Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2214 comments
Hi guys, my name is Sarah Flower, I ended my marriage in 2024 due to suffering from domestic abuse at the hands of my husband. Currently, he is trying to reconcile with me after finding out that I won a Jackpot Lottery Prize of $96 million. Fortunately, I received assistance online from Lord Meduza, the great spell caster who has successfully aided many individuals worldwide in winning the lottery. I reached out to him about my circumstances and expressed my desire to win the lottery. After casting the spell, he provided me with the exact numbers to play. Now, my husband wants me back, fully aware of my $96 million lottery win, but I told him no; I will not return to him. I am incredibly grateful to Lord Meduza, and if you find yourself facing a tough situation, I recommend that you reach out to him as he’s the best in his field. You can contact Lord Meduza via Email: lordmeduzatemple@hotmail.com …. OR …. WhatsApp: +1 807 907 2687.
Good luck…
https://www.paiklangna.com
https://diamondlnwpg168.com
https://diamondlnwpg168.com/บทความ
https://diamondlnwpg168.com/pgslot-no-1
https://diamondlnwpg168.com/contact
https://github.com/EllanJiang/GameFramework/issues/76
Have you gotten yourself involved in a cryptocurrency scam or any scam at all? If yes, know that you you are not alone, there are lot of people in this same situation. I was a victim of a cryptocurrency scam that cost me a lot of money. This happened a few weeks ago, there’s only one solution which is to talk to the right people, if you don’t do this you will end up being really depressed . I was really devastated until i sent a mail to an expert team who came highly recommended – (recoveryhacker101 @ Gmail . Com) . I started seeing some hope for myself from the moment i sent them a mail. The good part is they made the entirely process stress free for me, i literally sat and waited for them to finish and i received what i lost in my wallet.
https://www.paiklangna.com
https://diamondlnwpg168.com
https://diamondlnwpg168.com/บทความ
https://diamondlnwpg168.com/pgslot-no-1
https://diamondlnwpg168.com/contact
https://github.com/EllanJiang/GameFramework/issues/76
Yes, Lost Crypto Recovery is Possible within 72hrs With Lost Recovery Masters
My name is Dr Egor Barnet , and I have been working so hard for the last 18 years, and just last week, I was on the verge of suicide because I lost all 0f my savings - $58 million u$dt - but thankfully, (Lost Recovery Masters) They helped me recover all I had lost in less than 72 hours. You can get in touch with them to recover your lost crypto.
Contact info.
Email ( Lostrecoverymasters@gmail.com )
Whatsapp +44(7537)-105921