Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
3300 comments
ARE YOU A VICTIM OF CRYPTOCURRENCY INVESTMENT FRAUD, FOREX OR NFT SCAM? SCHEDULE A MEETING WITH AN ETHICAL HACKER ASAP TO GET STARTED.
Workmanship fee is to be settled AFTER successful recovery.
Let us show you the art of Ethical Hacking….!
ASOREHACKCORP is a private group of financial regulators, private investigation and funds recovery body. We specialize in cases as regards ETHICAL HACKING, CRYPTOCURRENCY, FAKE INVESTMENT SCHEMES and RECOVERY SCAM. We are also experts in CREDIT REPAIR, we analyze what’s impacting your score.
All software tools needed to execute RECOVERIES from start to finish are available in stock.
Kindly NOTE that the available tools does NOT apply to CREDIT FIX.
Be ALERT to FABRICATED reviews and testimonies on the internet, do not get scammed twice.
Contact our team as soon as you can via the email address below to book a mail meeting with an ethical hacker.
asorehackcorp (@) gmail (.) com
Stay Safe out there !⁶
ARE YOU A VICTIM OF CRYPTOCURRENCY INVESTMENT FRAUD, FOREX OR NFT SCAM? SCHEDULE A MEETING WITH AN ETHICAL HACKER ASAP TO GET STARTED.
Workmanship fee is to be settled AFTER successful recovery.
Let us show you the art of Ethical Hacking….!
ASOREHACKCORP is a private group of financial regulators, private investigation and funds recovery body. We specialize in cases as regards ETHICAL HACKING, CRYPTOCURRENCY, FAKE INVESTMENT SCHEMES and RECOVERY SCAM. We are also experts in CREDIT REPAIR, we analyze what’s impacting your score.
All software tools needed to execute RECOVERIES from start to finish are available in stock.
Kindly NOTE that the available tools does NOT apply to CREDIT FIX.
Be ALERT to FABRICATED reviews and testimonies on the internet, do not get scammed twice.
Contact our team as soon as you can via the email address below to book a mail meeting with an ethical hacker.
asorehackcorp (@) gmail (.) com
Stay Safe out there !⁷
With my experience working with Dr Isikolo, i came to the conclusion there are very good and honest people out there who can truly do all they can to fix whatever problems you have even when they are not known to you visibly or see them in person. I lost my marriage for not being able to fully what it means to lead a woman right and accept the fact that they are wired in a way we men can never understand. I had to seek help from Dr Isikolo knowing my wife is a good woman whom i cant loose to anyone else. It was a tough situation for me though and too many things was revealed to me while he was helping me to fix the probleems and i got the effect of the result just after 48 hours as he assured me and i have my wife back home to me. Dr Isikolo is the best option you can choose to restore love and connection between you and your partner and get back them back to your lives and be happy together forever. You can call/text him via WhatsApp +234-8133261196 or click on his webpage and see more details about his good works. https://isikolo-temple.com
My husband whom I built my life with for 23 years left me and the kids without a word. Everything came crashing down on me and I reached out to our loved ones and no one could help. There came a time he filed for divorce even when we had no issues or ever fought over anything disastrous. Dr Isikolo came to my rescue and fixed the problem I had with my man. He reunited us back together again and he returned home to us. Indeed life is mysterious and I never thought I would experience what I did went through but all thanks to Dr Isikolo who worked for me and assured me of the positive results after 48 hours which indeed came to pass as he promised. He can as well fix your problems if you contact him now. Text him on WhatsApp him on +2348133261196 or review his page: https://isikolo-temple.com
Scammed out of $275,000? How I Got It ALL Back in 72 Hours
Losing $275,000 to a crypto scam didn’t just empty my bank account; it shattered my world. It was my retirement, my savings, and even money borrowed from friends—all gone in an instant. The shame and despair were overwhelming, and I was convinced my life was over.
Just when I had lost all hope, I found JetWebHackers. I was terrified of being tricked again, but I was desperate. Reaching out to them was the best decision I ever made.
In an unbelievable 72 hours, they performed a miracle. They recovered every single dollar that was stolen from me. Seeing that money back wasn’t just a relief; it felt like I could breathe again. They didn’t just restore my funds; they restored my future.
I am eternally grateful. If you are in the same nightmare I was, please, don’t wait. There is real help out there.
WEBSITE: jetwebhackers . com
EMAIL: jetwebhackers @ gmail . com
TELEGRAM: @jetwebhackers
WHATSAPP: +1 (505) 428-8792