Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3457 comments
http://diamondlnwpg168.com/
https://paiklangna.com/
https://github.com/11DIAMOND168/Mac/issues/1
https://github.com/22DIAMOND168/Mack/issues/1
https://github.com/DIAMOND168MM/Mac/issues/1
https://github.com/DIAMOND168MM/Mac/issues/1
https://github.com/DAMDAMme11225566/Natoo/issues/1
https://github.com/MAVKMAVK11111111111142/Mack1259/issues/1
https://github.com/sggsdfsdfdsfds6745123/NAgoo168/issues/1
https://github.com/Lertkoonawong/Chartsombat111/issues/1
https://github.com/Prasanwong/Intaraprasart/issues/1
https://github.com/Rattanaprasert/Sangsawang111/issues/1
https://github.com/Narinchanok/Suwanwechatada111/issues/1
https://github.com/Suwankaruna/Dechaboon111/issues/2
https://github.com/Pitijamroen/Rattanaprasert111/issues/1
https://github.com/Roongrudee44/Kwankaew111/issues/1
https://github.com/4DIAMOND168/Phan/issues/1
https://github.com/5DIAMOND168/May/issues/1
https://github.com/3DIAMOND168/Muay/issues/1
https://github.com/6DIAMOND168/Mack/issues/1
https://github.com/2DIAMOND168/Mack/issues/1
https://github.com/1DIAMOND168/Mack/issues/1
https://github.com/12DIAMOND168/Mack/issues/1
https://github.com/16DIAMOND168/Mack/issues/1
https://github.com/8DIAMOND168/Mack/issues/1
https://github.com/7DIAMOND168/Mack1/issues/1
https://github.com/DIAMOND168N/Mavk/issues/1
https://github.com/kaina134556666666666/kaina123/issues/1
https://github.com/Thanaratchaku/Thammapak-/issues/1
https://github.com/Reongsamai/Pipattanakul/issues/1
https://github.com/Jarassopon/Chartpipak-/issues/1
https://github.com/Prommabuth/Srisarawong/issues/1
https://github.com/Thammapak/Srisawatwongchai-/issues/1
https://github.com/Gongkiatsakul/Pichitcharoenwong-/issues/1
https://github.com/Narinchanok/Anansapcharoen/issues/1
https://github.com/Panichvattanaku/Pichitcharoenwong-/issues/1
https://github.com/Vichayaprasertkul/Siripapan/issues/1
https://github.com/Nitithamrong/Rattanaprasert/issues/1
https://github.com/Rattanaprasit22/Udomsawatdisuk-/issues/1
https://github.com/Chakraphanpradit/Kajornsakkoso/issues/1
https://github.com/Gongkiatsakul/Pichitcharoenwong-/issues/1
https://github.com/Narinchanok/Anansapcharoen/issues/1
https://github.com/Panichvattanaku/Pichitcharoenwong-/issues/1
https://github.com/Vichayaprasertkul/Siripapan/issues/1
https://github.com/Nitithamrong/Rattanaprasert/issues/1
https://github.com/Rattanaprasit22/Udomsawatdisuk-/issues/1
https://github.com/Chakraphanpradit/Kajornsakkoso/issues/1
https://github.com/Wiwatthanasak/Ronnaporn-/issues/1
https://github.com/Supannapakin/Chompunut-/issues/1
https://github.com/antaraprasert/Patanapreecha-/issues/1
https://github.com/Patamadecha/Nichakarn-/issues/1
https://github.com/Jeerawongsa/Kiatwittaya-/issues/1
https://github.com/Bannawan/Weerachai-/issues/1
http://diamondlnwpg168.com/
https://paiklangna.com/
In recent times, technology has proven to be more sophisticated and just like any other currency that can be stolen or lost, crypto and other digital assets has proven to be more difficult to recover but not impossible, and just like searching for any other monetary currency, you need a trustworthy and honest agency or personnel who can track and recover the value lost or stolen, in my case I hired recoveryhacker101@gmailcom, they followed the blockchain and was able to recover over 247kof my stolen funds within a couple of weeks. The fees for the services I received was fair and communication was excellent
Do you know that with MasterCard & Debit you can withdraw cash from any ATM machine !!! , we provide programmed ATM cards that can be used to raise cash in ATMs or push, shops and businesses. We sell these cards to all our customers and interested buyers worldwide, the cards have a daily withdrawal limit of $ 5000 at ATM and up to $ 100,000 spending limit in the stores. Visit our website on noveltydmvexperts.com OR you can Download the Telegram APP and text us on the Telegram: @Octapusticket
We also offer the following services:
CALIFORNIA REAL DRIVER LICENSE
FAKE BANK STATEMENT FOR LOAN
DIPLOMATIC DOCUMENTS PROCESSED
FICO CREDIT INCREASE
BANK STATEMENT SERVICES
BANKNOTES PRODUCTION
BANK TO BANK FLIPS
CRYPTOCURRENCY MINING
QUALITY FAKE DRIVERS LICENSE
REAL ESTATE LICENSE
EXPUNGEMENT SERVICES
BITCOIN INVESTMENTS
REMOVAL OF NAME FROM DEBIT RECORD AND CRIMINAL RECORDING
DMV ID SERVICES
BANK HACKING
ZELLE FLIP
PAYPAL FLIP
UNDETECTED FAKE DRIVING DOCUMENTS
CASHAPP FLIPPS
ALL COUNTRIES DLs, IDs, SSN.
PASSPORT SERVICES
Telegram: @Octapusticket
Here At the Octapustickets group of Experts, We are Specialised in the production of valid database registered documents for all countries especially documents like Fake birth certificates, Fake Birth certificate with raised seal , Realistic fake birth Certificate . We are the best fake birth certificates providers online with at-least 55million copies circulating worldwide. Here , you can easily buy fake birth certificate at an affordable rate. We have clients who order fake birth certificate Canada since they live overseas and can’t have the opportunity to get one done . Most people today, like the use of novelty birth certificate for their own personal reasons . In USA , the demand in various cities for fake birth certificate is very high. For those in CA they like to use fake California birth certificate for their document approvals at the offices which always goes through. People also search for fake birth certificate Texas and fake birth certificate New York since these three states are more easy to use their birth certificate without getting into trouble.
For more information Visit our website on : octapustickets.comEmail; Octapustickets@gmail.com
The demand for fake birth certificates with raised seals are high on the market these days so, the octapusticket group has made it easy for everyone who always ask how to get a fake birth certificate from the comfort of my home, should get instant solution.
We are here to help those who lost their birth certificates , to get a replica birth certificate same as the one who got missing. So we would provide you with a fake birth certificates that look real which will be used smoothly without an mishap. Some people like to use fake birth certificate for passport , especially those moving from one county to another since it is part of the required documents for travel approval.
We are here to make a fake birth certificate that look real so that, you can use it anywhere without any stress.