With a Little Help

April 19, 2024

It's now Friday afternoon and I'm settled into my London accommodation. Members of the team are running around London getting the final pieces of admin done ahead of Sunday. Everything seems to be going to plan and one of the only things left to do is get round the course!

Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...

Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.

Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.

Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.

In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a

ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude.

I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.

It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.

If you feel inspired to help us fund more vital research, you can donate here.

Thank you so much for reading.

Sam x

Back to blog

3457 comments

I just got my money back. I can’t even begin to describe how happy I am right now. I used a Bitcoin Bonus to invest $770,000 last month. At first, everything was going smoothly until I attempted to withdraw money from my wallet. I was shocked to see how quickly my profit was increasing each day. I just intended to use the funds and earnings to purchase a new vehicle for Christmas. Last month, (Recovery Hacker101) saved my life. I read reports about how he provided business loans and assisted customers in getting their money back. I was able to retrieve all of the money I had lost from those con artists.I have to admit that I heartily endorse this company. The way to contact them is by

recoveryhacker101@gmail.com

Hi Friends I am so glad to writing this article today to tell the world how Dr Aigbomian cured my HSV VIRUS, I have been detected with HSV-1 AND HSV-2 since five years ago, ever since then my life has been in complete bizarre and agony, I have used so many drugs that was prescribed to me by several doctors, but it didn’t cure my HSV VIRUS neither did it reduce the pain, until a certain I was checking for solution in the internet, then miraculously came across Dr Aigbomian the powerful herbalist that cure numerous individuals HSV-1 AND HSV-2 INFECTION, I explained everything to him and prepared a cure that cure my HSV-1 AND HSV-2 disease totally after receiving his herbal medicine, so my friends viewers why wait and be suffer when there is someone like Dr Aigbomian that can cure any disease HIV/ CANCER/ HEPATITIS B VIRUS, you can contact his via Email: draigbomianherbalhome3@gmail.com or WHATSAPP +2349153323194 GOD BLESS YOU ALL

https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://github.com/qw3rtman/p/issues/35
https://github.com/Pleumpi1688/Kittichaiya1680/discussions/1
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://patcharapdiamond168.graphy.com/courses/DHSeo168Diamond
https://suvanabhumi168.graphy.com/courses/Ruayy44Diamond168
https://patcharapdiamond168.graphy.com/courses/DiamondRray789168
https://cccv.to/uezudxbstufpt
https://cccv.to/tuemv
https://cccv.to/zsf62
https://cccv.to/7n6eye1jzk2u5ta
https://cccv.to/5cqn8t79w2ernmd
https://cccv.to/nnhft
https://cccv.to/ieimy1r4g452w
http://diamondlnwpg168.com/
https://paiklangna.com/

http://diamondlnwpg168.com/
https://paiklangna.com/
https://suvanabhumi168.graphy.com/courses/RuayDiamond168V1
https://suvanabhumi168.graphy.com/courses/DiamondLottoo7168
https://cccv.to/c9equ1
https://cccv.to/sagame168
https://cccv.to/km5jte
https://cccv.to/83yx613wp8rb
https://cccv.to/2z7ncimc
https://cccv.to/24ntippanfgz4
https://cccv.to/advpidfpyw
https://cccv.to/p1xn1

Item added to your cart

With a Little Help

3457 comments

Leave a comment