Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
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A friend of mine, whom I also call family, has always lived
In happiness over 29years of their marriage. They never had
Misunderstanding in their home, and I told her my problem. If
My family could be happy as her own do too, she laughs and
Smiles at me, saying it is a blessing, but with time, she
Introduce me to a great prophet, and I contacted him through:
{drowoherbs@gmail.Com } and tell him my problems, my
Surprise, he did a miraculous and marvelous work for me that
helped me bring back my husband. It’s been 6 years now, and we are
Living happily, and my heart is full of joy.
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Ich bin vor kurzem auf sehr realistische Film-Requisitenscheine gestoßen und wollte meine Erfahrung teilen. Für alle, die an Filmprojekten, Theater oder kreativen Produktionen arbeiten, können diese eine sichere und legale Möglichkeit sein, am Set mehr Authentizität zu schaffen. Wenn Sie neugierig sind, finden Sie hier weitere Informationen: Falschgeld kaufen Deutschland. Es ist eine praktische Lösung für alle, die Filmrequisiten Geldscheine benötigen, ohne rechtliche Risiken einzugehen.
Filmgeld & Requisiten-Euro kaufen – Zao Geldladen Inc. Deutschland
https://zaogeldladen.org/
WhatsApp:+4915781448744
https://t.me/fxpressintl
telegram: @hqcmo
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