Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
4359 comments
https://x.com/NP5230322012050/status/2040311192703647986?s=20
https://bsky.app/profile/diamondpg168.bsky.social/post/3minlm2etj22x
https://schoolido.lu/user/Pattanapon168/
https://www.twosapp.com/69d0baee826568338144aef3
https://multy.me/SGNs2
https://x.com/NP5230322012050/status/2040311192703647986?s=20
https://bsky.app/profile/diamondpg168.bsky.social/post/3minlm2etj22x
https://schoolido.lu/user/Pattanapon168/
https://www.twosapp.com/69d0baee826568338144aef3
https://multy.me/SGNs2
https://www.researchhub.com/paper/11189668/ep10-hongsawadi-10-uncut-hd
https://www.researchhub.com/paper/11189686/ep1-magic-move-1-uncut-2026
https://magicmoveep1uncut.exlyapp.com/
https://superprofile.bio/magicmoveeps1
https://www.researchhub.com/paper/11187094/ep1-magic-move-1-uncut-hd-2026
https://www.researchhub.com/paper/11187099/ep1-magic-move-1-uncut-hd
https://superprofile.bio/thelastduelep10
https://www.researchhub.com/paper/11185477/ep10-the-last-duel-10-uncut-hd-2026
https://superprofile.bio/thelastduelepfinal
https://www.researchhub.com/paper/11174082/ep9-ep10-the-last-duel-9-ep10-uncut-ver-hd-2026
https://on.contra.com/rPqgPH
https://tooter.in/herbertlawson034/posts/116440682812818865
https://www.gemtracks.com/job/skdlfmsfdsdfas-91179/
https://www.ths.ac.th/question/kaksdnkjasd/
https://www.tipga.com/e/69e6fffa3286fe75d1f95df2
https://connect.usama.dev/posts/73869
https://multy.me/x9nX9
https://ok.ru/profile/910136721401/statuses/157368204787961
https://diendannhansu.com/threads/kaiukhsduoasd.927705/
https://prasatnas.com/posts/270779
https://www.TwosApp.com/69e6ffee7d336d33200ea254
https://community.wongcw.com/posts/1233417
https://lebanonhub.app/posts/949072
https://bsky.app/profile/did:plc:dn5oxdqg3pvgevepoopsaf57/post/3mjy6edsh7k2e
https://forums.siliconera.com/threads/jkahdkjansdas.160535/
https://chobaolam.vn/threads/iaishdoiasdsa.872080/
https://tempel.in/view/voePFIj
https://scrapbox.io/akjsndalsdas/kjasndklasdas
https://chouseisan.com/s?h=35b7f9b86b994dc2bcee17ac53ab0af2
https://nichey.net/post/354400_https-www-researchhub-com-paper-11189668-ep10-hongsawadi-10-uncut-hd-https-www-r.html
https://hub.vroid.com/en/characters/9090412603685494978/models/609696955967888542
https://matters.town/a/l8i0whjonr3z
https://businessboostier.mn.co/posts/100964075
https://wokwi.com/projects/461886263302378497
https://medium.com/@herbertlawson034/oailjsmpoiasdsa-ff58e4e538fd
https://x.com/NP5230322012050/status/2040311192703647986?s=20
https://bsky.app/profile/diamondpg168.bsky.social/post/3minlm2etj22x
https://schoolido.lu/user/Pattanapon168/
https://www.twosapp.com/69d0baee826568338144aef3
https://multy.me/SGNs2
https://superprofile.bio/magicmoveeps1
https://www.researchhub.com/paper/11187094/ep1-magic-move-1-uncut-hd-2026
https://www.researchhub.com/paper/11187099/ep1-magic-move-1-uncut-hd
https://www.researchhub.com/paper/11187113/ep8-love-like-a-bike-8-uncut-hd
https://thelastduelep9.exlyapp.com/blog_post/5d488b06-a5c9-4c0a-898b-e09bbdbdc4fd
https://thelastduelep9.exlyapp.com/
https://thelastduelep9.exlyapp.com/new-offer/ep9
https://thelastduelep10.exlyapp.com/new-offer/final
https://thelastduelep10.exlyapp.com/
https://michaelthai.exlyapp.com/
https://www.cohart.com/michaelthai
https://superprofile.bio/michaelthai
https://www.researchhub.com/paper/11187749/michael
https://michaelthai.readme.io/reference/michaelthai
https://herbertlawson034.raindrop.page/ysjdaksdsa-69958970
https://papaly.com/categories/share?id=1c37ca5b28334c9e93dafb5bc14fafa6
https://www.researchhub.com/paper/11187971/ep1-sot-soi-mala-1-uncut-hd
https://sotsoimalaep1.exlyapp.com/
https://superprofile.bio/sotsoimalaep1
https://sotsoimalaep1.readme.io/reference/sotsoimalaep1
https://www.researchhub.com/paper/11187994/ep2-sot-soi-mala-2-uncut-hd
https://sotsoimalaep.readme.io/reference/sotsoimalaep2
https://sotsoimalaep2.exlyapp.com
https://superprofile.bio/sotsoimalaep2