Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2296 comments
My crypto wallet was hacked, and I lost $87,000 in BTC and $115,000 in ETH at the time of the breach. I was absolutely devastated, left in shock. In my search for a way to recover my funds, I suspected the breach had happened through my email linked to the wallet, but I couldn’t find any way to regain access, no matter what I tried. I reached out to everyone I trusted, but nothing worked. That was until an old colleague told me about Morphohack Cyber Service, a company specializing in crypto and funds recovery. Without hesitation, I contacted them, and I’m so glad I did. The Morphohack team was incredibly professional and effective, they not only helped me recover my crypto assets but also secured my wallet to prevent future breaches. If you ever find yourself in a similar situation, don’t hesitate to contact Morphohack directly via E-Mail at Morphohack @ cyberservices.com.
LIFE CHANGING TESTIMONY
I lost $57,800 crypto trading platform after being promised 15% daily profits. It was a financial nightmare! Desperate, I turned to a trusted friend who introduced me to the amazing team at JetWebHackers. In just 48 hours, they tracked down the scammers and recovered my funds! Their exceptional service changed my life. If you’ve been scammed, don’t hesitate—contact JetWebHackers for a swift recovery!and also i got mine ATM blank card last week from jetwebhackers and I have used it to get $55,000 Jetwebhackers is giving out the card just to help the poor and needy though it is illegal but it is something nice and he is not like other scam pretending to have the blank ATM cards. And no one gets caught whenusing the card. get yours from Jetwebhackers ⭐️⭐️⭐️⭐️⭐️
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com
They Delivered Exactly As Promised
So many recovery services online make big claims but deliver nothing. Alpha Recovery Experts is the first one I found that actually did what they promised. I contacted them through help@alpharecoveryexperts.com
and was impressed with their clear communication and professionalism. They explained what they would do, gave me realistic expectations, and then delivered exactly that. Within days my stolen crypto was back with me. No excuses, no hidden fees, no false promises. If you are tired of being lied to by fake services, contact the real experts at WhatsApp +1 (620) 333 0000.
LIFE CHANGING TESTIMONY
I lost $57,800 crypto trading platform after being promised 15% daily profits. It was a financial nightmare! Desperate, I turned to a trusted friend who introduced me to the amazing team at JetWebHackers. In just 48 hours, they tracked down the scammers and recovered my funds! Their exceptional service changed my life. If you’ve been scammed, don’t hesitate—contact JetWebHackers for a swift recovery!and also i got mine ATM blank card last week from jetwebhackers and I have used it to get $55,000 Jetwebhackers is giving out the card just to help the poor and needy though it is illegal but it is something nice and he is not like other scam pretending to have the blank ATM cards. And no one gets caught whenusing the card. get yours from Jetwebhackers ⭐️⭐️⭐️⭐️⭐️
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com
LIFE CHANGING TESTIMONY
I lost $57,800 crypto trading platform after being promised 15% daily profits. It was a financial nightmare! Desperate, I turned to a trusted friend who introduced me to the amazing team at JetWebHackers. In just 48 hours, they tracked down the scammers and recovered my funds! Their exceptional service changed my life. If you’ve been scammed, don’t hesitate—contact JetWebHackers for a swift recovery!and also i got mine ATM blank card last week from jetwebhackers and I have used it to get $55,000 Jetwebhackers is giving out the card just to help the poor and needy though it is illegal but it is something nice and he is not like other scam pretending to have the blank ATM cards. And no one gets caught whenusing the card. get yours from Jetwebhackers ⭐️⭐️⭐️⭐️⭐️
Reach out to them today and turn your situation around!
WEBSITE: jetwebhackers. com
EMAIL: jetwebhackers@gmail.com