Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3351 comments
It’s an honor to share my testimony with the world. You merit all the accolades that mention you. Lord Meduza has been a gift to me since our meeting online. He is the only one that knows everything about creating spells. I adore him immensely for his kindness, compassion, integrity, and the support he offers to everyone who interacts with him. Without Lord Meduza, I wouldn’t have survived this difficult situation. His magic turned me into a Lottery winner of £177 Million Pounds, transforming my entire life into something beautiful and extraordinary. The numbers he provided for the lottery were transformative, elevating me to the highest financial level of my life and I want to express my eternal gratitude to him. Thank you, sir, for being a source of help to those in need. Anyone who reads this article that requires assistance can reach him via Email: lordmeduzatemple@hotmail.com or WhatsApp: +1 807 907 2687 as he is unmatched in crafting spells.
It’s an honor to share my testimony with the world. You merit all the accolades that mention you. Lord Meduza has been a gift to me since our meeting online. He is the only one that knows everything about creating spells. I adore him immensely for his kindness, compassion, integrity, and the support he offers to everyone who interacts with him. Without Lord Meduza, I wouldn’t have survived this difficult situation. His magic turned me into a Lottery winner of £177 Million Pounds, transforming my entire life into something beautiful and extraordinary. The numbers he provided for the lottery were transformative, elevating me to the highest financial level of my life and I want to express my eternal gratitude to him. Thank you, sir, for being a source of help to those in need. Anyone who reads this article that requires assistance can reach him via Email: lordmeduzatemple@hotmail.com or WhatsApp: +1 807 907 2687 as he is unmatched in crafting spells.
Bitcoin Recovery Testimony
Losing $405,000 to a fake crypto investment scheme was the darkest chapter of my life. The platform looked so real—flashy ads, convincing reps, and all the right words. When the truth hit, I was devastated—financially, emotionally, and mentally.
Just when I thought all hope was lost, I found Cloudstrike Cybersecurity Company. I reached out, and to my disbelief, they managed to recover every single dollar I had lost. It felt like a miracle.
I can’t fully express how grateful I am. Cloudstrike gave me my life back. If you’re in a similar situation, don’t give up. Contact them at[Cloudstrikecyber@gmail.com]
WhatsApp: +1 (260) 408-3923
—they truly are lifesavers.
Bitcoin Recovery Testimony
Losing $405,000 to a fake crypto investment scheme was the darkest chapter of my life. The platform looked so real—flashy ads, convincing reps, and all the right words. When the truth hit, I was devastated—financially, emotionally, and mentally.
Just when I thought all hope was lost, I found Cloudstrike Cybersecurity Company. I reached out, and to my disbelief, they managed to recover every single dollar I had lost. It felt like a miracle.
I can’t fully express how grateful I am. Cloudstrike gave me my life back. If you’re in a similar situation, don’t give up. Contact them at[Cloudstrikecyber@gmail.com]
WhatsApp: +1 (260) 408-3923
—they truly are lifesavers.
Thank you Dr Oseremen for what you have done for me. I am so grateful my lover is back to me and we are now living happy together. And also he can also cure you from any infection you’re diagnosed with trust me,You can get in contact with dr Oseremen for any kind of spiritual problems and needs help with getting your health back And you can get in touch with him viaWhatsApp: (+2348153622587)Emall: oseremenspelldr@gmail.com