Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3322 comments
https://diamondlnwpg168.com
https://diamondlnwpg168.com/บทความ
https://diamondlnwpg168.com/pgslot-no-1
https://diamondlnwpg168.com/contact
RECLAIM LOST BITCOIN, USDC, USDT, SOL and ETHEREUM INVESTMENT FROM SCAM: PROTECT YOUR CRYPTO INVESTMENT FROM SCAMMERS META TECH RECOVERY PRO
Waking up every day knowing that META TECH RECOVERY PRO is on my side gives me great comfort. Let me share my story. I will try to make it brief, even though the experience was not a fair one before meeting META TECH RECOVERY PRO. Life has thrown so many challenges at me, but I have always managed to scale through all by myself. I have always believed that to get a job done perfectly, you need to do it yourself, or so I thought, until I encountered an organized crypto-fraudulent group. I was lured into investing my hard-earned money in what at some point looked like a life-changing opportunity, but it was a fairytale. I thought I was earning, but it was the other way around; I was stacking my funds with these scammers, and they used it to scam others. I realized all these after engaging a cybersecurity expert to help me confirm the authentication of this group. I wasn’t shocked when META TECH RECOVERY PRO got back to me with their forensics results about this Telegram crypto investment group because I saw the sign after a while; they only allow me to deposit and never allow none of my withdrawals, yet they claim I was earning profits. Truly, META TECH RECOVERY PRO saved me from a whole lot of financial trouble by successfully retrieving my lost investment because I had sent out not least a million Canadian Dollars to this investment group. I am writing this positive review about META TECH RECOVER PRO because many individuals in my situation have been, are currently, and are about to fall prey to this crypto mining and trading fraud ravaging the internet. I highly suggest you contact META TECH RECOVERY PRO for more information about their legitimacy or to recover your lost crypto assets. For help via.
M e t a t e c h @ W r i t e m e. C o m
W / S +1 4 6 9 6 9 2 8 0 4 9
THANK YOU.
RECLAIM LOST BITCOIN, USDC, USDT, SOL and ETHEREUM INVESTMENT FROM SCAM: PROTECT YOUR CRYPTO INVESTMENT FROM SCAMMERS META TECH RECOVERY PRO
Waking up every day knowing that META TECH RECOVERY PRO is on my side gives me great comfort. Let me share my story. I will try to make it brief, even though the experience was not a fair one before meeting META TECH RECOVERY PRO. Life has thrown so many challenges at me, but I have always managed to scale through all by myself. I have always believed that to get a job done perfectly, you need to do it yourself, or so I thought, until I encountered an organized crypto-fraudulent group. I was lured into investing my hard-earned money in what at some point looked like a life-changing opportunity, but it was a fairytale. I thought I was earning, but it was the other way around; I was stacking my funds with these scammers, and they used it to scam others. I realized all these after engaging a cybersecurity expert to help me confirm the authentication of this group. I wasn’t shocked when META TECH RECOVERY PRO got back to me with their forensics results about this Telegram crypto investment group because I saw the sign after a while; they only allow me to deposit and never allow none of my withdrawals, yet they claim I was earning profits. Truly, META TECH RECOVERY PRO saved me from a whole lot of financial trouble by successfully retrieving my lost investment because I had sent out not least a million Canadian Dollars to this investment group. I am writing this positive review about META TECH RECOVER PRO because many individuals in my situation have been, are currently, and are about to fall prey to this crypto mining and trading fraud ravaging the internet. I highly suggest you contact META TECH RECOVERY PRO for more information about their legitimacy or to recover your lost crypto assets. For help via.
M e t a t e c h @ W r i t e m e. C o m
W / S +1 4 6 9 6 9 2 8 0 4 9
THANK YOU.
My name is Lynn Reed from North Carolina, and I lost $603,000 worth of Bitcoin in a targeted SIM swap scam. Within minutes, my Bitcoin vanished from my Coinbase wallet, leaving me completely devastated and confused. I had no idea how something like this could happen so quickly or what I could do to recover from it. I immediately reported the incident to the proper authorities and explored all legal channels, but nothing could have prepared me for the reality of such a loss. Weeks went by with no progress, and I began to lose hope. Eventually, I got in touch with Morphohack Cyber Service, a reputable company specializing in crypto and digital asset recovery. Their team of blockchain investigators and digital forensic experts stepped in and worked tirelessly to trace and recover my stolen Bitcoin.
Thanks to their expertise, professionalism, and discretion, my assets were successfully recovered. I’m incredibly grateful for Morphohack’s help during one of the most difficult times in my life. I highly recommend their services to anyone facing a similar situation, they are experienced, efficient, and trustworthy. E-mail contact: MORPHOHACK@CYBERSERVICES. COM…..
I’m thrilled to share my incredible experience with TROY HACKS CYBER SECURITY COMPANY. After falling victim to a sim swap scam, I lost a staggering $1.3 million worth of Bitcoin. Devastated and feeling hopeless, I discovered TROY HACKS CYBER SECURITY COMPANY, whose expertise in cryptocurrency recovery is unparalleled.
Within 48 hours, they worked tirelessly to investigate and track down my stolen funds. Their professionalism, communication, and dedication are truly impressive. I’m overjoyed to report that they successfully recovered my lost Bitcoin, giving me a second chance at life.
If you’re a victim of cryptocurrency scams or lost funds, don’t hesitate to contact TROY HACKS CYBER SECURITY COMPANY. Their top-notch services and commitment to helping you recover your assets make them the go-to solution. Here’s their contact information:
Email: Troyhacks@cyberservices.com
WhatsApp: +1(260) 237-6241
As a living testament to their effectiveness, I’m grateful for their expertise and prompt response. Don’t let scammers get away with your hard-earned money; let TROY HACKS CYBER SECURITY COMPANY help you take back control. Reach out to them today and take the first step towards recovering your lost cryptocurrency. I’m confident they can help you too ,don’t wait, contact them now and let them work their magic.