Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
76 comments
When I lost more than $187,750 USD in bitcoin, I found myself in a challenging situation, I was inconsolable and believed I had reached my lowest point, I had no hope of getting my invested money back. All that changed until I discovered Mr. james on redit a genius experienced hacker my hope to life was restored. He intervened and helped me get all my money back within a short period of time. Their services are well recommended and they ensure maximum satisfaction to their clients. You can contact them via Email: jamesmckaywizard at gmail dot com or WhatsApp +31657446248. Kindly reach out to them and thank me later.
I never knew that my wife Had a son out of wedlock without informing me about it for almost 12years of our relationship until I noticed she picks strange calls on her phone and send money to a strange man. As much as it is inappropriate to spy on your spouse it’s also necessary to be sure that your relationship is in perfect shape. All my gratitude goes to this Genuine Genius Hacker -:jamesmckaywizard who got to clone/hack her phone completely to the extent that I had a clone of her phone and could read all her whatsapp & amp;Facebook message, call logs text message and GPS to know where and what she is always up to. I’m really grateful for this great experience, it really helped me find out the truth about my marriage. Mr. James and his team also specialize on hacking and recovery of money/bitcoin lost to scammers online, kindly send a message if you’re experiencing any of these issues to jamesmckaywizard at gmail dot com or WhatsApp +31657446248…. Kindly reach out to them and thank me later.
A friend and I invested over dolls 500,000 in a cryptocurrency platform, excited about the opportunity until our entire investment vanished without a trace. We were completely caught off guard and had no idea what had gone wrong. After discussing the situation with a trusted colleague, they recommended Gary, a team of crypto recovery specialists. Gary investigated and quickly uncovered that the exchange was a fraudulent operation run by scammers. They not only explained how the scam worked but also assured us that recovering our funds was possible. True to their word, they successfully retrieved our stolen crypto and even identified those responsible. Their expertise, professionalism, and dedication were truly impressive. If you or someone you know has been affected by a crypto scam, I highly recommend reaching out to Gary. Their ability to recover lost funds and track down fraudsters is second to none. You can contact them via quickcryptorecoveryonline AT g mail com
Can lost Bitcoin be Found or Retrieved?
Generally speaking, whether
lost bitcoin can be found or not depends on how it was lost. Considering
the quantity of missing cryptocurrency out there, people have begun
offering services to help recover lost bitcoin. These include data
recovery specialists, but you need a professional recovery expert like[
COINSRECOVERYWORLDWIDE@GMAIL.COM] to help you get back your lost bitcoin.
Contact them to
recover lost bitcoin, bitcoin cash, as well as all other forms of
cryptocurrency. And you can be sure that no matter how long it has been
lost, you will still get your bitcoin worth.EMAIL [COINSRECOVERYWORLDWIDE@GMAIL.COM],whatsapp [+1 447-285-9233]
THE BEST COMPANY THAT CAN HELP YOU RECOVER YOUR LOST BITCOIN BACK/WIZARD LARRY RECOVERY
Hello, I wholeheartedly endorse wizardlarry(@)mail.com for whatever hacking requirement you may have, including improving school grades, recovering bitcoin, repairing credit scores, hacking social media (Facebook, Instagram, Twitter, WhatsApp, Tiktok, etc.), removing criminal records, etc. For all of your hacking requirements, you may rely on them.
WhatsApp… +447 (311) 146 749
Wizardlarry@mail.com
Web…larrywizard43.wixsite. c o m/wizardlarry