Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4367 comments
Losing money to a crypto scam was one of the hardest lessons I’ve ever learned. I had invested my savings into a cryptocurrency trading platform that seemed trustworthy at first, great reviews, friendly support, and consistent profits showing on the dashboard. But everything changed the day I tried to withdraw my funds. My account got frozen, and within hours, the website vanished. Just like that, all my money was gone.The emotional pain was unbearable. I felt angry, ashamed, and completely hopeless. I couldn’t believe I had been deceived so easily. For weeks, I searched online for ways to recover my stolen cryptocurrency, but every forum post and “solution” seemed uncertain or full of false promises. Then, a close friend introduced me to Mbcoin Recovery Group, a professional cryptocurrency recovery company known for helping victims of crypto scams and fraudulent investments. I was skeptical at first, but after reading reviews and seeing their verified recovery cases, I decided to reach out.From the moment I contacted them, I knew I was dealing with experts. The team at Mbcoin Recovery Group explained every step clearly, from tracing blockchain transactions to working with crypto exchanges to identify the scammers’ wallets. Their communication was constant, transparent, and reassuring. After several weeks of investigation and tracking, Mbcoin Recovery Group successfully recovered a significant portion of my lost funds. I was shocked and deeply grateful. It felt like a miracle after months of despair.What makes Mbcoin Recovery Group truly stand out is their professionalism, honesty, and genuine care for victims of crypto fraud. They don’t promise miracles overnight, but they deliver real results with proven blockchain expertise.If you’ve lost money to crypto scams, don’t give up hope. Mbcoin Recovery Group can help you trace, recover, and secure your assets, just like they did for me. They turned my story of loss into one of recovery and renewed faith. Contact:
Email: Mbcoinrecoverygroup@aol.com
Text/Phone: +1 346 954-1564
https://mbcoinrecoverygrou.wixsite.com/mb-coin-recovery
HIRE A FASTEST CYBER RECOVERY EXPERT TO RECOVER YOUR LOST OR STOLEN BITCOIN/ETH/USDT/
After what felt like a nightmare of losing 21 BTC due to a scam, today marks the triumphant moment when those funds were fully recovered and transferred back into my Trust Wallet—all thanks to META TECH Recovery. When my wallet was hacked, and my cryptocurrency was stolen, I feared that my substantial investment was lost forever. However, META TECH Recovery provided a lifeline that restored not just my funds, but my peace of mind.
The recovery process started with a thorough assessment of my case. After I explained how my wallet had been compromised, META TECH Recovery team immediately got to work. They used advanced blockchain tracking technologies to follow the trail of my stolen Bitcoin through various exchanges and accounts. This level of expertise in tracing complex digital footprints was crucial in pinpointing the exact location of the stolen assets.
META TECH Recovery also leveraged partnerships with key exchanges and used legal methods to freeze and retrieve the stolen BTC. Once they confirmed that the assets were recoverable, they worked swiftly to reroute the 21 BTC back to my Trust Wallet. Throughout the entire ordeal, their communication was excellent, keeping me updated on the progress every step of the way.
Thanks to META TECH Recovery, my 21 BTC is now safely back in my possession, and I couldn’t be more relieved. Their professionalism and effectiveness make them the go-to experts for anyone dealing with lost, stolen, or hacked cryptocurrency. You can reach at to them via:
Email: bryanpuhgehacker@gmail.com
Text message: +1 (619) 289 9154
WhatsApp: +1 (825) 585-8813
Thank You
https://scrapbox.io/DIAMOND16/Diamond168
https://diamondlnwpg168.com/
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://www.paiklangna.com/
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
https://scrapbox.io/DIAMOND16/Diamond168
https://diamondlnwpg168.com/
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://www.paiklangna.com/
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
https://scrapbox.io/DIAMOND16/Diamond168
https://diamondlnwpg168.com/
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://www.paiklangna.com/
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948