities, we were able to reclaim the full $407,000.
Morphohack accomplished what we thought was impossible, and we are deeply grateful for their outstanding work and support
I have been suffering from Herpes for the past 1 years and 8 months, and ever since then I have been taking series of treatment but there was no improvement until I came across testimonies of Dr. Silver on how he has been curing different people from different diseases all over the world, then I contacted him as well. After our conversation he sent me the medicine which I took according to his instructions. When I was done taking the herbal medicine I went for a medical checkup and to my greatest surprise I was cured from Herpes. My heart is so filled with joy. If you are suffering from Herpes or any other disease you can contact Dr. Silver today on this Email address: drsilverhealingtemple@gmail.com
You guys have surpassed my expectations! James is seriously amazing and is doing everything to help my Fiancé and me, in1weeks my credit score went up 700 points and I can only imagine what is to come. Thank you for the excellent customer service and doing exactly what you all have set out to do! NO GIMMICKS OR BS with you guys.They carry out any kind of hacks You can reachout to them via ETHICAlhackers009 at gmail dot com or whatsapp +1 4 1 0 6 3 5 0 6 9 7