Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4582 comments
https://x.com/NP5230322012050/status/2064220369654100395?s=20
https://bsky.app/profile/thanabodee02.bsky.social/post/3mntid6h3qk26
https://Thanabodee168.raindrop.page/newza-71770360
https://mastodon.social/@Thanabodee168/116718568253187130
https://tooter.in/Thanabodee168/posts/116718584186458737
https://multy.me/yqZaP
Best Crypto Recovery Services Top firm to retrieve lost or Scammed Bitcoin Go to Zeus Crypto Recovery Services
Lost access to your crypto or been scammed? Zeus Crypto Recovery Services helps clients trace lost or stolen funds using blockchain analysis and forensic investigation. Our team assesses your case, tracks transactions, identifies suspicious activity, and coordinates with relevant platforms or authorities to recover your lost digital asset through a secure recovery process. Blockchain Analysis and Tracing: Zeus uses AI-powered analytics to track fund movements across wallets and blockchains
If you have been scammed, contact Zeus Crypto Recovery Services through their official website.
Our mission is straightforward: help individuals and businesses recover lost or stolen cryptocurrency. Whether you have been targeted by a crypto scam, pig butchering, an online romance scam, investment fraud, or a wallet breach, our dedicated specialists guide you through every stage of the recovery process. We are committed to helping you regain control of your digital assets and safeguard your financial future.
Do you Need Help?
WhatsApp number: +447353 848 036
Mailbox support@zeusrecoveryservices.com
Official website https://zeusrecoveryservices.com
https://x.com/NP5230322012050/status/2064220369654100395?s=20
https://bsky.app/profile/thanabodee02.bsky.social/post/3mntid6h3qk26
https://Thanabodee168.raindrop.page/newza-71770360
https://mastodon.social/@Thanabodee168/116718568253187130
https://tooter.in/Thanabodee168/posts/116718584186458737
https://multy.me/yqZaP
https://x.com/NP5230322012050/status/2064220369654100395?s=20
https://bsky.app/profile/thanabodee02.bsky.social/post/3mntid6h3qk26
https://Thanabodee168.raindrop.page/newza-71770360
https://mastodon.social/@Thanabodee168/116718568253187130
https://tooter.in/Thanabodee168/posts/116718584186458737
https://multy.me/yqZaP
THE BEST AND FASTEST BTC / ETH / USDT / WALLET / RECOVERY EXPERT – META TECH RECOVERY PRO
I honestly didn’t know where to turn after I became a victim of an online scam. Losing such a large amount of money was overwhelming, and I wasn’t sure what steps to take next.
I decided to contact META TECH RECOVERY PRO, and they took the time to listen to my situation, go through the information I had, and explain the process to me in a way I could understand.
What stood out to me most was their communication and attention to detail. They kept me informed and answered my questions throughout the process, which gave me much more confidence during a very stressful time.
I’m truly grateful for the support and assistance I received. The experience also taught me how important it is to act quickly, keep all relevant information and evidence, and carefully research anyone offering recovery services.
If you’ve been affected by an online scam or cryptocurrency fraud, I would recommend doing your own due diligence before choosing a recovery service.
META TECH RECOVERY PRO
Email: Metatech@Writeme.Com
Telegram: @metatechrecoveryproteam