Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
1521 comments
I strongly advise using this very reputable Recovery Hacker101for anyone looking to recover any type of crypto currencies assets from online frauds, Wallet hackers, or BTC transferred to the wrong address. After I lost a lot of money to those terrible con artists posing as recovery specialists, this recovery specialist was great in aiding me in getting my Bitcoin back. After I gave Recovery Hacker101 the relevant details and prerequisites, a total of 1.4170 BTC was eventually recovered. I was overjoyed that I had been able to recover this much after having lost even more to the problems I had dealt with before discovering Recovery Hacker101. So don’t hesitate to get in touch with recoveryhacker101 AT gmail com. if you find yourself in this scenario and need help recovering from an online bitcoin scam
I have had tough and horrible experiences in my past relationships and I indeed waited till I met my husband and after we met, we fell in love and got married. After two years of our Union, he changed and started acting weird and eventually left me and our son. I Did all I could to get him back but all was fruitless. I came in contact with the comments and what everyone was saying about Dr Isikolo. I reached out to him and he responded and gave me his best effort and support to make my marriage work again. He was the one who made it known to me that my husband was taken from me by another woman and he cast a love reunion spell that reunited us back together and he came back home to me and my boy. Indeed no one out there has lied about Dr Isikolo and his good works. My husband came back home 48 hours after he did the work for as promised. Reach out to him now and be assured he will help you. You will have to text him on WhatsApp +2348133261196 or go through his webpage: https://isikolo-temple.com
As a seasoned business owner, I’ve always approached investments with caution. So when I decided to diversify into cryptocurrency, I researched thoroughly and chose what looked like a legitimate platform. The site was polished, the interface smooth, and the reviews convincing. I invested $82,000 and began trading. For a few days, everything seemed normal my account showed gains, and I received regular updates. But when I tried to withdraw, the problems started. My request was delayed, my account was locked, and support went silent. Soon after, the entire website vanished.I felt blindsided. A colleague referred me to Astraweb, a firm that recovers stolen crypto. I contacted them the same day and was quickly connected with a recovery expert. They reviewed my case, analyzed the transactions, and confirmed I’d been targeted by a known scam network. Astraweb’s team began tracing my funds through the blockchain. Despite attempts to hide the trail using mixers and multiple wallets, they located the final destination a wallet on a small exchange overseas. Within two days, Astraweb submitted a legal freeze request. Thanks to their swift action and legal network, my entire $82,000 was recovered within five days. I was relieved and impressed. Astraweb was fast, professional, and transparent throughout. They also helped me secure my wallets and avoid future scams.
If you’ve been scammed by a fake exchange, don’t wait. The faster you act, the better your chances.
Contact Astraweb: Astraweb@cyberdude(.)com
U svojoj ulozi radim s odjelima za osiguranje, obradu, financiranje i drugim odjelima. Svaki od ovih timova dolazi s ogromnim bogatstvom znanja. To mi omogućuje da steknem više znanja o svojoj ulozi i pružim članovima bolje iskustvo. Dobijte svoju financijsku slobodu od nas danas. Dugujete li, trebate zajam, brz i pouzdan, ovo je mjesto za dobivanje vjerodostojnih zajmova. Nudimo poslovne zajmove, studentske zajmove, stambene zajmove, osobne zajmove itd. Kamatna stopa zajma od 3%. Kontaktirajte nas danas. Imate priliku dobiti novčani zajam u iznosu od 2000 (€$£) – 5.000.000 – 100.000.000 (€$£) s mogućnošću otplate od 1 godine do 45 godina bez jamstva nekretnine.
Viber: +385915608706
WhatsApp: +385915608706
E-pošta: hybridalliantcreditunion@gmail.com
© 2025 Alliant Credit Union
11545 W. Touhy Ave., Chicago, IL 60666
Usmjeravanje #271081528
U svojoj ulozi radim s odjelima za osiguranje, obradu, financiranje i drugim odjelima. Svaki od ovih timova dolazi s ogromnim bogatstvom znanja. To mi omogućuje da steknem više znanja o svojoj ulozi i pružim članovima bolje iskustvo. Dobijte svoju financijsku slobodu od nas danas. Dugujete li, trebate zajam, brz i pouzdan, ovo je mjesto za dobivanje vjerodostojnih zajmova. Nudimo poslovne zajmove, studentske zajmove, stambene zajmove, osobne zajmove itd. Kamatna stopa zajma od 3%. Kontaktirajte nas danas. Imate priliku dobiti novčani zajam u iznosu od 2000 (€$£) – 5.000.000 – 100.000.000 (€$£) s mogućnošću otplate od 1 godine do 45 godina bez jamstva nekretnine.
Viber: +385915608706
WhatsApp: +385915608706
E-pošta: hybridalliantcreditunion@gmail.com
© 2025 Alliant Credit Union
11545 W. Touhy Ave., Chicago, IL 60666
Usmjeravanje #271081528