Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
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Victim of a Pig-Butchering Scam? Here’s How I Recovered My Crypto
If you’ve fallen victim to a Pig-Butchering scam, you’re not alone, and more importantly, there’s still hope.
I’m sharing my story to raise awareness and help others who’ve been scammed recover their stolen digital assets. Two months ago, I lost $1,846,000 worth of Bitcoin and ETH in one of these sophisticated frauds.
It began with someone posing as a popular investor named “Ryan” on Instagram. His account looked legitimate, He reached out offering what seemed like a private, lucrative crypto investment opportunity. Everything seemed real, so I invested. Over the course of several weeks, I transferred significant amounts of crypto.
Then, without warning, the account was wiped clean. My entire balance gone.
I reported it to the authorities immediately, but despite their efforts, there was little they could do. Crypto transactions are notoriously hard to reverse, and scammers often route funds through multiple wallets to hide their tracks. Thankfully, a colleague with strong government connections referred me to a professional recovery team called Morphohack. He had heard they were reputable and had helped others in similar situations.
With nothing left to lose, I reached out and shared every detail I had, transaction records, addresses, communications. The Morphohack team responded quickly and took immediate action. Incredibly, within 96 hours, they traced my assets through the blockchain and successfully recovered the majority of my stolen funds. I was in shock. After everything, I thought my money was gone for good, but they delivered what I thought was impossible.
I’m sharing this as a lifeline.
If you or someone you know has been targeted by a Pig-Butchering scam, don’t suffer in silence. Reach out and explore recovery options.
You can contact Morphohack via E-mail:MORPHOHACK@CYBERSERVICES . COM
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