Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
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Company Review: Cloudstrike Cyber Services
Losing £250,000 to a Bitcoin investment scam was something I never imagined could happen to me — until it did. Like many others, I fell victim to a scheme that seemed too good to be true. I came across an advertisement on Facebook promising exceptionally high returns on cryptocurrency investments. Initially, everything appeared legitimate. The platform looked professional, deposits were processed smoothly, and I received convincing updates on my “growing” investment.
However, things took a dark turn when I attempted to withdraw my funds. Every withdrawal failed, and repeated contact with customer service led nowhere. That was when the reality sank in — I had been scammed. The emotional toll was immense; I had lost what felt like a lifetime’s worth of hard work.
Devastated, I confided in a close friend who recommended Cloudstrike Cyber Services— a company known for its professionalism and expertise in cybercrime recovery. Skeptical but desperate, I reached out to them. To my surprise, their team was not only responsive but deeply knowledgeable and reassuring throughout the process.
Through their efforts, Cloudstrike was able to recover £238,000of the stolen funds. While I didn’t recover the full amount, I was incredibly grateful and relieved to reclaim the majority of what I had lost. Their transparency, ethical approach, and relentless work truly made a difference during one of the darkest moments of my life.
If you’ve been in a similar situation, I highly recommend reaching out to Cloudstrike Cyber Services via their E-mail at (Cloudstrikecyber@gmail.com)
WhatsApp:+1 (260) 408-3923
They gave me hope when I thought all was lost.
Company Review: Cloudstrike Cyber Services
Losing £250,000 to a Bitcoin investment scam was something I never imagined could happen to me — until it did. Like many others, I fell victim to a scheme that seemed too good to be true. I came across an advertisement on Facebook promising exceptionally high returns on cryptocurrency investments. Initially, everything appeared legitimate. The platform looked professional, deposits were processed smoothly, and I received convincing updates on my “growing” investment.
However, things took a dark turn when I attempted to withdraw my funds. Every withdrawal failed, and repeated contact with customer service led nowhere. That was when the reality sank in — I had been scammed. The emotional toll was immense; I had lost what felt like a lifetime’s worth of hard work.
Devastated, I confided in a close friend who recommended Cloudstrike Cyber Services— a company known for its professionalism and expertise in cybercrime recovery. Skeptical but desperate, I reached out to them. To my surprise, their team was not only responsive but deeply knowledgeable and reassuring throughout the process.
Through their efforts, Cloudstrike was able to recover £238,000of the stolen funds. While I didn’t recover the full amount, I was incredibly grateful and relieved to reclaim the majority of what I had lost. Their transparency, ethical approach, and relentless work truly made a difference during one of the darkest moments of my life.
If you’ve been in a similar situation, I highly recommend reaching out to Cloudstrike Cyber Services via their E-mail at (Cloudstrikecyber@gmail.com)
WhatsApp:+1 (260) 408-3923
They gave me hope when I thought all was lost.
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