Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3348 comments
You can Recover Your Funds In a legit system with the help of GHOSTCHAMPIONWIZARD AT GMAIL DOT COM
I lost my entire savings including my mortgage payments to a fake cryptocurrency investment scam. I was promised huge returns on my investments but I was surprised when it all went down and I was logged out of my account. I was depressed and devastated, I thought of giving up my life until a promising post popped up on my timeline while I was scrolling through the internet about Recovery Wizard GHOST CHAMPION RECOVERY SERVICES . I was convinced by their positive reviews online and different testimony of individuals so I contacted them immediately, and to my greatest surprise, WIZARD GHOST CHAMPION RECOVERY SERVICES was able to recover all my funds in less than 72 hours. I’m truly grateful for their service and I want to put this out there to anyone who might require their services.
You can reach them directly via Email : ghostchampionwizard@gmail.com
Telegram : https://t.me/WizardGhosthacker
WhatsApp : +44 7383450230 for inquiries.
Are you saddened or depressed due to the separation /Misunderstanding with your partner and you want him / her back ? Are you tired of arguing and fighting ? Are you looking for permanent solution to your marriage or relationship problem , if your answer is " YES " don’t hesitate to message Doctor Robbinson he helped me get my ex lover back, his Spells are authentic, My Lover is right beside me now we are happy together
WhatsApp: +12897808858
https://www.facebook.com/Drrobbinson
drrobbinsonspiritualhome@hotmail.com
https://www.paiklangna.com
https://diamondlnwpg168.com
https://diamondlnwpg168.com/บทความ
https://diamondlnwpg168.com/pgslot-no-1
https://diamondlnwpg168.com/contact
https://github.com/EllanJiang/GameFramework/issues/76
I fell stupidly for their mischievous act, this made them gain access into my blockchain wallet. 89,000USD Worth of BITCOIN was stolen from my wallet in total. I was in a Dilemma this was all my savings I Invested in bitcoin. Then I made a research online and found a recovery expert, with the contact address RecoveryHacker101 @ GMAIL COM.
I wrote directly to the specialist explaining my loss. He helped me recover my BITCOIN in just 5 days, and the culprits were identified as well, all thanks to his expertise.
At this point in life, bad situation emerge for us to learn our mistakes and figure out what next is to be done. I’m really delighted I eventually found a real competent hacker after been spammed by several sham hackers I followed their Bogus recommendation. Never knew that my wife Had a son out of wedlock without informing me about it for almost 12years of our relationship until I noticed she picks strange calls on her phone and send some money to strange man. As much as it is inappropriate to spy on one’s spouse phone it’s also necessary to be sure that your relationship is in perfect shape. All my gratitude goes to this Genuine GeniusHacker-:jamesmckaywizard at gmail dot com who got to clone/hack her phone completely to the extent that I had a clone of her phone and could read all her whatsapp & amp;Facebook message, call logs text message and GPS to know where and what she is always up to. I’m really grateful for this great experience, it really helped me find out the truth about my marriage. They are also specialize on hacking and recovery of lost funds, kindly send a message if you’ve experience any of these issues..Email: jamesmckaywizard at gmail dot com or WhatsApp +31657.4.46.248. Kindly reach out to them and thank me later.