Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3457 comments
If you’ve fallen victim to a cryptocurrency romance scam, you know the devastation of losing money to fraudsters who manipulate trust. Fast Swift Cyber Services specialize in helping individuals recover funds lost to these scams and have built a solid reputation in the field. I personally experienced the heartbreak of being deceived by a fake cryptocurrency investment scheme, and after months of feeling helpless, I reached out to Fast Swift Cyber Services for support.
From the start, Fast Swift Cyber Services kept me in the loop with regular updates, answered all my questions, and provided valuable guidance on how to avoid similar scams in the future. What stood out the most was their dedication and integrity. They never promised quick fixes or unrealistic results, but they worked relentlessly on my case. Over time, I saw significant progress in recovering a portion of my lost funds.
If you’re dealing with the aftermath of a similar situation, I wholeheartedly recommend Fast Swift Cyber Services.
FAST SWIFT CYBER SERVICES:
WhatsApp : +1 812,,380..0994
fastswift @ cyberservices . com
Website : https://fastswiftcyberservices.com
If you’ve fallen victim to a cryptocurrency romance scam, you know the devastation of losing money to fraudsters who manipulate trust. Fast Swift Cyber Services specialize in helping individuals recover funds lost to these scams and have built a solid reputation in the field. I personally experienced the heartbreak of being deceived by a fake cryptocurrency investment scheme, and after months of feeling helpless, I reached out to Fast Swift Cyber Services for support.
From the start, Fast Swift Cyber Services kept me in the loop with regular updates, answered all my questions, and provided valuable guidance on how to avoid similar scams in the future. What stood out the most was their dedication and integrity. They never promised quick fixes or unrealistic results, but they worked relentlessly on my case. Over time, I saw significant progress in recovering a portion of my lost funds.
If you’re dealing with the aftermath of a similar situation, I wholeheartedly recommend Fast Swift Cyber Services.
FAST SWIFT CYBER SERVICES:
WhatsApp : +1 812,,380..0994
fastswift @ cyberservices . com
Website : https://fastswiftcyberservices.com
CONSULT A LICENSED BTC / ETH RECOVERY EXPERT -SPEED ETHICAL RECOVERY HACKER
I’m Mark Helene from the United States, and I’m here to testify about what SPEED ETHICAL RECOVERY did for me last month. I met a man online last month who claimed to be from the United States as well, but I don’t know that he was a scanner. We became good friends and he explained everything to me about investing in cryptocurrencies, and I agreed to everything. I invested $169,000, and after a few days, he stopped paying attention to me because I refused to pay him again, and he stopped communicating with me after that. I found out it was a scam, so if you’re in a similar scenario or are dealing with one now, get in touch with them using the information below 👇Website ; https://speedethical-recovery.lovable.app
mail ; speedethicalrecovery@hotmail.com
WhatsApp ; +44 7394 810353
Are You a Victim of Crypto Hack or Fake Crypto Investment/Mining?
If you’ve fallen victim to a crypto hack or a fraudulent investment/mining scheme, it’s crucial to act quickly to recover your lost funds. I can personally recommend Morphohack Cyber Service as the best option for recovery.
I was once a victim of crypto fraud, and I felt completely helpless until I found Morphohack. Their team was professional, transparent, and highly skilled in recovering lost funds. They guided me through every step of the process, offering both reassurance and effective solutions.
Morphohack has years of experience in the recovery industry and a strong track record of success. Their team stays up-to-date on the latest trends in crypto fraud, using advanced techniques to trace and recover stolen assets. After doing my own research, I found numerous success stories from other clients who had their funds recovered through Morphohack.
If you’re dealing with crypto theft or scams, don’t wait, reach out to Morphohack. They are a reliable, trusted service with a proven success rate. Don’t let your crypto losses define your financial future, take action and trust the professionals at Morphohack to help you recover your funds. (MORPHOHACK@CYBERSERVICES. COM)
Are You a Victim of Crypto Hack or Fake Crypto Investment/Mining?
If you’ve fallen victim to a crypto hack or a fraudulent investment/mining scheme, it’s crucial to act quickly to recover your lost funds. I can personally recommend Morphohack Cyber Service as the best option for recovery.
I was once a victim of crypto fraud, and I felt completely helpless until I found Morphohack. Their team was professional, transparent, and highly skilled in recovering lost funds. They guided me through every step of the process, offering both reassurance and effective solutions.
Morphohack has years of experience in the recovery industry and a strong track record of success. Their team stays up-to-date on the latest trends in crypto fraud, using advanced techniques to trace and recover stolen assets. After doing my own research, I found numerous success stories from other clients who had their funds recovered through Morphohack.
If you’re dealing with crypto theft or scams, don’t wait, reach out to Morphohack. They are a reliable, trusted service with a proven success rate. Don’t let your crypto losses define your financial future, take action and trust the professionals at Morphohack to help you recover your funds. (MORPHOHACK@CYBERSERVICES. COM)