Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2214 comments
I thought the physicians says there is no cure for HSV 2!!! I am telling you today that Dr ahonsie cure HSV 2 with his herbal medicine and once you get cured you are cured forever it is never reversible, I have been suffering for this deadly disease called h HSV 2 for more than a 2years and lost all hope because my doctor says there is no cure for HSV 2. Brethren I saw a testimony on the internet on how Dr ahonsie cure HSV, Hapatitis etc with his herbal medication and an email and watsapp to contact him was also displayed, I thought this was joke but I decided to contact him and he replied telling me not to worry that my problem is over . Dr ahonsie sent me a herbal medication to drink for one month but only 2weeks I feel strange and I went to my doctor and he confirmed me negative. He can help you too. Contact him drahonsie00@gmail.com or whatsapp +2348039482367 https://drahonsie002.wixsite.com/dr-ahonsie https://www.facebook.com/drstellaherbalhome?mibextid=ZbWKwL
Hello Am From The UK , I want to write a little testimony about the good work of doctor Oyagu who cured me from Hsv 1 and 2 for just 2 weeks with his herbal medicine, I never believe I can be normal again and have a good life like others I always regretted the day I got diagnose with the virus, I was lost of hope when my doctor told me there is no cure for it but I keep thinking and thinking about my future, if I can have kids of my own well I am so grateful for my helper who get me cured with his herbal medicine, I go online in search of anything that can help me because I can’t deal with it forever so I found this doc Oyagu email on a blog of someone who was cured by him I quickly contact him for help and explain all my pain to him, he told me not to worry about it there is cure for real, I never believe until he send me the herbal medicine when I order for it and I have it within 4 days that is how I took the medicine for 2 week and the following week I go for test just to confirm I was 100% cured from this sickness what a miracle in my life I am so happy right now, you can also get in contact with him if you have such sickness through email address oyaguherbalhome@gmail.com or text him on WhatsApp , phone number +2348101755322 or visit his website https://oyaguspellcaster.wixsite.com/oyaguherbalhome if you are infected with HERPES virus or having any health problems you can contact Dr Oyagu and he will help you
https://movie24h.info/
https://movie24h.info/contact
https://movie24h.info/huayThai
https://medium.com/trenoiye/ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-รวมเว็บหวยออนไลน์-0861729ff258 https://medium.com/trenoiye/หวยออนไลน์-เว็บแทงหวย-24-ชม-เว็บตรง-ไม่อั้น-หวยไทย-หวยลาว-bbe345b22fcb
https://medium.com/gimiidadii/แนะนำ-10-เว็บแทงหวยออนไลน์-ที่ดีที่สุด-ได้แก่-77lotto-huay-ork-ufalotto-powerball-lotto-net-1a7c8c97d756 https://medium.com/gimiidadii/ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-รวมเว็บหวยออนไลน์-f945cb29c5e3
https://medium.com/gimiidadii/หวยออนไลน์-เว็บหวยออนไลน์-แทงหวย24-ไม่มีเลขอั้น-หวยไทย-หวยลาว-44ba32159cf9 https://medium.com/naafessaa/หวยออนไลน์-เว็บแทงหวย-24-ชม-เว็บตรง-ไม่อั้น-หวยไทย-หวยลาว-ac7a417cd69a
https://medium.com/naafessaa/ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-รวมเว็บหวยออนไลน์-93a833aaeead https://medium.com/naafessaa/️-️แทงหวยออนไลน์-24-ชั่วโมงแทงหวย24-เว็บแทงหวยยอดนิยม-ครบจบทุกหวยออนไลน์ง่ายๆ-acdc9c656847
https://medium.com/qavviikhan/แทงหวย24-เว็บแทงหวยออนไลน์อันดับหนึ่ง-ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-895b0f709624 https://medium.com/qavviikhan/ซื้อหวยออนไลน์เว็บไหนดี-10-เชื่อถือได้-จ่ายจริง-รวมเว็บหวยออนไลน์-68fc296d571d
https://medium.com/qavviikhan/แทงหวยออนไลน์-24-ชั่วโมง-หวยออนไลน์-ซื้อง่าย-เว็บแทงหวย-ตรวจหวยฟรี-24-ชม-cc0461e8c431 https://medium.com/shaniiibhi/หวยออนไลน์-ซื้อง่าย-เว็บแทงหวย-ตรวจหวยฟรี-24-ชม-b96efd2e8e51
Personal growth is important for achieving success in life. All these words were shared with me by Lord Meduza, who performed a spell reading for me and created a lottery spell that turned me into a lottery champion of $112 million here in Arizona. Within 48 hours of adhering to all of Lord Meduza’s divine instructions, he granted me the chance to use the divine lottery numbers to enter the lottery after I bought my ticket in Tempe. A week later, I was informed that I had become the fortunate Jackpot winner of the game, and this was all made possible by Lord Meduza. I kindly express my gratitude to him for his impactful words and actions. For a transformative opportunity, contact him via his
Email: Lordmeduzatemple@hotmail.com
Call/WhatsApp: +1 807 907 2687
God Bless You Meduza.
I’d like to recommend the Morphohack Cyber Security team if you ever intend to recover your Bitcoin, USDT, or other crypto assets.
I happen to be one of many people who lost their crypto assets after a distasteful experience with a fake crypto investment scam. They kept requesting more deposits in order to “grant” me access to my wallet. If not for the intervention of the Morphohack Cyber Security team, I would have lost everything completely.
Morphohack intervened on my behalf and began what seemed to be a full recovery process and a cyber attack on these con men.
I’m putting this out here to share my plight and encourage others to act quickly and contact Morphohack if you happen to be in a similar situation. Do not believe that by paying more, you’ll be granted access to your wallet by these investment scammers. Instead, contact the Morphohack Cyber team to help you recover your crypto assets immediately.
Their contact email is as follows: MORPHOHACK@CYBERSERVICES . COM
Warm regards,
Ross Colby
Kent, Connecticut