Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2316 comments
You can trust Dr. Excellent his spells work’ My marriage was restored and my husband came back to me he apologized for all the wrongs he did and promise never to do it again. A big thanks to this wonderful psychic for bringing my husband back to me.. I never really believed in magic spells or anything spiritual but a trusted friend opened my eyes to the truth about life. My marriage was heading to divorce a few months ago. I was so confused and devastated with no clue or help on how to prevent it, till I was introduced to Dr. Excellent that did a love spell and broke every spiritual distraction from my marriage. A day later my husband started showing me love and care even better than it used to be, he’s ready to talk things through and find ways for us to stay happy. It’s such a miracle that my marriage can be saved so quickly without stress. You can also contact him for help. Here his contact. Call/WhatsApp him at: +2348084273514 "Or email him at: Excellentspellcaster@gmail.com , His website:https://drexcellentspellcaster.godaddysites.com
Hi everyone! I hope this post finds you well. Ignorance occurs when you recognize an opportunity but decide to overlook it. Not everything you come across online is false or deceptive. The internet was designed for various purposes to assist individuals globally. I never thought I would discover a spell caster online capable of providing me with guaranteed winning numbers that turned me into a LOTTERY winner of TEN MILLION DOLLARS after I attentively adhered to all his advice and today I’m happy to announce that my financial aspirations was fulfilled with his amazing spell. If you need his help on anything such as to rekindle your ex lover back, to cure any sickness/diseases, to attract prosperity into your life E.T.C, then contact LORD MEDUZA.
Email: Lordmeduzatemple@hotmail.com
WhatsApp: +1 (807) 907-2687
LORD MEDUZA is the BEST when it comes to spell casting.
I was so lucky to win the $1 million prize in the lottery. I have been playing the powerball lottery for about 20 years, and i didn’t win any big amount until Dr. Lucas helped me with his spiritual winning numbers, I thought it was all fake until he gave me the numbers and directed me on how to play. He gave me assurance that I was going to win and asked me to give him 48 hours to finish his work, which I did. The third day, he gave me the numbers and gave me instructions on how to play, and luckily, I won. I want to let everyone who is reading this to know that this spell really works and you can also be a winner if you give it a try to see for yourself. The moment you contact Dr Lucas for help is the end of suffering in your life, he has been helping people around the world and I’m happy that I’m among those who has benefited from his great work he’s doing, you can reach him if you really want to win the lottery Email: Drlucasspelltemple@gmail.com Or WhatsApp +234 904 794 3567 Thank You
I was so lucky to win the $1 million prize in the lottery. I have been playing the powerball lottery for about 20 years, and i didn’t win any big amount until Dr. Lucas helped me with his spiritual winning numbers, I thought it was all fake until he gave me the numbers and directed me on how to play. He gave me assurance that I was going to win and asked me to give him 48 hours to finish his work, which I did. The third day, he gave me the numbers and gave me instructions on how to play, and luckily, I won. I want to let everyone who is reading this to know that this spell really works and you can also be a winner if you give it a try to see for yourself. The moment you contact Dr Lucas for help is the end of suffering in your life, he has been helping people around the world and I’m happy that I’m among those who has benefited from his great work he’s doing, you can reach him if you really want to win the lottery Email: Drlucasspelltemple@gmail.com Or WhatsApp +234 904 794 3567 Thank You
I used to be a very poor woman who has always not found luck when it comes to playing the lottery. I have been playing the lottery since I was 21 years and now I am 45 meaning I have been playing the lottery for 24 years. The biggest amount I have ever won in my life was 400 bucks. But one day my story turns to history after I find this man’s name on the Internet that he is the best when it comes to winning the lottery. This man is a very strong voodoo doc who gives out the numbers that can never fail. After all my years of laboring and struggling to win the lottery i finally won ( $27,000,000) Dr Alli is the name, Email: allispellhelp1@gmail.com or contact him on his whatsApp number +2348100772528 this is the only way to win the lottery and the best way