Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3301 comments
I’ve been attempting to expand my wine business in my hometown in White Plains, NY. For the past 7 years, I do play the lottery in my spare time, but on this blessed day I came across an article about Lord Meduza’s spell to win the lottery. I contacted Lord Meduza to see if it would work and after I agreed to his terms and conditions for completing the task for me, he performed his magical powers for me and within 48 hours, he provided me with the numbers I needed to play the lottery, and I followed his directions. I found out at the store that I was the winner of a $105 million jackpot. For a moment I felt uncertain but I looked again and I saw it was real. As I speak to you, My level has been elevated from grass to grace and I’ve come to know that life is more spiritual and with the Lord Meduza spell, you can actually win the lottery. Please assist me in thanking him and his contacts are listed as follows;
WhatsApp: +1 (807) 907-2687
Email: lordmeduzatemple@hotmail.com
CONSULT AN AUTHORIZED USDT/BITCOIN RECOVERY HACKER – GHOST CHAMPION HACKER After becoming a victim of a cryptocurrency investment scam and needing help recovering over $336,980 in bitcoin from the con artists, I will be proud to recommend you all to GHOST CHAMPION RECOVERY as the legal and reputable recovery expert out there. You can reach their support team by using the information below. Email address: ghostchampionwizard@gmail.com , text message: +44 7383450230 Website:https://stellamariaqueen03.wixsite.com/-ghost-champion-wiza
Website : https://t.me/WizardGhosthacker
Even when I dated my wife for years, cohabited with her and vetted her thoroughly and ensured her family accepted me to part of them, the fact that ferminity is mallaeble came to play out in my marriage. She had some close friends who were single and most are still single till date. They had a huge influence on my wife and that alone always made us had issues. Eventually she left me and i had to seek help from Dr Isikolo knowing he is capable of restoring the love and happiness we shared and to also get her back to me. I complied with everything Dr Isikolo told me and my wife came back home with regrets of paying attention to fake friends and we are happy together again now. You can read about his works on his page: https://isikolo-temple.com or might as well text him via WhatsApp on: +2348133261196
if you’ve fallen victim to cryptocurrency theft or fraud, don’t hesitate – contact RECOVERYHACKER101 . Com immediately! Their expertise in recovering stolen digital assets is unparalleled, and their swift action can mean the difference between losing everything and recovering your valuable funds. I speak from personal experience, having recently recovered my stolen bitcoins with their help within an astonishing 72 working hours, RECOVERYHACKER101 team of expert hackers worked tirelessly to track down and retrieve my plundered assets. Their professionalism, efficiency, and dedication are truly exceptional. If you’re at risk of losing your hard-earned cryptocurrency, reach out to recoveryhacker101 @ gmail . Com for the best chance of recovery. Their services are truly lifesaving, and I cannot recommend them highly enough. If you’re in a similar situation, don’t wait – contact them now and take the first step towards recovering your stolen funds.
Are you searching for a real spell caster ?
It is amazing how quickly Dr. Excellent brought my husband back to me.
My name is Heather Delaney. I married the love of my life Riley on 10/02/15 and we now have two beautiful girls Abby & Erin, who are conjoined twins, that were born 07/24/16. My husband left me and moved to be with another woman. I felt my life was over and my kids thought they would never see their father again. I tried to be strong just for the kids but I could not control the pains that tormented my heart, my heart was filled with sorrows and pains because I was really in love with my husband. I have tried many options but he did not come back, until i met a friend that directed me to Dr. Excellent a spell caster, who helped me to bring back my husband after 11hours. Me and my husband are living happily together again, This man is powerful, contact Dr.Excellent if you are passing through any difficulty in life or having troubles in your marriage or relationship, he is capable of making things right for you. Don’t miss out on the opportunity to work with the best spell caster.
Here his contact. Call/WhatsApp him at: +2348084273514 "
Or email him at: Excellentspellcaster@gmail.com ,
For more information visit his website:https://drexcellentspellcaster.godaddysites.com