Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2363 comments
Dark Spell Removal Expert in United States of America (WhatsApp) Contact +27765274256 in Florida, Texas, Ohio, Nevada, Colorado, Kentucky, California, New York, Michigan, Philadelphia
Obeah Protection, Djinn Removal ☎ +27765274256
Powerful Protection Spells For Evil Eye, Black Magic, Bad People, Jinns And Jealousy Remove Hex Call ☎ +27765274256 Return To The Sender | Protect Yourself Call ☎ +27765274256
Powerful Protection Spells For Evil Eye, Black Magic, Bad People, Jinns And Jealousy Remove Hex Call ☎ +27765274256
Rituals of Protection – Black Magic & All Negative Elements – Protection Energy Call ☎ +27765274256
Circle An All-in-One Protection From Black Magic, Evil Eye, Curses Call ☎ +27765274256
Best Evil Eye Protection and Removal Services Online Call ☎ +27765274256
Best Black Magic Protection and Removal Services To Buy Online Call ☎ +27765274256
Protection From Black Magic. #BlackMagic #Spells #Protection
Protection Against Evils | Astrologer Call ☎ +27765274256
Protect Yourself From Being Cast By Black Magic Call ☎ +27765274256
Protection Magic: Spells For Defense Call ☎ +27765274256
Protection From Magic & The Evil Eye Call ☎ +27765274256
Protection From Evil Eye, Jealousy, Jinns, Negative People Call ☎ +27765274256
Protection From Black Magic and Spirits Call ☎ +27765274256
Protection From The Power of the Evil Eye Call ☎ +27765274256
Black Magic Curses Call ☎ +27765274256
Black Magic Evil Eye The Effects At Home Call ☎ +27765274256
Black Magic Remover: Remove Dark Magic & Dispel Black Magic (Frequency to Cleanse Black Magic) Call ☎ +27765274256
Evil Eye Protector | Cleansing Spell | Break Curses and Hexes | Remove Black Magic and Evil Eye Welcome To Evil Eye Protector Meditation Call ☎ +27765274256
Evil Eye Protection Remove All Black Magick Spells, Hexes Call ☎ +27765274256
Evil Eye, Black Magic Cure Protection Duas Call ☎ +27765274256
Remove Black Magic and Reverse Curses Call ☎ +27765274256
Remove Hex Remove Spell Removal Remove Black Magic & Bad Energy Call ☎ +27765274256
Remove Black Removal; How to Remove Black Magic Effectively? Call ☎ +27765274256
Remove Black Removal Spell Instructions Call ☎ +27765274256
Remove Hex Remove Spell Remove Remove Black Magic & Bad Energy Call ☎ +27765274256
Remove and Undo a Curse Spell, Voodoo or Evil Eye Call ☎ +27765274256
Remove Evil Eye and Black Magic Call ☎ +27765274256
Remove Evil Eye, Curses, Charms, Spells and Magic Call ☎ +27765274256
Remove All Black Magic Spells Call ☎ +27765274256
Powerful Black Magic Removal and Evil Banishment Spell Casting Protect Yourself Call ☎ +27765274256
Remove Black Magic and Protect Yourself Call ☎ +27765274256
Block The Evil Eye and Remove a Curse Call ☎ +27765274256
Return To The Sender | Protect Yourself Call ☎ +27765274256
Dark Magic Removal Call ☎ +27765274256
Dark Spells Rituals: Black Magic Curse Cleansing Call ☎ +27765274256
Breaking Witchcraft Spells Attacks
Voodoo Money Spells Voodoo Money Spells Instant Money Spells for Wealth and Prosperity.
African Magic Powers of Protection from Black Magic
African Traditional Healer | Powerful Traditional Healer
African Native Healer | Voodoo Magic Spell Caster
Black Magic: Religion and The African American Conjuring
Stop Divorce Today | Effective Return Lost Love Spells | Black Magic & Curse Removal
Black Magic to Make Her Fall in Love |
Fast Black Magic,Evil Spells,Curses Removal & Protection
#healer #native #sangoma #psychic #spiritual #voodoo #medium #witchdoctor #spellwork #spellcaster #obeah #blackmagic #whitemagic #muthi #fortuneteller #palmist #exlove #exlover #exlovers #exloveback #exlove #africanvodoospells #astrologer #astrology #exloveback #lostloveback #lostlovespell #lovespells #love #lovespells #blackmagic #spiritual #voodoo #psychic #psychicreader
Call Sheikh Hussein
Contact Me on Telegram/Botim/Signal/WhatsApp ☎ +27765274256
Add Me on SIGNAL “@sheikhhussein.20”
Add Me on TELEGRAM “@sheikhspells”
E-Mail: sheikhhussein@protonmail.com
HIRING A RECOVERY COMPANY TO RETRIEVE LOST BITCOIN WALLETS, FUNDS, AND OTHER CRYPTOS
I rated this company as the most astute and reliable in terms of recovering cryptocurrency assets and bitcoin wallets because of their stellar customer service and impressive track record. They tracked down and gave me back the money I was stolen from, as promised. You can reach WIZARD LARRY RECOVERY EXPERTS by
Email {Wizardlarry@mail .co m}
Email {info@wizardlarryrecovery .co m}
Website {wizardlarryrecovery .co m)
I really appreciate Dr OGEDEGBE the powerful spell caster who help me cast a powerful love spell that brought my ex husband within 48hours after providing him all the details he required from me and after the casting of the spell my ex husband came back to apologize that i should accept him and this will never happen again, for a long time now but since i met this spell caster online my story has change for good contact him via email dr.ogedegbe6@gmail.com or whatsapp +2349121737553. All thanks to Dr OGEDEGBE for the good work…
Dr Harrison Can cure HIV/AIDS,Herpes,HPV,Diabetes,Fibroid,Cancer and many other Virus and Diseases.He cured me of Herpes virus and HPV that has been in my system for Five years plus!I am 100% Positive, there is nothing relating to Spiritual matter, Problems,Sicknesses and Diseases he wouldn’t have a solution too..He would be able to do the same with his Spell Powers and solve your Problems!
Whats app No/Call +234 8188 076272He also Helped my younger sister conceive and had a son after 5 years of marriage.
He’s really a great man.
Contact him on his
EMAIL:~ J.HARRISONSPELLHOMES@GMAIL.COM
WEBSITE- https://drharrisonspellhomes.weebly.com/.
My story changed when I met Chief Ade through Elizabeth Traffords post on how she won the lottery with the help of Chief Ade. Spell is still very effective, I was convinced after using the numbers provided by Chief Ade when I told him I wanted to win the lottery because of the post I saw online about his winning numbers, he said he has helped a lot of people and I won’t be an exception to that, he put in work for me after I provided the necessary Informations he requested from me, after then he gave me the numbers to play after 24hours and directed me on how to play and when I should play them which I did, I won £5.2 million pounds, I’m excited that my dream has come through, Dr Ade is the best when it comes to winning the lottery with spell and prayers Email: chiefadespellhome@gmail.com WhatsApp +234 901 380 6328 thank you .