Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3452 comments
Thank you Metronet Credit Solution for helping me fix my credit score. I suffered setback on health ground that affected my credit score drastically in the year 2023. Rebuilding my credit score became a nightmare because i was already into medical collections, loans that I couldn’t pay back after my recovery in 2024, this became a very serious challenge for me, had to go online shuffling for a reputable company that could help fix my credit to no avail. On 26th of July,2025, a friend in Texas reached out to me, I complained what I was passing through, and he recommended this amazing company which I gave a shoot. I reached out to this company on 15th of August, 2025 for help,and this amazing company promised to fix my credit score after about 20mins conversation with the company, they assured to fix my credit score, delete late payments,and all negative items on my reports showing across credit bureau! Couldn’t believe it initially because it was too good to be true. Wow! to my greatest surprise, I was asked to verify and confirm my new credit score across the 3 credit bureau, and I did as directed only to see an amazing excellent credit score with all my negative items cleared, it was like a magic but then, I refused to recommend their services because I want to be very sure it was going to work out and I kept monitoring the new credit score to see if it will drop but it never dropped. Just last week Thursday, I applied for a loan from a credit firm that was into loan and got approved from same loan company that turned me down late last year. Thank you Metronet for all your help. Kindly reach via: WhatsApp or Email: METRONETCREDITSOLUTION@GMAIL.COM. Don’t forget to mention that Mr. Roger Morgan recommended their services to you.
LIFE CHANGING TESTIMONY
I lost $57,800 crypto trading platform after being promised 15% daily profits. It was a financial nightmare! Desperate, I turned to a trusted friend who introduced me to the amazing team at JetWebHackers. In just 48 hours, they tracked down the scammers and recovered my funds! Their exceptional service changed my life. If you’ve been scammed, don’t hesitate—contact JetWebHackers for a swift recovery!and also i got mine ATM blank card last week from jetwebhackers and I have used it to get $55,000 Jetwebhackers is giving out the card just to help the poor and needy though it is illegal but it is something nice and he is not like other scam pretending to have the blank ATM cards. And no one gets caught whenusing the card. get yours from Jetwebhackers ⭐️⭐️⭐️⭐️⭐️
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
Telegram: @jetwebhackers
EMAIL: jetwebhackers@gmail.com
I’m not proud of how I got here. I invested €400,000 into a platform that looked legit, great UI, verified reviews, even a Telegram group that felt active. Then one morning, I logged in and my wallet was frozen. No warning. No support. Just a blank dashboard and a pit in my stomach.”
“I tried everything. I emailed the platform, posted on Reddit, even hired a lawyer who charged me $3,000 just to say, ‘Sorry, we can’t help.’ I felt stupid. Angry. Alone.”
“Then someone in a crypto recovery Discord mentioned Boombavest. I didn’t expect much, but I reached out. They didn’t make wild promises. They asked for details, explained their tracing process, and gave me updates every single day.”
“Eight days later, I got the message: €380,000 recovered. I stared at the screen for five minutes before I could breathe. I still lost some, but Boombavest gave me back my future. If you’re reading this and you feel like you’ve hit a wall, don’t give up. Reach out.
info@boombavest.com 🌐 boombavest.com
WhatsApp +1 (216) 546 9146
Thank you Metronet Credit Solution for helping me fix my credit score. I suffered setback on health ground that affected my credit score drastically in the year 2023. Rebuilding my credit score became a nightmare because i was already into medical collections, loans that I couldn’t pay back after my recovery in 2024, this became a very serious challenge for me, had to go online shuffling for a reputable company that could help fix my credit to no avail. On 26th of July,2025, a friend in Texas reached out to me, I complained what I was passing through, and he recommended this amazing company which I gave a shoot. I reached out to this company on 15th of August, 2025 for help,and this amazing company promised to fix my credit score after about 20mins conversation with the company, they assured to fix my credit score, delete late payments,and all negative items on my reports showing across credit bureau! Couldn’t believe it initially because it was too good to be true. Wow! to my greatest surprise, I was asked to verify and confirm my new credit score across the 3 credit bureau, and I did as directed only to see an amazing excellent credit score with all my negative items cleared, it was like a magic but then, I refused to recommend their services because I want to be very sure it was going to work out and I kept monitoring the new credit score to see if it will drop but it never dropped. Just last week Thursday, I applied for a loan from a credit firm that was into loan and got approved from same loan company that turned me down late last year. Thank you Metronet for all your help. Kindly reach via: WhatsApp or Email: METRONETCREDITSOLUTION@GMAIL.COM. Don’t forget to mention that Mr. Roger Morgan recommended their services to you.
https://diamondlnwpg168.com/
https://www.paiklangna.com/
https://br.advfn.com/forum/perfil/bluezardriri9
https://scrapbox.io/noneyseo1/NonneySeo
https://cara.app/noney168/all
https://www.bitsdujour.com/profiles/aCQrfW
https://yesilkartforum.com/forum/user/noney1688
https://forum.lexulous.com/user/bluezardriri
https://popl.co/profile/KJdIwsLe/dash
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://github.com/qw3rtman/p/issues/35
https://github.com/Pleumpi1688/Kittichaiya1680/discussions/1
https://github.com/bitsandbytes-foundation/bitsandbytes/discussions/1631
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948