Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3446 comments
Sadly, I was a victim of the CanCap crypto investment scam and lost $347,000 worth of crypto in 24 hours. I saw an article about CanCap Crypto on Facebook, supposedly endorsed by then-Prime Minister Justin Trudeau. I was deceived into believing I could invest in this scheme, but I ended up losing all my money.
Not long after, I found out that I was being scammed when I saw the news about the Alberta Securities Commission (ASC) warnings about the CanCap Crypto investment scam. I was left wondering what had happened and how I could recover my money.
A friend who works for the government of Alberta told me about TROYHACKS CYBER SERVICE, a resourceful crypto recovery company. I contacted TROYHACKS CYBER SERVICE, who had already received several other requests to investigate and recover crypto from the same scam.
While I was still in doubt if it could be done, TROYHACKS was able to recover my crypto investments from CanCap within 48 hours. In light of the situation, I fully recommend the service of TROYHACKS CYBER SERVICE. I encourage everyone to be careful with their crypto investments or seek help from a reputable and trustworthy source.
You can contact TROYHACKS CYBER SERVICE via:
WhatsApp: +1(260)237-6241
Email: Troyhacks@cyberservices.com
Sadly, I was a victim of the CanCap crypto investment scam and lost $347,000 worth of crypto in 24 hours. I saw an article about CanCap Crypto on Facebook, supposedly endorsed by then-Prime Minister Justin Trudeau. I was deceived into believing I could invest in this scheme, but I ended up losing all my money.
Not long after, I found out that I was being scammed when I saw the news about the Alberta Securities Commission (ASC) warnings about the CanCap Crypto investment scam. I was left wondering what had happened and how I could recover my money.
A friend who works for the government of Alberta told me about TROYHACKS CYBER SERVICE, a resourceful crypto recovery company. I contacted TROYHACKS CYBER SERVICE, who had already received several other requests to investigate and recover crypto from the same scam.
While I was still in doubt if it could be done, TROYHACKS was able to recover my crypto investments from CanCap within 48 hours. In light of the situation, I fully recommend the service of TROYHACKS CYBER SERVICE. I encourage everyone to be careful with their crypto investments or seek help from a reputable and trustworthy source.
You can contact TROYHACKS CYBER SERVICE via:
WhatsApp: +1(260)237-6241
Email: Troyhacks@cyberservices.com
After years of living with HSV-1&2 and trying various medications without success, I found real relief through a natural herbal remedy. Learning more about my condition and exploring alternative options made all the difference. I got support from World Rehabilitate Clinic — worth looking into.
World Rehabilitate Clinic has made a great impact treating and providing complete cure for patients with chronic illnesses.
SPELL OF REUNION
This is my testimony how Dr. Sakomo helped me to get my EX back. When I found Dr. Sakomo on Google search. My name is Amanda Johnson. I was in desperate need of bringing my ex lover back. He left me for another woman 3 Years ago. It all happened so fast and I had no choice in the situation. He just dumped me after 3 years with no explanation. I reached out to Dr. Sakomo through his Email drsakomospiritualhome@gmail.com and he told me what I need to do before he can help me and I did exactly that. After he cast the love spell of Reunion to help us get back together. My husband started texting me again and felt horrible for what he has put me through. He said that I was the most important person in his life and he knows that now. We moved in together and he is so committed to me now. I highly recommend Dr. Sakomo Solution spell to anyone in need to get their partner back. Kindly send an email to Dr. Sakomo at drsakomospiritualhome@gmail.com OR WhatsApp ? +2347030540206