Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3444 comments
Hello, my name is KEVIN PETERS. I was going through an article and found out about a man called Dr HARRY. I have been suffering from DIVORCES issues with three different women concerning my 2,0 inches penis size. I had to contact the spell caster and herbal healer DR HARRY. Viviana, my 4th wife, was on the verge of leaving me for another man just because of my sexual failure .But I stayed positive and believed I could have her back and make her stay. and behold i Dr HARRY helped me enlarge my penis through his herbal medicine cream . VIVIANA and I got together again and she was so happy the first night we had sex after using his cream for two weeks and I got 10.5 inches and 8.0 girth. Dr HARRY is such a nice man and honest man who takes his patient’s happiness as his priority, he also helped me stop my cardiac arrest problem. Thanks to him and thanks to God for the gift given to him. If you have any problem whatsoever, contact him on this email: drharrysolution@gmail.com Contact him for the following problems and see the great work of Dr HARRY: SPELL (1)If you want your ex back. {2}If you want to be very successful (3)If you are searching for a job (4)You want to be promoted in your office. (5)You want women/men to run after you. (6)If you want a child. (7)You want to be rich. (8)you want to get Marriage Spells (9)Remove Sickness from your body Spells (10)Business spell (11)Lottery winning numbers (12)Bring Back Lost Love CURE PENIS ENLARGEMENT PREMATURE EJACULATION LOW SPERM COUNT ERECTILE DYSFUNCTION HIV/AIDS CURE HERPES CURE INFECTION CURE PILE STROKE HEART6 FAILURE CANCER REDUCING OF FATS AND BUMS ASTHMA and many more……. visit his website https://drharrysolutionhea.wixsite.com/healinghome contact him on this email: drharrysolution@gmail.com or whatsapp him directly on +2349036417079
https://br.advfn.com/forum/perfil/bluezardriri9
https://scrapbox.io/noneyseo1/NonneySeo
https://cara.app/noney168/all
https://www.bitsdujour.com/profiles/aCQrfW
https://yesilkartforum.com/forum/user/noney1688
https://forum.lexulous.com/user/bluezardriri
https://popl.co/profile/KJdIwsLe/dash
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://github.com/qw3rtman/p/issues/35
https://github.com/Pleumpi1688/Kittichaiya1680/discussions/1
https://github.com/bitsandbytes-foundation/bitsandbytes/discussions/1631
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
https://diamondlnwpg168.com/
https://www.paiklangna.com/
https://diamondlnwpg168.com/
https://www.paiklangna.com/
https://br.advfn.com/forum/perfil/bluezardriri9
https://scrapbox.io/noneyseo1/NonneySeo
https://cara.app/noney168/all
https://www.bitsdujour.com/profiles/aCQrfW
https://yesilkartforum.com/forum/user/noney1688
https://forum.lexulous.com/user/bluezardriri
https://popl.co/profile/KJdIwsLe/dash
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/30
https://github.com/defunkt/ambitious_activeldap/issues/14
https://github.com/openai/sparse_attention/issues/13
https://github.com/dashpradeep99/https-github.com-miguellgt-books/issues/6
https://github.com/HoyDiamond/DiamondSeo01/issues/1
https://github.com/cy4nguy/PythonSimpleKeylogger/issues/3
https://github.com/gzc/isystem/issues/1
https://github.com/SaeruHikari/SakuraEngine-Old/issues/3
https://github.com/xyba1337/ValorantEZTS/issues/3
https://github.com/henryjeff/portfolio-website/issues/16
https://github.com/EllanJiang/GameFramework/issues/76
https://github.com/HoyDiamond/DiamondSeo01/issues/2
https://github.com/qianjiahao/MongoDB/issues/2
https://github.com/u21h2/nacs/issues/13
https://github.com/Programming-from-A-to-Z/A2Z-F15/issues/31
https://github.com/qw3rtman/p/issues/35
https://github.com/Pleumpi1688/Kittichaiya1680/discussions/1
https://github.com/bitsandbytes-foundation/bitsandbytes/discussions/1631
https://github.com/rafaballerini/GitTutorial/issues/200
https://github.com/Yalantis/uCrop/issues/948
After losing over $600,000.00 to fraudulent stock brokers who operated under the name “fxtradebit,” I found myself drowning in debt. However, I was fortunate enough to come across so reviews about a hack specialist by name jamesmckaywizard at gmail dot com. They played a crucial role in my journey towards recovery and exposing the true nature of the scammers. Initially, I was on the verge of paying the requested transfer fees out of desperation to retrieve my money, but jamesmckaywizard intervened. They revealed that the scammers were impostors and that their company was merely a copycat of a legitimate one. This revelation devastated me, but Century Hackers used their expertise to trace the money back to the accounts and wallets where I had sent it. Their remarkable efforts turned the situation in my favor, for which I am immensely grateful. You can reach them through email jamesmckaywizard at gmail dot com or WhatsApp +31* 657* 446* 248.
What would I have done without your help Mr James Mckay Wizard?.. I’m most grateful and am writing a review for you with a grateful heart. Thanks for helping me get my life back together and especially helping me to clear my credit debts that my wife had maxed out and even more thanks for helping me get the proof I need to go through with the court proceeds. My wife has always been a cheater and I never would have had helped without you, she would have took away my children and all my money. If you are looking to hire a good cyber hacker and recovering agent he is the man for you contact him here: jamesmckaywizard at gmail dot com or WhatsApp +3165.. 744.. 6248.