Staying away from home with late stage MND is an absolute mission. Specialist accommodation is massively rare so I stopped looking for accommodation that has everything I need a long time ago. Instead I find places that have enough space and hire or travel with all my equipment. To give you an idea my packing list for this trip had 76 items on it...
Of course I can't physically help to pack any of that, and trying to control too much of the process is a very fast path to massive frustration. However its not easy to let go when so much of that equipment is essential to keeping me alive and cared for, I need to have a lot of trust in my care team and thankfully I do.
Then of course there are the people who will physically push me around the London Marathon. Taking responsibility for my care at the same time. Not only do they have to be physically fit enough to comfortably run 26.2 miles, they have to monitor me and provide any interventions I may need. Distance running is traditionally a solo pursuit, taking on responsibility for me as well is a heroic effort in my view.
Then there are the people who organise the administrative side, the logistics and the publicity. Making sure all my equipment is where it needs to be, everyone has their accreditation, and that we raise some cash for research and care too.
In total that covers around 12 people. The vast majority of whom are unpaid. Those who are paid receive a fraction of what they deserve (that's a whole other blog post) and go above and beyond to help me a
ttempt these ridiculous challenges. Those 12 people are just the tip of the iceberg, my family, friends, trustees and of course all the amazing people who follow and support the charity all have my heartfelt gratitude. I don't really know how I've created this incredible support, or why so many people are willing to give up their time and energy to support me and the charity. It's beyond anything I hoped for or anticipated when we started Stand Against MND and I'm humbled by it.
It gives me the will to carry on, a purpose. Helps me maintain a positive attitude whilst being assaulted by the most brutal disease. Thank you. Every single one of you.
If you feel inspired to help us fund more vital research, you can donate here.
Thank you so much for reading.
Sam x
2366 comments
CONTACT Abdul Basser FOR YOUR SOLUTION VIA Email: ( basserabdul59@gmail.com) Dear friends online, my name is Julie Cross, am from the U.S.A,Texas I have to give this miraculous testimony, which is still unbelievable to me till now. I had a problem with my husband 3years ago, which lead to our break up. When he broke up with me, i was not my self again, I felt so empty inside me, my love and financial situation became worse, until a close friend of mine (Christine) told me about a spell caster who helped her in the same problem too his name is Abdul Basser, so i emailed him at basserabdul59@gmail.com the spell caster and i told him my problem and i did what he asked me to, to cut the long story short. Before i knew what was happening my husband gave me a call and told me that he was coming back to me in just 2days and i was so happy to have him back. We have two kids together and we are happy with ourselves. Thanks to Abdul Basser for saving my relationship and for also saving others own too. continue your good work Abdul Basser, If you are interested in contact him and testify this blessings like me or you are going through hard life and you need help in such problem you can contact his Email: basserabdul59@gmail.com ,visit his website https://africanancientspells.mystrikingly.com/ or Whatt-sapp/call him +27717403094
i won the lottery and then people kept on asking me how did i do it, well yea there is a little secrete you all never knew about, i was able to win the $80.000.000 lottery with the help of Abdul Basser lottery winning spell, he gave me number to play and instructed me when to play the lottery and i did as he instructed, my dear friends getting rich is never by luck it’s something we all have to work for, people have been playing same lottery for years now and have never won, we need to be on the right track to get what we want iam saying this here because i want the best for everyone, you can’t win the lottery just like that you need to know exacly what to do, what to play and when to play this is a truth that no one will never tell you, if you want to win big my dear i advice you to talk to Abdul Basser let him guide you on what to do and how to do it with his lottery spell. you can try him
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Rose from USA,California
Good day everybody, My name is Alicia Leonard. I am out here to spread this good news to the entire world on how I got my ex husband back. It all started when my husband cheated on me with another woman, unknowing to him that the woman is a witch, the woman cast a spell on my husband which made my husband change his feelings towards me and the kids and broke our 8 years marriage. I was confused and stressed because of the pains of being a single mother, so I called a friend and explained my marital challenges to her, she instructed and directed me to contact this great powerful spell caster called Abdul Basser, The main reason why she instructed me to contact Abdul Basser was because in recent times she has read some testimonies on the internet which some people have written about the powerful spell caster Abdul Basser and i was so pleased and i decided to seek for assistance from him which he did a perfect job by casting a spell on my husband and utilize the powers of the other woman which made him to come back to me and beg for forgiveness. I will not stop publishing his name on the internet because of the good work he is doing. To everyone with marital problems, divorce issues, lost lover or any relationship related issues, you can contact Abdul Basser the powerful urgent spell caster via details below Email: basserabdul59@gmail.com Website: https://africanancientspells.mystrikingly.com/ CallWhatsApp: +27717403094
Hello viewers, i am Teddy Jimmys, from USA NewYork, i want to use this opportunity to thank Prof Ibrahim for the great work he has done in my life. I had a very big misunderstanding with my husband and he said he do no longer want me again that he needs a divorce, i was heart broken, i was diverstated and confused, i didn’t know what to do until one faithful day i saw a testimony of someone testifying about what Prof Ibrahim has done for her i never believed in magic or spell but i had no choice, i decided to give it a try, so i contacted him via his email (profibrahim98@gmail.com@gmail.com) he told me what i need to do which i did and he promised me that within 48 hours my husband was going to contact me, i didn’t believed it 100%, so the second day morning as i was preparing to go to work i had my phone ring and i went to pick it up i was surprise it was my husband calling, i answered and he started apologizing to me, i forgave him because i love him so much, and now he has turned a new live he stopped all the bad things he used to do, now he loves me more than he used to before. You can also contact him if you are also passing through and kind of marital problem or relationship issues he is a very powerful spell caster and i believe he will help you too profibrahim98@gmail.com or you can also WhatsApp him on : +27785149508 /
EMAIL:profibrahim98@gmail.com
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